Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,219 members•40,230 posts

All posts for October 2022

Weak hands

My grip has become poor, and writing is increasingly painful and awkward - a special problem for me, because I am a writer, and like to draft by hand before...

My grip has become poor, and writing is increasingly painful and awkward - a spe...

calibriel

•2 years ago

16 Replies

Yet another jab?

I had my fifth covid jab on the 23rd of July this year and have just been invited for another one. It seems a bit too soon and wondered what the thinking was...

I had my fifth covid jab on the 23rd of July this year and have just been invite...

Griggser

•2 years ago

19 Replies

It all seemed to be going smoothly, until …..

….this morning, when I woke up feeling as though I had been run over by a bus! Sharp pains all through the pelvic girdle and into the back - just as I had...

….this morning, when I woke up feeling as though I had been run over by a bus! ...

Greenlife

•2 years ago

24 Replies

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Not alone

I have GCA and PMR, diagnosed in September. Just wanted to say how good it is to get the newsletter first thing in the morning. After waking up to find I...

I have GCA and PMR, diagnosed in September. Just wanted to say how good it is t...

PQXZT

•2 years ago

5 Replies

GCA return after 4 years 😏

Have a painful calf one leg only ... uss shows no blood clot Any one else please had this ? Is it a Pred side effect ? I'm quite concerned as no other GCA...

Have a painful calf one leg only ... uss shows no blood clot Any one else ple...

777s

•2 years ago

13 Replies

Keto ‘flu

Attempting low carb diet, not actually intended to be keto, but wondering if I could have developed ‘Keto ‘flu’, or am I in fact having a flare ? Any...

Attempting low carb diet, not actually intended to be keto, but wondering if I ...

Qula

•2 years ago

7 Replies

Dog bite

Good morning everyone. After a visit to my rheumatologis I have just reduced from 7.5mg Pred to 7mg and feel good. I’m to stay here for two weeks and then...

Good morning everyone. After a visit to my rheumatologis I have just reduced fr...

Pangolin43

•2 years ago

17 Replies

covid jab and paracetamol

I have read that taking paracetamol before a covid jab can help to prevent adverse reaction. I had one v bad reaction to first Pfizer jab but fine with next...

I have read that taking paracetamol before a covid jab can help to prevent adver...

Evamollie

•2 years ago

6 Replies

Patient Access and NHS App

Hi all, for those of you who use Patient Access and the NHS App you can now link the two together and use your NHS App login for both Apps. If nothing else I...

Hi all, for those of you who use Patient Access and the NHS App you can now lin...

Bcol

•2 years ago

18 Replies

nightmare?

just reduced from 8.0 to 7.5 yesterday.. reducing half a mg every 3 weeks.. and had a really horrid nightmare last night. Haven’t been dreaming for a while....

just reduced from 8.0 to 7.5 yesterday.. reducing half a mg every 3 weeks.. and ...

Bedwell

•2 years ago

29 Replies

Good news

I wanted to share my news especially with those who are just starting on their PMR journey or are in the middle of it to let them know that you can get to zero...

I wanted to share my news especially with those who are just starting on their P...

Liby57

•2 years ago

86 Replies

a disease or an illness?

I notice that quite a few people say that PMR is a disease. I see it as an illness not a disease, What do others think?

I notice that quite a few people say that PMR is a disease. I see it as an illn...

Koalajane

•2 years ago

38 Replies

Back to Square One.

So my ESR has gone from 8 to52 and CRP has gone from 6 to 20 since August last blood test. I'm back on 30 mg pred and due more tests. GP hopes that the...

So my ESR has gone from 8 to52 and CRP has gone from 6 to 20 since August last b...

cycli

•2 years ago

182 Replies

Trying to have fun

Iam in Niagara falls for a couple of days and I've been getting bleeds under my skin.Has anyone experienced this?I rubbed my arm with a rough towel.Came out...

Iam in Niagara falls for a couple of days and I've been getting bleeds under my...

Hunter134

•2 years ago

23 Replies

Hello, I am from Southern Ontario.

I was diagnosed with PMR at age 52, I am in Prednisone only taking 5mg daily right now. But the. weather is changing and feel i need to up it. Thinking about...

I was diagnosed with PMR at age 52, I am in Prednisone only taking 5mg daily rig...

PMROntario

•2 years ago

13 Replies

Hi everyone.....

It's really good to see there is an active community here. I've just joined. I was diagnosed with PMR a couple of weeks ago after 3-4 months of symptoms and...

It's really good to see there is an active community here. I've just joined. I w...

FootieFanatic

•2 years ago

25 Replies

The best and worst of PMR

I’m feeling low today and pondering on the things I dislike most about having lived with PMR for six years. And I’m struggling to find anything to describe as...

I’m feeling low today and pondering on the things I dislike most about having li...

Zebedee44

•2 years ago

45 Replies

Fatty Liver and Methotrexate

my rheumatologist wants to put me on MTX for my RA …starting at 10mg injections once a week I’m just on 1mg of prednisone, occasional PMR pains, not like it...

my rheumatologist wants to put me on MTX for my RA …starting at 10mg injections ...

YuliK

•2 years ago

3 Replies

Could I be in remission after 5 years!?

I have come from many symptoms even on 20 mg. Weakness, fatigue, no energy and pain if I dared to do much more than just light housework, no out in the...

I have come from many symptoms even on 20 mg. Weakness, fatigue, no energy and p...

krillemy

•2 years ago

7 Replies

Why has my GP requested a blood test?

I was diagnosed with PMR a year ago and had a blood test then but haven’t had any other blood tests after that. My GP has left me to monitor the tapering on my...

I was diagnosed with PMR a year ago and had a blood test then but haven’t had an...

Badminton

•2 years ago

36 Replies

Paxlovid

I have covid for the second time and my Rhemy wants me to take Paxlovid as the first time I had covid 18 months ago I was quite ill but had a massive PMR flare...

I have covid for the second time and my Rhemy wants me to take Paxlovid as the f...

Pawscat11

•2 years ago

14 Replies

alendronic acid and tooth extraction

morning all I managed to crack a tooth on a tea cake last week 😳 and after an emergency visit to the dentist I’m being referred to a hospital for an...

morning all I managed to crack a tooth on a tea cake last week 😳 and after an...

Geordieland

•2 years ago

53 Replies

Saliva gland lump on face

3 months ago my husband suddenly developed a hard lump on the side of his face in front of his ear. He’s been tested for everything and we’re waiting for...

3 months ago my husband suddenly developed a hard lump on the side of his face i...

briantucker

•2 years ago

4 Replies

More help please

I am now in my 5th year with PMR on a reducing dose of prednisolone, presently 6.5mg daily. About 6 months ago I developed a pain in the sub clavicle area at...

I am now in my 5th year with PMR on a reducing dose of prednisolone, presently 6...

HamishPMR

•2 years ago

11 Replies

osteoarthritis of PMR?

i wake every day with pain at back of neck and also have 2 very painful swollen fingers, been on 1/2 a 1mg of pred for over a year, could it be OA?

i wake every day with pain at back of neck and also have 2 very painful swollen...

Pinkpepper

•2 years ago

16 Replies

Pred affects glucose...what about thyroid?

i have been struggling to reduce my pred dose. Since I went from 22.5 to 20 every day has been different. The first day was ok. No real change. Then my...

i have been struggling to reduce my pred dose. Since I went from 22.5 to 20 eve...

Wallysma

•2 years ago

5 Replies

Costochondritis or what the heck is going on.

So I've been doing really well except the shoulder which hurts, most likely because of pinched nerve in neck, has bothered me since returning from trip....

So I've been doing really well except the shoulder which hurts, most likely beca...

HeronNS

•2 years ago

18 Replies

GCA/PMR

At last blood test results this afternoon which are normal. However as still symptoms of GCA I have a face to face app. at my surgery in the morning. Any...

At last blood test results this afternoon which are normal. However as still sym...

Olympian

•2 years ago

6 Replies

actemra Pmr/Gca

I had my first infusion of Actemra two weeks ago. About a half hour after leaving the center my lip became numb. I took a Benadryl just in case it was a...

I had my first infusion of Actemra two weeks ago. About a half hour after leavin...

Plains

•2 years ago

9 Replies

Preunion and Nail Fungus

I'm a GCA patient that has been on high doses of PRED since late August. I've had bad finger nail fungus for YEARS, and thought it'd get worse from using...

I'm a GCA patient that has been on high doses of PRED since late August. I've ...

montebello

•2 years ago

40 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for October 2022

Weak hands

Yet another jab?

It all seemed to be going smoothly, until …..

Not alone

GCA return after 4 years 😏

Keto ‘flu

Dog bite

covid jab and paracetamol

Patient Access and NHS App

nightmare?

Good news

a disease or an illness?

Back to Square One.

Trying to have fun

Hello, I am from Southern Ontario.

Hi everyone.....

The best and worst of PMR

Fatty Liver and Methotrexate

Could I be in remission after 5 years!?

Why has my GP requested a blood test?

Paxlovid

alendronic acid and tooth extraction

Saliva gland lump on face

More help please

osteoarthritis of PMR?

Pred affects glucose...what about thyroid?

Costochondritis or what the heck is going on.

GCA/PMR

actemra Pmr/Gca

Preunion and Nail Fungus

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for October 2022

Weak hands

Yet another jab?

It all seemed to be going smoothly, until …..

﻿Not alone

GCA return after 4 years 😏

Keto ‘flu

Dog bite

covid jab and paracetamol

﻿Patient Access and NHS App

nightmare?

Good news

a disease or an illness?

Back to Square One.

﻿Trying to have fun

﻿Hello, I am from Southern Ontario.

Hi everyone.....

The best and worst of PMR

Fatty Liver and Methotrexate

Could I be in remission after 5 years!?

Why has my GP requested a blood test?

Paxlovid

alendronic acid and tooth extraction

Saliva gland lump on face

More help please

﻿osteoarthritis of PMR?

﻿Pred affects glucose...what about thyroid?

Costochondritis or what the heck is going on.

GCA/PMR

actemra Pmr/Gca

﻿Preunion and Nail Fungus

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive

Not alone

Patient Access and NHS App

Trying to have fun

Hello, I am from Southern Ontario.

osteoarthritis of PMR?

Pred affects glucose...what about thyroid?

Preunion and Nail Fungus