Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,757 members • 39,025 posts

All posts for November 2022

BAD FLEAR UP OR IS IT

Hi in may this year had a very bad FLEAR UP and my doctor put me on 20 mg per day I have reduced down to 8mg a day....

Hi in may this year had a very bad FLEAR UP and my doctor put me on 20 mg per ...

redpete1

•2 years ago

3 Replies

tingling body at night

I have posted akready about throbbing knees and feet at night.. still a problem but can manage somehow.. with a fan on my feet and cool pads on my knees. But...

I have posted akready about throbbing knees and feet at night.. still a problem ...

Bedwell

•2 years ago

31 Replies

GCA worry

I have had PMR for 2 1/2 years all is going well, still on 5 mg but doctor said thats a small dose, so not to worry, i keep getting a funny pain i my head, not...

I have had PMR for 2 1/2 years all is going well, still on 5 mg but doctor said ...

Harrigan

•2 years ago

2 Replies

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Replacement lense surgery

I developed cataracts as a result of long term steroid use (2yrs) I am now wondering if I could still get GCA not sure. Does anyone know ???

I developed cataracts as a result of long term steroid use (2yrs) I am now wonde...

Deneez99

•2 years ago

2 Replies

neck stiffness

I have been dealing with a flare since August ,2022. My CRP was 38 and my internist started me on 20 Mg Prednisone 2x a day for a week, have tapered every two...

I have been dealing with a flare since August ,2022. My CRP was 38 and my inter...

Predniso141

•2 years ago

23 Replies

fluid behind the eyes

I am currently on 11.5mg prenisladone tapered down from 20mg since March. I have been having trouble with my eyes and an optician has referred me to the eye...

I am currently on 11.5mg prenisladone tapered down from 20mg since March. I have...

nosroblig

•2 years ago

6 Replies

Moaning

I wrote a long rambling post moaning about having to cancel my holiday in Dubai because I got a urinary infection by only drinking one cup of tea and a gin...

I wrote a long rambling post moaning about having to cancel my holiday in Dubai ...

EdithWales

•2 years ago

27 Replies

DL and DSNS tapering systems?

The DL and DSNS tapering systems have been mentioned in posts. What are these systems as am having difficulty getting down from 10 to 9 pred. Have read that if...

The DL and DSNS tapering systems have been mentioned in posts. What are these sy...

Stargiver

•2 years ago

3 Replies

Invitation to have 6th Covid vaccination

Apart from having PMR, I also have COPD so my first vaccination was in December 2021. I then had a further 4 vaccinations with the 5th and last one being in...

Apart from having PMR, I also have COPD so my first vaccination was in December ...

Janann25

•2 years ago

19 Replies

LDN (Low Dose Naltrexone) for PMR?

Has anyone had experience using LDN for their PMR? Following my initial PMR diagnosis fall of 2021 I was put on 15mg of prednisone. I couldn't tolerate it,...

Has anyone had experience using LDN for their PMR? Following my initial PMR di...

mppk

•2 years ago

12 Replies

not feeling to great.

I have a very unpleasant cold. I doubled my steroids as recommended by my adrenal help nurse. Forgot to ask how to reduce. I know I can go straight back to...

I have a very unpleasant cold. I doubled my steroids as recommended by my adrena...

SuziCutie

•2 years ago

2 Replies

Timing of calcium supplements

I know that it is a no-no to take Adcal, Accrete etc within 2 hours of pred because the resultant 'soup' impedes the pred from being absorbed. But is this the...

I know that it is a no-no to take Adcal, Accrete etc within 2 hours of pred beca...

Sharitone

•2 years ago

63 Replies

Cataract op.

Hello my friends! Advice please. I am having my first cataract op next week. After three years I am almost down to 3.5 mg. Pred daily using the DSNS...

Hello my friends! Advice please. I am having my first cataract op next week. ...

Smokygirl

•2 years ago

36 Replies

aching muscles

84 year old male with PMR and GCA for six years now on 6 mgs pred. I am suffering with severe aching shoulders when on laptop and lower back within a few...

84 year old male with PMR and GCA for six years now on 6 mgs pred. I am sufferin...

astley123

•2 years ago

13 Replies

Neck stiffness

I have been on pred since I was diagnosed with PMR in November 2020. I started with a dose of 20mg and have now reduced this month from 6.5 to 6mg using DL...

I have been on pred since I was diagnosed with PMR in November 2020. I started w...

Hankb

•2 years ago

15 Replies

biopsy stitches?

had my temporal biopsy about three weeks ago. All seems to be healing up ok, no problems I’m aware of. The stitches used are dissolving ones. They seem to...

had my temporal biopsy about three weeks ago. All seems to be healing up ok, no ...

Cfmad298601

•2 years ago

12 Replies

Long term steroid reduction and skin discoloration

I was diagnosed with GCA & PMR in December 2012 and at the beginning of this year got down to 2mg prednisolone a day at long last, after many problems along...

I was diagnosed with GCA & PMR in December 2012 and at the beginning of this yea...

Polarabbit

•2 years ago

15 Replies

UPDATE ON HOSPITAL VISIT WITH THE FUNK

Not sure how I feel about this, other than total frustration. This appt was with the nurse (they alternate every 4 months I think with a registrar) I told...

Not sure how I feel about this, other than total frustration. This appt was wit...

Sophiestree

•2 years ago

40 Replies

Swollen, painful hands ?carpal tunnel syndrome

I'd appreciate any thoughts about how to go about this. I've had PMR since March 2019, done the usual up & down, but with the help of Leflonamide I'm currently...

I'd appreciate any thoughts about how to go about this. I've had PMR since March...

HelenDaisy

•2 years ago

26 Replies

FlareupPMR

Had PMR 12yrs last couple years been fine on low dose 3mg dailySaw rheumy 3 times during covid tried methotrexate to get me off pred. Not successful Monday...

Had PMR 12yrs last couple years been fine on low dose 3mg dailySaw rheumy 3 time...

Rene20

•2 years ago

16 Replies

Fall a week ago

Hi everyone. I really need to tell you all this little story. Less than a month ago I organised a personal alarm, and fall detector. Hadn't had a fall...

Hi everyone. I really need to tell you all this little story. Less than a mo...

ChrisinNam

•2 years ago

22 Replies

Flare caused by dosage change?

On Pred since April for PMR. Dosage at mid September 16mg. Reduced to 15 then 14 by 9 October as No PMR symptoms. Developed sciatica. Increased to 18mg for 3...

On Pred since April for PMR. Dosage at mid September 16mg. Reduced to 15 then 14...

craighead72

•2 years ago

6 Replies

Flare or pulled muscle?

I have been going along on 10mg pred for a while hoping to reduce but haven’t yet, then 4 days ago while getting out of a chair a bit awkwardly I felt...

I have been going along on 10mg pred for a while hoping to reduce but haven’t ye...

Stargiver

•2 years ago

3 Replies

savage flare

I have just a rather savage flare. As bad as first diagnosis. My CRP 46 ESR 56. I have been unable to walk very well or raise my hands above my shoulder. I can...

I have just a rather savage flare. As bad as first diagnosis. My CRP 46 ESR 56. ...

Reddev

•2 years ago

52 Replies

Help for extreme pain in thighs and arms

I took my last prednisone tablet mid May (GCA diagnosed late April 2019); cortisol test in June was 203 (reference range in Canada is 135-537); 380 in...

I took my last prednisone tablet mid May (GCA diagnosed late April 2019); cortis...

GratefulBailey

•2 years ago

16 Replies

Just starting.....

Good morning. Over 8 years ago, I was diagnosed with secondary adrenal insufficiency and have been on hydrocortisone since. My bones are thinning and it is...

Good morning. Over 8 years ago, I was diagnosed with secondary adrenal insuffic...

Sewingmom

•2 years ago

10 Replies

Interesting Couple of Weeks.

Morning all, not been around as much recently as otherwise "engaged". OH tested posive for Covid on the 22nd Oct and I tested positive on the 25th. OH hopes to...

Morning all, not been around as much recently as otherwise "engaged". OH tested ...

Bcol

•2 years ago

38 Replies

Is it just a flare or something more sinister

Hi good people I need some expert advice .. I started off back in August on Pred 60 mg and I'm currently on 40 mg, everything seemed to be going ok when 4...

Hi good people I need some expert advice .. I started off back in August on Pr...

WHL67

•2 years ago

15 Replies

Advice please re left thigh pain which is migrating to buttock and groin

Good evening / morning to all in this community and thanks to everyone for their postings which I have found so reassuring. A little knowledge is such a...

Good evening / morning to all in this community and thanks to everyone for their...

Ryeland

•2 years ago

9 Replies

GCA diagnosed February 2018 Tapering now from 5 to 4.5 Mg Prednisone and would appreciate input.

I've had a long tumultuous relationship with prednisone and would like to kick it to the curb permanently now. Eight weeks ago I had an adrenalectomy because...

I've had a long tumultuous relationship with prednisone and would like to kick i...

Blurry62

•2 years ago

45 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for November 2022

BAD FLEAR UP OR IS IT

tingling body at night

GCA worry

Replacement lense surgery

neck stiffness

fluid behind the eyes

Moaning

DL and DSNS tapering systems?

Invitation to have 6th Covid vaccination

LDN (Low Dose Naltrexone) for PMR?

not feeling to great.

Timing of calcium supplements

Cataract op.

aching muscles

Neck stiffness

biopsy stitches?

Long term steroid reduction and skin discoloration

UPDATE ON HOSPITAL VISIT WITH THE FUNK

Swollen, painful hands ?carpal tunnel syndrome

FlareupPMR

Fall a week ago

Flare caused by dosage change?

Flare or pulled muscle?

savage flare

Help for extreme pain in thighs and arms

Just starting.....

Interesting Couple of Weeks.

Is it just a flare or something more sinister

Advice please re left thigh pain which is migrating to buttock and groin

GCA diagnosed February 2018 Tapering now from 5 to 4.5 Mg Prednisone and would appreciate input.

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