Day 2 of the swap to Hydrocortisone.

[IdasMum]

I have dropped 1mg of Pred on each day to 7mg, taking 30mgs of Hydrocortisone in divided doses.

Is it too soon to be feeling the effect? I seem to have more energy today and wondering if it's just one of those days? I like them, so easy to get stuff done.

The Passionflower has been flowering all summer. It's good when I get this close, they're normally out of reach for me the short person.

[PMRpro Ambassador]

30mg of HC is the same as 7,5mg pred - so you are on 6.5mg more corticosteroid, I'd hope you feel more energetic.

[IdasMum in reply to PMRpro]

Oh! That's good/not good. No wonder I am feeling gooooooooooood 🤣

[PMRpro Ambassador in reply to IdasMum]

That;s why I didn't see the logic ...

[IdasMum in reply to PMRpro]

Okay...gonna have to wait and see what his plans are.

[PMRpro Ambassador in reply to IdasMum]

Has he not said what rate he wants to reduce the pred 1mg at a time?

[IdasMum in reply to PMRpro]

If only I could remember 😯

[PMRpro Ambassador in reply to IdasMum]

If only he'd written it down!!!!

[IdasMum in reply to PMRpro]

He will have on his computer. I'll ask for a printout.

[Longtimer in reply to PMRpro]

Rang Max's secretary today, he's ringing me tomorrow, if I'm on 6 mg, what is the equivalent HC.....

[PMRpro Ambassador in reply to Longtimer]

5mg pred is 20mg HC, so 24mg

[Longtimer in reply to PMRpro]

Ok thank you, will write down how he wants me to lower, can't remember my own name t oday....

[fmkkm]

That flower is absolutely gorgeous! It made me happy 🌞!!

[powerwalk]

Gorgeous flower. Good luck with the HC. Interesting to see how it goes for you.

[springeramber]

Sorry I have been silent for a while but have been absorbing all the information and had not a lot to add. I have reduced down to 3mg but my Synacthen level is still low so I am about to go onto 5mg hydrocortisone 8am and 5mg 4pm instead of prednisolone but still on tocilizumab - I have LVV but very few aches and pains so it is difficult to know if I am improving apart from the blood test results. I am being left on this for 2 months ?! The Synacthen test will be repeated in 4 -6 months -I will report back.