Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,087 members • 39,891 posts

All posts for August 2022

PMR Swollen Hand

I started on 15mg pred March 21 for PMR. I am now down to 2 mg using a slow taper. Since June when I was at the end of 4mg. my left hand started to hurt( I had...

I started on 15mg pred March 21 for PMR. I am now down to 2 mg using a slow tape...

sail26

•2 years ago

2 Replies

Hearing Loss

This isnt PMR related but I am so worried that it is affecting me. My husband lost hearing in both ears 3 weeks ago. ENT says it will come back but am so...

This isnt PMR related but I am so worried that it is affecting me. My husband l...

daisylazy

•2 years ago

8 Replies

Over cautious Rheumatologist?

I was recently diagnosed with PMR in June 2022. After ER visit and one dose of pred at 60 then 2 days at 40 I have been on 20 mg since. Had first appt with...

I was recently diagnosed with PMR in June 2022. After ER visit and one dose of ...

flygirl65

•2 years ago

7 Replies

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Am I at wrong Prednisone level?

My legs/calves are tight and I can’t really squat. Must walk very slow and raising my arms makes them hurt. Am I on too low a level of prednisone? (I am at...

My legs/calves are tight and I can’t really squat. Must walk very slow and ra...

Greytree

•2 years ago

10 Replies

Tendinitis

Hi after my disastrous appointment with the rheumatologist last week,I think my tendinitis is back.I'm in acute pain feels like all my muscles in my...

Hi after my disastrous appointment with the rheumatologist last week,I think...

Viv54

•2 years ago

29 Replies

Nocturnal hypertension A to B to C

I have nocturnal hypertension. The hypertension has caused kidney issues. I see a kidney specialist in September. I think we have figured out the...

I have nocturnal hypertension. The hypertension has caused kidney issues. ...

phebamom

•2 years ago

7 Replies

Brain Fog and Prednisone Reduction

Hello Everyone Am doing DL reduction of prednisone over 7 weeks and now on Week 4. Doing okay.. feeling fatigued …(who isn’t?) but wondered whether the...

Hello Everyone Am doing DL reduction of prednisone over 7 weeks and now on Wee...

autumnlass

•2 years ago

23 Replies

Wren Project - Listening support for people with a/i disease

Saw this poster when I went for blood tests, haven’t checked it out but thought it might be of interest. Website is www.wrenproject.org

Saw this poster when I went for blood tests, haven’t checked it out but thought ...

Baner

•2 years ago

1 Reply

NEW RHEUMY STATES IM TO YOUNG HAVE PMR,NOW WHAT?

Well, visit to Rheumatologist resulted in more confusion. Not sure to be happy or sad. They stated I don't have the classic symptoms for PMR despite elevated...

Well, visit to Rheumatologist resulted in more confusion. Not sure to be happy ...

SMH4CRNA

•2 years ago

42 Replies

Calling all who live in the USA for support~!

I've been in need several times over the last three years; information, support, and always with more questions than answers. GCA??? What is that? Really?...

I've been in need several times over the last three years; information, support,...

Grammy80

•2 years ago

12 Replies

What to do

Hi all, I've been having headaches for about a month -- frontal headaches that often focus on the right-side. I've also lost 10 pounds in 8 weeks, am...

Hi all, I've been having headaches for about a month -- frontal headaches tha...

montebello

•2 years ago

53 Replies

Hip pain from sitting

Hi All, One of the symptoms that I have had since being diagnosed with PMR 4 years ago is pain from sitting in a chair. This can be from sitting in a hard...

Hi All, One of the symptoms that I have had since being diagnosed with PMR 4 ye...

DaleTravis

•2 years ago

15 Replies

Any Thoughts on Rheumatologist Visit #1?

it’s taken 5 months since the onset of PMR to get a first visit to a Rheumatologist here in British Columbia, Canada. She’d like to get me below 5mg of pred...

it’s taken 5 months since the onset of PMR to get a first visit to a Rheumatolog...

MikeVanBC

•2 years ago

68 Replies

Prednisolone withdrawal

Hi. I've been tapering by .5 mg every with very few problems. Now a week after after reducing to .5 mg I have abdominal pain, slight diarrhoea and occasional...

Hi. I've been tapering by .5 mg every with very few problems. Now a week after ...

Dontwannabesick

•2 years ago

22 Replies

Ladies in Wales: here is a survey specifically for you!

https://healthunlocked.com/lupusuk/posts/148375050/survey-for-women-in-wales-share-what-is-important-to-you-your-life-your-health-and-your-family?utm_source=not

https://healthunlocked.com/lupusuk/posts/148375050/survey-for-women-in-wales-sha...

PMRpro

Ambassador•2 years ago

3 Replies

arm pain…again

my PMR the first year, before being diagnosed, was especially painful in my R arm. I’ve been off prednisone since 1 July. I contacted Covid for the second time...

my PMR the first year, before being diagnosed, was especially painful in my R ar...

Pmrinsein

•2 years ago

7 Replies

Strange blood and balance and pmr?

First i have to say I am in PMR and GCA remission on no pred at the moment, touch wood. So why am I hear? i recently fell forward, a bit like a tree falling...

First i have to say I am in PMR and GCA remission on no pred at the moment, touc...

doubtfully

•2 years ago

10 Replies

No 'Alerts'!

When anyone does a 'like' or responds to something I've posted, I usually get a little yellow number telling me how many responses I've had, appearing on...

When anyone does a 'like' or responds to something I've posted, I usually get a...

Kendrew

•2 years ago

70 Replies

A positive!

So having lived with PMR & GCA for over 3 years….feeling good on 2mg Prednisolone & planning a .5mg reduction soon…I can say that the one positive side effect...

So having lived with PMR & GCA for over 3 years….feeling good on 2mg Prednisolon...

Lyndaki

•2 years ago

21 Replies

.has anyone had a complete full recovery after stopping prednisone

does anyone know. Anyone that has had a complete recovery after taking prednisolone for approx a year. For pmr. I am asking when I come off the prednisone...

does anyone know. Anyone that has had a complete recovery after taking prednisol...

zoey12

•2 years ago

37 Replies

pred & surgery

Morning everybody! I am in the early stages of needing a hip replacement. Could anyone explain why some surgeons want you off pred completely before they...

Morning everybody! I am in the early stages of needing a hip replacement. Could ...

Tapestry1057

•2 years ago

22 Replies

Appointment for infusion

Just got a phone call from hospital to book me in for Zelondronic infusion. Thought I would write this because right from the start she said, "I am not...

Just got a phone call from hospital to book me in for Zelondronic infusion. Th...

Longtimer

•2 years ago

58 Replies

Taking Back Control of Recovery

I've had enough. I've reduced to 20mg pred. and it seems ok so far. A few niggles like slight head pressure across top late morning before next pred and some...

I've had enough. I've reduced to 20mg pred. and it seems ok so far. A few niggle...

cycli

•2 years ago

99 Replies

Update and advice needed

Hi, Just an update on my husband and a little advice please. (He's just turned 71) After having a massive flare of PMR and suffered with Carpal tunnel...

Hi, Just an update on my husband and a little advice please. (He's just tur...

Buenavista

•2 years ago

10 Replies

Apple Watch Watching 👀

Looking thru iPhone history from my Apple Watch since I began wearing it, I just discovered that my resting heart rate was between 48 and 54 BPM throughout the...

Looking thru iPhone history from my Apple Watch since I began wearing it, I just...

MikeVanBC

•2 years ago

34 Replies

Gut Biome, Inflammation, Leaky Gut and Diet

This relates back to my first thread wherein I asked about my serious flare and mentioned in passing about work done to redo my gut biome in 2019 after my PMR...

This relates back to my first thread wherein I asked about my serious flare and ...

pata63

•2 years ago

9 Replies

Lost faith in my reumy

I had him call He about swelling in calves above my knees.He said you don't get that with arthritis.I said I don't have that.He tells me it's from toxins in...

I had him call He about swelling in calves above my knees.He said you don't get...

Hunter134

•2 years ago

3 Replies

Cronic fatigue, nausea and loss of appetite.

Good evening everyone. I haven’t been on here for a while and I have to admit I’ve been feeling a little smug, reducing my pred down to 2.5mg with the help of...

Good evening everyone. I haven’t been on here for a while and I have to admit I’...

Whatawonderfullife

•2 years ago

53 Replies

Rheumatology letter this morning

I received this letter this morning after my appointment 10 days ago. She was a registrar who had just come from Luton and so was familiar and in agreement...

I received this letter this morning after my appointment 10 days ago. She was a...

Sophiestree

•2 years ago

86 Replies

Covid booster tomorrow

Hello all, I haven't yet had Covid ...in the minority I'm sure. We are off to Italy on Sunday so I was delighted to get a follow up letter today after my...

Hello all, I haven't yet had Covid ...in the minority I'm sure. We are off to ...

Jigsawlass

•2 years ago

30 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2022

PMR Swollen Hand

Hearing Loss

Over cautious Rheumatologist?

Am I at wrong Prednisone level?

Tendinitis

Nocturnal hypertension A to B to C

Brain Fog and Prednisone Reduction

Wren Project - Listening support for people with a/i disease

NEW RHEUMY STATES IM TO YOUNG HAVE PMR,NOW WHAT?

Calling all who live in the USA for support~!

What to do

Hip pain from sitting

Any Thoughts on Rheumatologist Visit #1?

Prednisolone withdrawal

Ladies in Wales: here is a survey specifically for you!

arm pain…again

Strange blood and balance and pmr?

No 'Alerts'!

A positive!

.has anyone had a complete full recovery after stopping prednisone

pred & surgery

Appointment for infusion

Taking Back Control of Recovery

Update and advice needed

Apple Watch Watching 👀

Gut Biome, Inflammation, Leaky Gut and Diet

Lost faith in my reumy

Cronic fatigue, nausea and loss of appetite.

Rheumatology letter this morning

Covid booster tomorrow

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2022

PMR Swollen Hand

﻿Hearing Loss

Over cautious Rheumatologist?

Am I at wrong Prednisone level?

﻿Tendinitis

Nocturnal hypertension A to B to C

Brain Fog and Prednisone Reduction

Wren Project - Listening support for people with a/i disease

﻿NEW RHEUMY STATES IM TO YOUNG HAVE PMR,NOW WHAT?

Calling all who live in the USA for support~!

What to do

Hip pain from sitting

Any Thoughts on Rheumatologist Visit #1?

Prednisolone withdrawal

Ladies in Wales: here is a survey specifically for you!

arm pain…again

Strange blood and balance and pmr?

﻿No 'Alerts'!

A positive!

.has anyone had a complete full recovery after stopping prednisone

pred & surgery

﻿ Appointment for infusion

Taking Back Control of Recovery

﻿Update and advice needed

Apple Watch Watching 👀

Gut Biome, Inflammation, Leaky Gut and Diet

﻿Lost faith in my reumy

Cronic fatigue, nausea and loss of appetite.

Rheumatology letter this morning

﻿Covid booster tomorrow

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive

Hearing Loss

Tendinitis

NEW RHEUMY STATES IM TO YOUNG HAVE PMR,NOW WHAT?

No 'Alerts'!

Appointment for infusion

Update and advice needed

Lost faith in my reumy

Covid booster tomorrow