PMR reducing question: have reduced from 20 to 1... - PMRGCAuk

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PMR reducing question

Artwatercolour profile image
16 Replies

have reduced from 20 to 14 every 5 days at 1 drop each 5 days. It’s never been this easy. Am beginning to feel tired- am I going too fast?

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Artwatercolour profile image
Artwatercolour
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16 Replies
DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

See you asked a similar question 6 months ago -not quite sure what is going on with you/ your doctor. Is this latest regime a follow on from a flare -or what?.

If it’s from a flare then it should have been okay - and are you trying to get down to a specific dose?

If it’s part of normal taper, then every 5 days at a dose is not enough to know that dose is enough before you drop down (even at 1mg).

Perhaps you could clarify please, then we could give better advice.

Artwatercolour profile image
Artwatercolour in reply toDorsetLady

I have slowly been reducing from 20. Example 20 for 5 days then 19 for 5 days etc. as I mentioned it had been relatively easy except feeling tired. Am I going to hit a wall - going to fast?

Artwatercolour profile image
Artwatercolour in reply toArtwatercolour

I have been slowly reducing all along

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toArtwatercolour

Would suggest you slow down from now on….

PMRpro profile image
PMRproAmbassador in reply toArtwatercolour

That isn't slow - slow is 1mg every 2 weeks at this stage - 5 days isn't enough to know the new dose is still enough, you flare but the border may have been crossed a few mg earlier. If it has worked so far then fine - but I would suggest you have a couple of weeks at your current dose to be sure you are still OK. And then slow down.

Artwatercolour profile image
Artwatercolour

So when you say slow down do you mean 1/2 tab? And for how long…5 days or 2 weeks

PMRpro profile image
PMRproAmbassador in reply toArtwatercolour

Depends on the dose in a single tablet doesn't it? And every 2 weeks at least - 5 days between drops is never classed as slow by anyone here. I doubt most of us would reduce every 2 weeks either - it isn't a race, it is a titration looking for the right dose for you. Go too fast and you will miss it, cause a flare and end up needing more pred, not less.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toArtwatercolour

Two weeks definitely initially, and maybe 0.5mg once you get to single figures....

Artwatercolour profile image
Artwatercolour in reply toDorsetLady

So are you saying- I’m at 14 stay for 2 weeks then 13.5 for 2 weeks and 13 for 2 was and 12.5 for 2 wks then 12 and 11and 10 for 2 wks.,,then what?

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toArtwatercolour

If you want to continue to reduce every 2 weeks then what you suggest sounds okay, but you’ll have to see. If it doesn’t work then stay at each dose for longer…but as I said,not sure every 2week is a good idea. Just personal opinion.

At 10mg most people reduce monthly so 1mg per month, but then once they get to around 6 or 7mg some find that too much, so change to 1mg every 2months/0.5mg every month.

You need to listen to your body and reduce in a way that’s best for you and your illness.

Meggsy profile image
Meggsy

My flares always occurred around the 2 week mark. I would have been in big trouble had I tapered weekly.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toMeggsy

My point exactly…😊

Bcol profile image
Bcol

Morning, I had a week on 15mg, a week on 30mg, a week on 25mg, two weeks on 20mg then started tapering on a modified DL plan. I got away with dropping 2mg every five weeks until I got to 13mg but at that point it became obvious that I had gone too far too quickly, so back up to 15mg for a couple of weeks and then nothing more than 1mg every five weeks which I extended if I felt it was necessary which on the whole has worked very well.

Artwatercolour profile image
Artwatercolour in reply toBcol

Thanks for your response

hugovictor profile image
hugovictor

I find it is better to extend the the the time between doses of prednisolone; e.g. a dose at 8am and the next at 10am. This fine-tuning may be more acceptable than dropping 0.5 at a time.

PMRpro profile image
PMRproAmbassador in reply tohugovictor

I don't see how that helps? Could you explain?

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