Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,758 members • 39,026 posts

All posts for November 2022

nose bleed this evening

Hello folks , Can I ask for your advice please I have had a headache today nothing to bad but I have a nose bleed , don’t ever get them . I am now on 10...

Hello folks , Can I ask for your advice please I have had a headache today n...

Staffieblue

•2 years ago

5 Replies

Dental Surgery and bone graft needed. Will prednisone inhibit the bone graft from taking?

Hi everyone! I just had the most painful root canal on my right front tooth last week! So bad I was bodily shaking. I was informed that the infection has been...

Hi everyone! I just had the most painful root canal on my right front tooth last...

catdance

•2 years ago

38 Replies

Another survey via LupusUK for UK-based patients.

https://healthunlocked.com/lupusuk/posts/148744550/15-minute-anonymous-survey-to-help-better-understand-issues-affecting-adults-with-arthritis?utm_source=notifi

https://healthunlocked.com/lupusuk/posts/148744550/15-minute-anonymous-survey-to...

PMRpro

Ambassador•2 years ago

25 Replies

Want to take advantage of all our features? Just log in!

sweating while sleeping

concurrent with (later diagnosed PMR) was wet sleeping clothes from knees to neck. As I reduce mg, that has re-occurred. Has anyone experienced this?

concurrent with (later diagnosed PMR) was wet sleeping clothes from knees to ne...

wishingforhealth

•2 years ago

32 Replies

Timing of pills!

I had no idea that I shouldn’t be taking all my pills, prednisolone, aspirin, atorvastatin, omeprazole and adcal -D3 at the same time each morning…… Having...

I had no idea that I shouldn’t be taking all my pills, prednisolone, aspirin, at...

Ancestry1234

•2 years ago

7 Replies

BAKANCE

Any reason why PMR (no GCA) would cause balance issues and frequent dizzy spells?

Any reason why PMR (no GCA) would cause balance issues and frequent dizzy spells...

chiwawaa

•2 years ago

9 Replies

Lower back pain

I was diagnosed in 2020 with PMR and GCA. Am trying desperately to reduce my steroids as I have steroid induced diabetes. I suffer from severe lower back...

I was diagnosed in 2020 with PMR and GCA. Am trying desperately to reduce my st...

Matilda21

•2 years ago

49 Replies

Actemra

I have had 5 doses so far.I find the injector pens are very painful as fluid goes in. Do other people find this?

I have had 5 doses so far.I find the injector pens are very painful as fluid goe...

Hidden

•2 years ago

30 Replies

PMRGCAuk Christmas cards and 2023 calendar available

We have Christmas cards and a 2023 calendar available to buy this year. If you're interested in either, here are the details: There are two designs of cards:...

We have Christmas cards and a 2023 calendar available to buy this year. If you'...

Fran_Benson

Partner•2 years ago

7 Replies

Brilliant review with pharmacist

Hi Everyone I’m just back from a review of my medication for PMR and high blood pressure with the surgery pharmacist. He was great and to me had a better...

Hi Everyone I’m just back from a review of my medication for PMR and high blood...

MrsPractical

•2 years ago

10 Replies

Prednisolone and when to take Adcal

I was very interested to read the recent postings on this subject as I was quite unaware of the need and why to have a 2 hour interval. I have been on this...

I was very interested to read the recent postings on this subject as I was quite...

Blacksley

•2 years ago

3 Replies

Adrenalin?

I am down to 4 mg pred. after 2 years, no current pain just occasional tiredness. Over the 2 years I’ve noticed I lack emotion apart from frustration that...

I am down to 4 mg pred. after 2 years, no current pain just occasional tiredness...

GrannyJane

•2 years ago

8 Replies

reducing dose prednisolone for PMR

I got down to 4mg before I had a flare. My dose was increased to 10mg for 8weeksand then was told to reduce to 9mg for 4 weeks. I’m almost there now and expect...

I got down to 4mg before I had a flare. My dose was increased to 10mg for 8weeks...

crazyknitter

•2 years ago

4 Replies

slightly low cortisol results

Hi. I’m currently on 4.5mg of pred and some days felt very fatigued. Not every day. I requested a cortisol test and it came back slightly low, 334 and I...

Hi. I’m currently on 4.5mg of pred and some days felt very fatigued. Not every d...

Rosina1871

•2 years ago

35 Replies

My Dr appt this evening.

He wasn't unhappy with my rejig. I'd raised Pred to 7mg from 5mg and left off the lunchtime Hydrocortisone (20mg). He's okay'd me to stop the...

He wasn't unhappy with my rejig. I'd raised Pred to 7mg from 5mg and left off t...

IdasMum

•2 years ago

5 Replies

Not typical PMR ?? Long covid related and back problem.

I posted a few months ago about my symptoms and you were very helpful with advice suggesting it might be long covid related as the symptoms appeared a week...

I posted a few months ago about my symptoms and you were very helpful with advic...

simps999

•2 years ago

37 Replies

PMR savvy rheumatologists near Guildford?

The rheumatology department at the Royal Surrey County Hospital is so overwhelmed at the moment that I cannot get a follow-up appointment, neither can my GP...

The rheumatology department at the Royal Surrey County Hospital is so overwhelme...

Angel_doll

•2 years ago

4 Replies

Gca Flare after 5 years ?

I was diagnosed GCA by biopsy in December 2017 and had all the classic symptoms, one was migraine aura which stopped once on 60mg. I've been tapering very...

I was diagnosed GCA by biopsy in December 2017 and had all the classic symptom...

Abbeys

•2 years ago

6 Replies

link to article about muscles loss, exercise and diet

Many of post ask questions about muscle loss and how to prevent/reverse it. This article may answer some of those concerns:...

Many of post ask questions about muscle loss and how to prevent/reverse it. Thi...

pmr_nikola

•2 years ago

4 Replies

Update on remission - itchy feet!

Hi all I am down to 13.25 mg. Still feeling well. The aches and pain are from moving much more than I could before, and it feels good! But one weird...

Hi all I am down to 13.25 mg. Still feeling well. The aches and pain are from...

krillemy

•2 years ago

13 Replies

Update on symptoms unrelated to PMR on low dose Prednisolone.

I posted a few weeks ago that I was suffering from fatigue, abdominal pain, low pulse rate and blood pressure on 2mgs of Prednisolone but no PMR pain....

I posted a few weeks ago that I was suffering from fatigue, abdominal pain, low ...

larkthebark

•2 years ago

13 Replies

Kefir, Kimchi, Kambucha, yes or no?

Stuck at home yesterday by heavy rainfall outside I decided to listen to the recent ZOE podcasts and was inspired to make some kimchi from a tired old cabbage...

Stuck at home yesterday by heavy rainfall outside I decided to listen to the rec...

Zebedee44

•2 years ago

28 Replies

DRY EYES

Just an update on my dry eye situation. Optician recommended Hycosan night gel and drops during the day. The gel has certainly relieved my gritty eyes, thank...

Just an update on my dry eye situation. Optician recommended Hycosan night gel ...

Richmond162

•2 years ago

14 Replies

6th covid

l have had 6 jabs with 4 months in between ,plus flu ,but have suffered two bouts of thrush plus cystitis which l have never had before,l am on prednisone...

l have had 6 jabs with 4 months in between ,plus flu ,but have suffered two bo...

Horses1234

•2 years ago

1 Reply

Osteoporosis due to Pred

three months ago I had a very bad bout of Covid Waking up to use the bathroom I fainted and had a nasty fall. Ended up in hospital X-rays were taken, and I...

three months ago I had a very bad bout of Covid Waking up to use the bathroom ...

YuliK

•2 years ago

1 Reply

Don't blame it all on the prednisone! Check things out.👩🏻‍⚕️ or 👨🏻‍⚕️

I'm writing to add a soft warning to be mindful. I was diagnosed with GCA in 2019 and finally got down to single digits this summer, I'm taking 5 mg per day...

I'm writing to add a soft warning to be mindful. I was diagnosed with GCA in 20...

Grammy80

•2 years ago

18 Replies

Calcium needed or not…?

This is an open-end question, for which there might not be an answer. After diagnosis of PMR my Rheumy prescribed a DEXA scan. Showed mild Osteopenia. Was...

This is an open-end question, for which there might not be an answer. After di...

Boss302Fan

•2 years ago

13 Replies

8-10 weeks and counting

Asked to post this as a separate post: Took me 3.5 years to get to zero mg Pred, MTX did nothing for me. It’s been about 8 weeks now and still in...

Asked to post this as a separate post: Took me 3.5 years to get to zero mg Pred...

Boss302Fan

•2 years ago

18 Replies

Cramp

Hi I’m 7 months in with PMR . On 24,mg steroids . Last few weeks I’m experiencing cramps everywhere from toes feet & legs even wrists . Is this due to...

Hi I’m 7 months in with PMR . On 24,mg steroids . Last few weeks I’m experiencin...

Vito5566

•2 years ago

14 Replies

Unknown Diagnosis

Recently seen Rheumatologist. Again, she states it is not PMR. She doesn’t know what is causing the systemic inflammation and the physical symptoms. I accepted...

Recently seen Rheumatologist. Again, she states it is not PMR. She doesn’t know ...

SMH4CRNA

•2 years ago

39 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for November 2022

nose bleed this evening

Dental Surgery and bone graft needed. Will prednisone inhibit the bone graft from taking?

Another survey via LupusUK for UK-based patients.

sweating while sleeping

Timing of pills!

BAKANCE

Lower back pain

Actemra

PMRGCAuk Christmas cards and 2023 calendar available

Brilliant review with pharmacist

Prednisolone and when to take Adcal

Adrenalin?

reducing dose prednisolone for PMR

slightly low cortisol results

My Dr appt this evening.

Not typical PMR ?? Long covid related and back problem.

PMR savvy rheumatologists near Guildford?

Gca Flare after 5 years ?

link to article about muscles loss, exercise and diet

Update on remission - itchy feet!

Update on symptoms unrelated to PMR on low dose Prednisolone.

Kefir, Kimchi, Kambucha, yes or no?

DRY EYES

6th covid

Osteoporosis due to Pred

Don't blame it all on the prednisone! Check things out.👩🏻‍⚕️ or 👨🏻‍⚕️

Calcium needed or not…?

8-10 weeks and counting

Cramp

Unknown Diagnosis

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A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

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