Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,758 members • 39,028 posts

All posts for November 2022

rheumatology video call this Wednesday

I am having a rheumatology specialist nurse video appointment this Wednesday to discuss me starting methotrexate . My symptoms are improved , I am currently...

I am having a rheumatology specialist nurse video appointment this Wednesday to ...

Bluepin

•2 years ago

18 Replies

sunshine

hi it been rollercoaster for me I had PMR since March hospital put me on steroids 15mg work really good in July had blood test come back that I had sleep TB...

hi it been rollercoaster for me I had PMR since March hospital put me on steroi...

Hippie22

•2 years ago

9 Replies

Thankyou

Thank you all for your replies . I don't know where to start I'm finding it really difficult to live with the pain that I have everyday. I'm on a lot of...

Thank you all for your replies . I don't know where to start I'm finding it real...

Kazm04

•2 years ago

7 Replies

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Parkinsons' question

My older sister has Parkinsons . Has anyone out there been helped by wearing a magnetic bracelet to control the shakes. thanks

My older sister has Parkinsons . Has anyone out there been helped by wearing a...

remission

•2 years ago

4 Replies

Rheumatologist Appt

Hello , after having PMR for eighteen months and been up and down with the Pred , I’m down to six at the moment, I have an appointment with a rheumatologist at...

Hello , after having PMR for eighteen months and been up and down with the Pred ...

Anieand

•2 years ago

9 Replies

taking steroids at night?

Has anyone experience of taking steroids at nighttime? Am sure I’ve read somewhere that it was quite successful and am keen to give it a try. Am in the process...

Has anyone experience of taking steroids at nighttime? Am sure I’ve read somewhe...

Ancestry1234

•2 years ago

15 Replies

where can I read info regarding blood tests for levels o CRP?

Female aged 77. I was diagnosed PMR. Sept. 22. I have never seen my GP he only spoke to me by phone following a blood test. He told me I had PMR. Then posted...

Female aged 77. I was diagnosed PMR. Sept. 22. I have never seen my GP he only ...

Fetlar73

•2 years ago

17 Replies

I wonder if I really need that PPI

Hi everyone. This is my first post and I have a question, although I understand that there might be several different viewpoints. Since being diagnosed with...

Hi everyone. This is my first post and I have a question, although I understand...

Hidden

•2 years ago

26 Replies

Doctor in two hours, suggestions please.

I think im in a major flare. I was down to 3.5 mg october 15. began to have increased pain. made the mistake of going up by 1, then another 1, and another...

I think im in a major flare. I was down to 3.5 mg october 15. began to have ...

ifeelold

•2 years ago

4 Replies

pmr sufferer’s partners

How do people’ partners cope with this depressing, debilitating condition? What help is there for them? Any discussion would be much appreciated

How do people’ partners cope with this depressing, debilitating condition? What ...

bBarnabus

•2 years ago

22 Replies

Just noticed

That there are no GCA/PMR support groups in Northern Ireland!!!!! Maybe nobody has GCA/PMR in Northern Ireland lpl Stay safe folks

That there are no GCA/PMR support groups in Northern Ireland!!!!! Maybe nobody ...

Theziggy

•2 years ago

17 Replies

Insomnia advice, extreme fatigue, steroid effects

I’m having a tough time with getting restful sleep and the ensuing extreme fatigue. Had a bumpy few weeks with an infection, then a decision to stay with...

I’m having a tough time with getting restful sleep and the ensuing extreme fatig...

Bluey-1

•2 years ago

24 Replies

Hello from Florida

Hi everyone, so grateful for this group---

Chiqui1950

•2 years ago

4 Replies

Recent headache … nose bleed and tapering down .

Thank you firstly to PMR pro for replying so quickly on Wednesday evening 🌟 it was the nose bleed that concerned me as I never get them . Thank you also to...

Thank you firstly to PMR pro for replying so quickly on Wednesday evening 🌟 it...

Staffieblue

•2 years ago

2 Replies

Fatigue and malaise

I was diagnosed with pmr 4 years ago and developed gca 4 months ago. Tapering steroids have helped with pain but not with ongoing fatigue, malaise and...

I was diagnosed with pmr 4 years ago and developed gca 4 months ago. Taper...

TinklerSMB

•2 years ago

12 Replies

Silly Mistake

Hi, I’ve been gradually reducing my preds, was down to 6mg, decided to try 5.5, after being on 6 for about a month. All was going well, I tend to take my...

Hi, I’ve been gradually reducing my preds, was down to 6mg, decided to try 5.5,...

Carathedog

•2 years ago

25 Replies

Puzzling rheumy question

I had one of my regular telephone consultations with my rheumy today. My CRP is 6.3 and ESR is 22. I am symptom-free apart from hip stiffness when climbing...

I had one of my regular telephone consultations with my rheumy today. My CRP is ...

Agavegirl

•2 years ago

7 Replies

Needing help

I was diagnosed in October 21 I don't know anyone who also suffers with polymialgia rheumatic . I'm hoping that I can find support and advice from this group.

I was diagnosed in October 21 I don't know anyone who also suffers with polymial...

Kazm04

•2 years ago

16 Replies

Tocilizumab

Do other people find the injector pens are painful, intense stinging. Is there anything that can help this. Thank you.

Do other people find the injector pens are painful, intense stinging. Is there a...

Hidden

•2 years ago

10 Replies

Who had an appointment with Dr Rod Hughes recently

I would like to book an appointment with Dr Rod Hughes in a private hospital. But his time slots are every 15 min! It's the same as NHS. I'm afraid that it's...

I would like to book an appointment with Dr Rod Hughes in a private hospital. Bu...

Morningdew62

•2 years ago

27 Replies

GCA Vasculitis criteria updated

https://ard.bmj.com/content/early/2022/11/09/ard-2022-223480.full These validated criteria for GCA have been published. I'm not sure whether this is a good...

https://ard.bmj.com/content/early/2022/11/09/ard-2022-223480.full These validat...

PMRpro

Ambassador•2 years ago

41 Replies

TCZ and Psoriasis

Historically, have had a small spot of Psoriasis on nape of neck. After a year of Prednisone, it did disappear. Yippeee I thought. Now, after being off Pred,...

Historically, have had a small spot of Psoriasis on nape of neck. After a year o...

jarn

•2 years ago

22 Replies

Vaccine related posts

Dear all, we know that some of you have concerns or queries regarding the ongoing booster vaccines, whether that's wondering when you will receive an invite,...

Dear all, we know that some of you have concerns or queries regarding the ongoin...

Fran_Benson

Partner•2 years ago

1 Reply

I am back again!

Good morning, well, firstly, thanks everyone for your replies to my last post, really useful and supportive x I've just had my telephone Doctors appointment....

Good morning, well, firstly, thanks everyone for your replies to my last post, r...

doubtfully

•2 years ago

22 Replies

after effects of flu jab

Hi everyone, I just need a bit of advice, I had my flu jab on Monday afternoon, and it was fine, I have pmr/gca and I am on 6mg prednis. I have steroid...

Hi everyone, I just need a bit of advice, I had my flu jab on Monday afternoon, ...

loomweaver

•2 years ago

2 Replies

Probiotics - do they work?

Has anyone have experience of taking Probiotics? Do they work? Are any better than others and do they really benefit/improve digestion?

Has anyone have experience of taking Probiotics? Do they work? Are any better ...

Yorksman

•2 years ago

37 Replies

stressful argument and terrible stomach pain

I am not sure why I reacted the way I did but basically my audiologist rang me to request another £200 on top of the £1000 upgrade he had already “persuaded”...

I am not sure why I reacted the way I did but basically my audiologist rang me t...

AnniesRyder5

•2 years ago

26 Replies

Predisone & Risedronate DR - take at same time?

After being diagnosed with osteoporosis in my spine, I finally agreed to start taking Apo-Risedronate DR (35 mg) once a week starting in late July 2022....

After being diagnosed with osteoporosis in my spine, I finally agreed to start t...

LucilleG

•2 years ago

6 Replies

Slow slow taper after appointment with rheumatologist

Appointment with my Rheumatologist tonight has totally disappointed me! I came out wondering whether to get another opinion but that's probably because I...

Appointment with my Rheumatologist tonight has totally disappointed me! I came o...

Karendeena

•2 years ago

29 Replies

Confused

I'm sorry if this is a bit long and rambling, but I'm feeling a bit lost and confused and not sure where to turn. I originally posted on here in June when my...

I'm sorry if this is a bit long and rambling, but I'm feeling a bit lost and con...

Countrykitten

•2 years ago

24 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for November 2022

rheumatology video call this Wednesday

sunshine

Thankyou

Parkinsons' question

Rheumatologist Appt

taking steroids at night?

where can I read info regarding blood tests for levels o CRP?

I wonder if I really need that PPI

Doctor in two hours, suggestions please.

pmr sufferer’s partners

Just noticed

Insomnia advice, extreme fatigue, steroid effects

Hello from Florida

Recent headache … nose bleed and tapering down .

Fatigue and malaise

Silly Mistake

Puzzling rheumy question

Needing help

Tocilizumab

Who had an appointment with Dr Rod Hughes recently

GCA Vasculitis criteria updated

TCZ and Psoriasis

Vaccine related posts

I am back again!

after effects of flu jab

Probiotics - do they work?

stressful argument and terrible stomach pain

Predisone & Risedronate DR - take at same time?

Slow slow taper after appointment with rheumatologist

Confused

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