what’s going on?

[EdithWales]

Hi Friends

Saw the Spine Dragon who said my spinal stenosis was worse and injected it. It was mortal screaming agony and I levitated off the bed. After a week or so the pain in my leg stopped and I just ached. At the same time sold the family home disposing of much loved heirlooms (his description) or a load of junk ( my description) packed my bucket and spade and came to Barbados for some much needed sun. The plane journey didn’t help and I have had serious back pain with difficulty walking since I arrived. Tried to work out what is happening, a lot of it seems to be muscular and I wondered if it was a flare, I have had them many times and they always go for my neck and shoulders but they are fine. I have increased my Pred slightly and treat myself with Paracetamol together with copious Pina Colada and Gin and Tonic as it’s all inclusive.

I have tried to get some sense from my other half but he is struggling with the arthritic knee he refuses to have replaced. Fortunately have brought long suffering daughter and husband who look on in horror..

Any advice ( other than to cease Pina Colada would be welcome.

At least beautiful weather and really lovely staff.

🥂

[DorsetLady PMRGCAuk volunteer]

hi,

Not really except keep on with the Pina Coladas….and maybe some relaxation in a nice warm pool…

Would say probably reaction to the injection and the plane journey…but just keep your eye on things in case it is a delayed reaction flare.

Enjoy as best you can, and give the daughter & SIL a lesson in how to age gracefully 😂🤣

[EdithWales in reply to DorsetLady]

Thank you 🥂

[EdithWales in reply to DorsetLady]

Just re read your reply, I am sure you meant disgracefully, they have a good teacher 🥂

[DorsetLady PMRGCAuk volunteer in reply to EdithWales]

Take it whichever way you like…..gracefully or disgracefully- I wouldn’t want to influence you in any way…. Cheers 🥂🤣😂

[EdithWales in reply to DorsetLady]

I have dedicated my recent Pina Colada to you ? 🥂🥂

[DorsetLady PMRGCAuk volunteer in reply to EdithWales]

I’ll drink to that! Enjoy 😊

[PMRpro Ambassador]

Nothing to add to DL's diagnosis and prescription ... Enjoy as much as you can!

[EdithWales in reply to PMRpro]

Thank you. I am just reassured by both of you.🥂🥂

[herdysheep]

Thank you to you, pmrpro and DL for the humour. Do hope it all resolves soon.

[EdithWales in reply to herdysheep]

Thank you Herdy Sheep

After nearly 9 years of this challenging disease I have found a bit of humour goes a long way. My husband is a GP and as the majority of them freely admit he knows little about GCA/PMR and can’t help me. Most of them may not see a case of GCA in the whole of their careers. Moreover my sometimes trivial complaints are just boring. Thankfully I found this Forum with Patient Experts who really do know and patiently give their time to help, throw a laugh in the pot and I just feel so lucky.

I did the walking exercises in the pool yesterday and then was shown a nice rather hot Jacuzzi, that changing my medication from Pina Colada to Dry Martini ( shaken not stirred) has resulted in a great improvement.

You have a good day 🥂

[herdysheep]

Variety can make all the difference. Shaken not stirred always better - likely to have 'extra' ingredients!! Glad something is working - I feel a permanent prescription coming on. 🍸🍸🍸🍹

[EdithWales in reply to herdysheep]

A girl after my own heart and we had Welsh sheep albeit on our field on loan from the local farmer🥂🥂

[herdysheep in reply to EdithWales]

black welsh mountain?

[EdithWales in reply to herdysheep]

No Just dirty white Mountain sheep 🥂

[herdysheep in reply to EdithWales]

😪

[Grannymiaow]

👏👏👏🥂🥂🍸🍸🍹🍹😃😃

[Karenjaninaz]

Just be careful of booze and paracetamol-liver. Warning on packages.

I found a wonderful book called "Mind over Back" -very helpful for controlling muscular spasms. It worked for me: I was back at work after 5 month absence.

[EdithWales]

Thank you. I have ordered it and it’s on its way. I have had Hydrotherapy in the past and thought I might ask for that again. I walked around Hampton Court for 4 hours so I am improving