I just want to listen to others experiences with PMR, how they cope & how they live positively through it.
62 Movies: I just want to listen to others... - PMRGCAuk
62 Movies
I noticed my symptoms in May,2020 after a severe time with shingles which I experienced in the bladder & bowel region
It might help to read FAQs on here. It deals quite comprehensively with many aspects of this complex disease and it’s treatment. The if you ask specifics like “ how were people diagnosed?” Etc you will probably get the answers you need.
I know there are a lot of posts here but read the FAQs and then have a wander through past posts and just read.
And if you put a proper title in instead of just your user name you are likely to find related posts linked for you by the site - for example "How to live with PMR", "PMR experiences".
As for living positively with it - I suppose you just get on with what you CAN do as opposed to dwelling in what you can't do! And find ways around the difficulties.
I think the first big hurdle is actually really accepting that you've got it - not so easy as it sounds!