sweating while sleeping

[wishingforhealth]

concurrent with (later diagnosed PMR) was wet sleeping clothes from knees to neck. As I reduce mg, that has re-occurred. Has anyone experienced this?

[PMRpro Ambassador]

It is mentioned quite often - if you look at the Related Posts (at the side on a computer, the bottom of the page I think on a phone) you will see similar discussions to read in the meantime.

[wishingforhealth in reply to PMRpro]

thank you. My doctor ignored how disruptive soaking wet is.

[PMRpro Ambassador in reply to wishingforhealth]

Typical!!! Male? They just assume we exaggerate!

[wishingforhealth in reply to PMRpro]

Yes happens to be a male. "Asked me if I couldn't just push through the pain" I told the doctor I was stuck on the floor of the shower for many minutes,unable to pull/push myself up (and I used to be a power lifter).

[PMRpro Ambassador in reply to wishingforhealth]

Oh dear - better not say what I thought first! Obviously not the empathetic type.

[Captainjonny in reply to PMRpro]

Careful! I’m male and night sweats were one of my symptoms, for a while. Did I get sympathy from my wife? More a “welcome to my world” comment!! Good news is the the episodes are very infrequent now - indeed I can hardly recall the last one. I don’t post often but continue to read entries and get valuable support from them. Thanks for your work.

[PMRpro Ambassador in reply to Captainjonny]

My husband got the "welcome to my world" response when he was whinging about backache!!!

Mmm - but the point is, males have to experience them before they "get it"!!

[jinasc]

Please read this link and then complete your profile.

I wanted to know how old you were - is it possibly the menopause?

healthunlocked.com/pmrgcauk...

[Grammy80]

I can only add my personal experience to the mix...diagnosed with GCA in 2019. Back then, I had night sweats often~time to wring out the nightgown. Over the years, it has become quite infrequent but every so often, it does happen now and I'm down to 5 mg. As long as it isn't night after night, I assume my body is adjusting to 'something'. If it was every night, I too, would classify it as an issue. Hope it settles down.💞

[wishingforhealth in reply to Grammy80]

thank you.

[Bcol]

As PMRpro has already said an oft mentioned problem, not one I've had, so far, with PMR but I did have a week of it with Covid recently.

[wishingforhealth in reply to Bcol]

thank you, I am also recovering from covid. I didn't get the booster out of fear of a potential response. So far, covid has been mild-just lost taste & smell for one day.

[Bcol in reply to wishingforhealth]

No problem with the boosters and fingers crossed for you that your symptoms remain mild.

[StriatedCaracara]

I find severity of headache and number of places affected has relationship with amount I sweat. Had pain round back of head and in chest as well as temples last time I woke soaking wet. Since started pred it has reduced but I have UCTD..so autoimmune issues elsewhere too..There is a big link for me.

[singingloud in reply to StriatedCaracara]

Did you get checked out for GCA? Those are quite the symptoms.

[StriatedCaracara in reply to singingloud]

GCA suspected. Just waiting for ultrasound at the moment on 2 wk wait. ESR always normal.

[StriatedCaracara in reply to StriatedCaracara]

And said no inflammation now, ESR normal..no GCA..discharging second time

Said pattern of disease not right. That most people already have sight loss or tongue necrosis..back to square one..

[PMRpro Ambassador in reply to StriatedCaracara]

"most people already have sight loss or tongue necrosis."

Tripe - unless they are totally unable to diagnose from symptoms!

"Lingual manifestations such as edema, pallor, pain, and intermittent claudication occur in up to 25% of cases and can be associated with a greater risk of ischemic complications. However, tongue necrosis is rare, given the rich blood supply to this tissue "

ncbi.nlm.nih.gov/pmc/articl...

And sight loss is also seen in about 20% of untreated patients - timely use of steroids reduces it to more like 1%.

When I was in school - even 45% is not "most" if you count lingual manifestation. Rare is what it says - rare ...

[StriatedCaracara in reply to PMRpro]

The pred I took also worked..

[Viv54]

I have profuse sweating at any time day or night, just pours off me , i hate it ! Read the leaflet and did my online research ,it says pred can have this side affect , i have had it almost from the start been on pred for almost 4 years . The best thing i can tell you is it gets better the lower the dose !🌷

[JuneWalker in reply to Viv54]

I have sweats on and off 24/7. Never had sweats with menopause( pay back time). Glad to hear the lower the dose likely the less sweats.

[Viv54 in reply to JuneWalker]

Snap !

[Miacaro45]

I go through periods of night sweats where when I wake up I feel as if I were swimming all night. I have to change all my bed clothes and bedding plus take a shower. You are not alone.

[Teekay2]

My experience of night sweats. When I told the neurologist who was looking into my head pains that I had night sweats he said it was critical that I told the rheumatologist. When I did it triggered scans and immediate 60 mgms of pred and a biopsy for temporal arteritis which was confirmed.

[Omanain]

I have had both night and day sweats from the beginning. I am 75 so it's unlikely to be the menopause, but it doesn't really feel much different!! I am on 4mg Pred at the moment. Neither my GP nor my rheumatologist, both male, seem interested.

[singingloud in reply to Omanain]

I just saw my rheumatologist this week and it’s not even a question on the iPad form. They never ask about it or care when I’ve told them in the past. I just woke up in a puddle this morning and I’m in 9 1/2 mg of prednisone only.

[DAB-T]

Profuse night sweats, anorexia, weight loss and weakness/drowsiness were my presenting symptoms 3y ago. I was thought to have an undiagnosed malignancy or infectious disease for some weeks. An elevated CRP and high plasma viscosity suggested atypical PMR and all symptoms disappeared with steroids. Have since had some more typical PMR symptoms but well controlled with pred.

The night sweats were my major presenting symptom and if I reduced pred too quickly they reappeared! Maybe take your time.

[LozzaSandstrom]

Yes I have never sweated much in my life and managed to avoid spots too but now both plague me, I am constantly hot - day or night - I have to cook with all the doors open and I wake up most mornings wet with sweat - its hideous isn't it?

[Missus835]

I have found when reducing the Pred, some of the original side effects of taking it reoccur, i.e. the sweats and hot flashes, hunger, brain fog, etc. but it's only temporary and then levels out.

[PMRCanada]

Had night sweats in cleavage and back of neck between 4-8am at the beginning and reoccurring once and awhile. Never during the daytime.

[pegpowell]

I agree with DAB-T, Profuse night sweats, anorexia, and weight loss occurred before PMR diagnose. Prednisone solved the sweats and weight loss. My past experience and guess is that you may have the beginning of a flare.

[wishingforhealth in reply to pegpowell]

Thank you all for your experience & advice. I have increased my dose as a result.