Most mornings ITV Breakfast highlight a medical condition and have their doctor experts talk about it. I've not yet seen one about PMR GCA . Has anyone?
if not, to write into the programme to ask if they would?
I think that Doc Martin helped a lot with his two mentions of symptoms that his TV aunt was experiencing and not wanting to deal with. The viewer reach is very high and will highlight what we experience and also our charity?
Breakfast TV is not my usual viewing so can’t say I’ve seen anything - the diseases do get touched on occasionally - but the segment is usually so short that it’s just a brief comment - but anything is better than nothing. I think Dr Ranjit "Ranj" Singh Sangha did something not all that long ago…..on said program.
BBC did a series a few years ago when it was covered - Trust me I’m a doctor -series 6, episode 3 - you can easily find it.
But always worth asking again.
I hadn't seen anything on TV other than in the fictional doctor series Doc Martin.
People I tell I have PMR do not know what this is, and think is it Fibremyalgia.
I often do watch morning TV inc the section of the show on health subjects and I thought, well maybe they could discuss PMR and GCA - but with a patient's perspective, not just the doctor's. There are many things still misunderstood that Doctors pontificate about, and it would be helpful to have a few patients on the show to talk about it.
Yes it would be not sure how easy it be though. Might be worth trying your local tv station initially -their reports sometimes get picked up nationally.
I live in London so ITV is my local - I wasn't thinking to do this myself but was wondering what others thought. Shoud I contact Fran Benson?
Worth a try….
It's fine getting coverage of that sort in the media - but apart from the stuff Dorothy Byrne got done, I have yet to see even vaguely accurate portrayals.
These are all the past attempts:
pmrgca.org.uk/professionals...
It’s all got to be bite-sized in a programme like that. Even proper medical programmes are a bit hit and miss.
Exactly - all the bite-sized bits do is scare people into demanding a GP appointment. Doctors in Scotland used to read the Sunday Post for the GP article so they knew what they'd be answering questions on on Monday morning!
Forgot to say charity's press links don't go a far back as mine in DM - just shows how ancient I am!.. or maybe story too scary 😲
Thank you - I have looked these over.
my article in Daily Mail was done after they approached the charity and asked if anyone with GCA was interested in talking to them. Muggins said yes!
I can imagine that trying to get the subject on national TV could be disappointing.
I don't feel that myself, but I hear you.....
Someone on 'GPs Behind Closed Doors' had PMR a while back.
Which doctor - do you remember? Were they any use?
BBC Morning Live would be a better bet as have a Dr on most mornings discussing various ailments. Perhaps if several of us emailed them it might get highlighted.
I agree that several of us writing in to BBC Morning Live would help get noticed, and to request that patients be represented, not just a doctor - If they were to bring in a UK rheumatologist that 'gets' what many of us go through, and not just what the out of date 'book' says, who would you recommend?
Update and questions!
Biphosphonates Questions
Any ideas for travel insurance for those with PMR 
Methotrexate question
Big toe pain this morning 
