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I live in Australia. I am 81 yrs old. I was diagnosed PMR end of February, 2022. Started 15 mg Prednisone beginning of March. Increased on 27/7/22 to 20 mg. I have had 4 visits to Hematalogist who gives me very confusing messages each visit. Three occasions she has denied I have PMR, but did admit before last visit, I would have PMR when down to &.7.5 mg, Prednisone if my symptoms increased. When I told her my symptoms were worse, she still said I didn't have PMR, even though I had the proof in blood tests. My GP a few days beforehand stated I had PMR. Have seen my GP since. My next visit is to GP after my Blood Test which will be in a weeks time. Better quality of life on increase of Prednisone, but feeling extremely tired, stiff. At the moment the pain is controlled better on Panadol Osteo since having 20 mg Prednisone. My Hematologist's bed side manner is much to be desired. I was starting to become depressed, but feeling less stressed knowing I will visit my GP after my Blood Test in a weeks time.

[PMRpro Ambassador]

Not only their bedside manner leaves a lot to be desired - so does their level of information about PMR!

However - if your symptoms are improved on panadol it does suggest it may not be PMR causing them. It isn't a haematologist you need but a RHEUMATOLOGIST - and I think you do need to see one because I somehow don't think either of your current doctors has a handle on this,

Please could I ask that you don't use your username as the title for your posts - making it relevant to what you say in your post is helpful for us all on such a busy forum.

[piglette]

Why were you sent to a Hematalogist? What did your GP suspect that you might have? PMR causes tiredness it is part of the illness, you need to rest and then rest some more. As PMRPro says if Panadol helps perhaps it is not PMR after all. Sadly PMR has no good way of being diagnosed, it is a matter of discounting everything else. It does annoy me when doctors say it us not PMR but don’t make any other suggestions, but just leave you hanging.

[SheffieldJane]

Don’t get down. You’ve got us as well and collectively we know a lot and are friendly with it. Fingers crossed for your GP appointment. My son in law is a GP in Australia and he treats PMR patients. It really doesn’t help when your doctors don’t seem to know what they are doing. Good luck!🍀