Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,758 members • 39,031 posts

All posts for February 2022

Exercise, PMR and Piriformis Syndrome

I need some advice from you kind people. I have reduced using the dead-slow method from 12mg Pred for PMR to 5mg at present with no obvious flare (I say...

I need some advice from you kind people. I have reduced using the dead-slow meth...

oscarandchloe

•2 years ago

32 Replies

Steriod reduction

Hi every one, i got down to 2mg steriod, but then doctor said go to 4mg after blood test but just for 2 weeks, then reduce, so after 2 weeks do i go back to...

Hi every one, i got down to 2mg steriod, but then doctor said go to 4mg after bl...

Harrigan

•2 years ago

6 Replies

Want to take advantage of all our features? Just log in!

Bad Mornings!

I always take my Pred (3 mgs) after breakfast at about 7am but it is always at least 11am before I feel OKish! I feel best in the evenings which is a waste...

I always take my Pred (3 mgs) after breakfast at about 7am but it is always at...

lonelysunrise

•2 years ago

7 Replies

Call from doctors 2am about GCA and ESR levels

Call from Doctors 2am ! Had a consultation with a rheumatologist yesterday because of the new GCA and bloods done they called to say my ESR levels had...

Call from Doctors 2am ! Had a consultation with a rheumatologist yesterday bec...

Flrchrs

•2 years ago

19 Replies

Has anyone been on steroids for PMR long term without much side effects (at what dose and for how long?)

I am trying to figure out if I should follow my Rheumatologist's orders to start Methotrexate (or if that does not work, then try Tocilizumab) in order to be...

I am trying to figure out if I should follow my Rheumatologist's orders to start...

PMRinAVL

•2 years ago

18 Replies

Is this diet book any good?

I received an email from Amazon recommending this diet book for polymyalgia. I have read on this forum how members find a low carb diet to be beneficial, but...

I received an email from Amazon recommending this diet book for polymyalgia. I h...

Broseley

•2 years ago

35 Replies

The rights and wrongs of taking pred

Hi from me had a coffee with a friend I hadn't seen for a few years and found out she also had PMR and was now after 2years is on a low dose she's cuts every 8...

Hi from me had a coffee with a friend I hadn't seen for a few years and found ou...

Harrywogan

•2 years ago

4 Replies

Going away this weekend and in pain. What shall I do?

Started PMR journey on 15mg pred last May 2021. 15mg was great. Down to 7mg but last few weeks am struggling. I had a bad cough/cold most of January and put my...

Started PMR journey on 15mg pred last May 2021. 15mg was great. Down to 7mg but ...

MiloCollie

•2 years ago

26 Replies

Thanks

Thanks, I’ll give the morning a go, been taking 15mg in evening

Hops1865

•2 years ago

3 Replies

Best time

What is the best meal to take pred with? For breakfast I just have a fresh fruit protein shake, would that be classed a meal?

What is the best meal to take pred with? For breakfast I just have a fresh fruit...

Hops1865

•2 years ago

17 Replies

Everyone aware of Evusheld?

Since so many of us are immunosuppressed, thought I would be sure everyone (at least in the US) is aware of Evusheld. It is available for immunosuppressed...

Since so many of us are immunosuppressed, thought I would be sure everyone (at l...

emmamom

•2 years ago

4 Replies

What would you do?

This is my 4th ( self diagnosed tapering) attempt to get down to 7mg and each time I have felt so weak/ill . However I am only 3 days into it! Plus this...

This is my 4th ( self diagnosed tapering) attempt to get down to 7mg and each ti...

AnniesRyder5

•2 years ago

26 Replies

Confused about 4th Covid vaccination

Hello everyone I’ve had an email and a letter about the 3rd vaccine (which I’ve had) and now about the 4th vaccine. It says that “ I may have a medical...

Hello everyone I’ve had an email and a letter about the 3rd vaccine (which I’ve ...

Skodadet

•2 years ago

8 Replies

Severe back pain - flare?

Hi all, I was dx'd with PMR in 2018 although my blood markers had always been normal. At last meeting with my rheumatologist, she said that in her opinion I no...

Hi all, I was dx'd with PMR in 2018 although my blood markers had always been no...

BiteyDelano

•2 years ago

8 Replies

GCA symptom or something else ?

I've had GCA since December 2017 and a pretty smooth taper. From 60 mg prednisone I am now at 3 mg. I feel fine and my monthly blood work is normal. I have...

I've had GCA since December 2017 and a pretty smooth taper. From 60 mg prednison...

Abbeys

•2 years ago

16 Replies

Hello.

I was diagnosed in September 2021 and I’m new to this group. I recently phoned the Helpline and was very grateful for the support and understanding I received,...

I was diagnosed in September 2021 and I’m new to this group. I recently phoned t...

Allcraft

•2 years ago

27 Replies

Blood tests coming back normal

Hi, like most posts I've read here PMR suffers even if they are relatively stable have relapses. I've had a few which go on for weeks but the last couple which...

Hi, like most posts I've read here PMR suffers even if they are relatively stabl...

7DaysinMay

•2 years ago

6 Replies

Introducing myself

Hi I've today enrolled in HealthUnlocked and have posted an application to PMRCGAuk. I'm a PMR sufferer of just over two years and I thought it was high time...

Hi I've today enrolled in HealthUnlocked and have posted an application to PMRCG...

7DaysinMay

•2 years ago

5 Replies

84 year old male.

Missed heart beats posting, sorry, I should have said this is Mr Macuk asking,

Pip27

•2 years ago

1 Reply

Actemra - dizziness? Nausea? Or too much wine?

Hi - I’m two weeks into Actemra for GCA (a weekly self injection) and have developed dizziness. It’s not extreme and so far it’s manageable. It occurs whether...

Hi - I’m two weeks into Actemra for GCA (a weekly self injection) and have devel...

GCAfiveyearrelapse

•2 years ago

7 Replies

84 year old male with occasional missed heart beats when checking pulse, should I be concerned.

18 months ago it was thought I had angina, but after speaking via telephone with heart specialist it was decided that this was not so, I was told to stop all...

18 months ago it was thought I had angina, but after speaking via telephone with...

Pip27

•2 years ago

7 Replies

Really surprised by the amount of self medication

I have only been on this site a few weeks and have taken time to read the many posts. I’m quite amazed by the amount of self medication that goes on. This...

I have only been on this site a few weeks and have taken time to read the many p...

Hidden

•2 years ago

43 Replies

Experience with Methotrexate?

Has anyone had experience with using Methotrexate for symptoms of PMR? I am on 10 mg of Prednisone, (which is not completely controlling symptoms and my...

Has anyone had experience with using Methotrexate for symptoms of PMR? I am on 1...

PMRinAVL

•2 years ago

31 Replies

Weight management

If anyone is in any doubt if Keto works alongside our blood sugar issues, I’ve been on Keto for just under 4 weeks now and have lost 1 stone and 3 lb. By back...

If anyone is in any doubt if Keto works alongside our blood sugar issues, I’ve b...

Singr

•2 years ago

50 Replies

Steriods

steriod, Iam confused, told to reduce steriods by 1mg per month, got down to 2mg but doctor said i had to go back to 4mgs, fine, but the pain at 4mg or 2mg is...

steriod, Iam confused, told to reduce steriods by 1mg per month, got down to 2m...

Harrigan

•2 years ago

4 Replies

Methotrexate

I had a really good appointment with a rheumatologist in Sevenoaks last week and will now be trying Methotrexate to see how I get on with it, needless to say I...

I had a really good appointment with a rheumatologist in Sevenoaks last week and...

Phed

•2 years ago

14 Replies

Masks

I get that most of you continue to wear masks but it make me realise that you don’t trust Boris or his scientists now even though you did in the beginning. Was...

I get that most of you continue to wear masks but it make me realise that you do...

Uglow

•2 years ago

25 Replies

Catch 22

I was dreading a recent short trip with two early morning flights. To my surprise the pmr caused me less pain and stiffness than usual, leading me to suppose...

I was dreading a recent short trip with two early morning flights. To my surpris...

SID3

•2 years ago

7 Replies

Can I quote you?

Hey experts … PMRpro, DorsetLady et al, My local Member of Parliament has just visited me to get information to put to our Federal Health Minister in an...

Hey experts … PMRpro, DorsetLady et al, My local Member of Parliament has just v...

LemonZest11

•2 years ago

12 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for February 2022

Exercise, PMR and Piriformis Syndrome

Recent posts about age

Steriod reduction

Bad Mornings!

Call from doctors 2am about GCA and ESR levels

Has anyone been on steroids for PMR long term without much side effects (at what dose and for how long?)

Is this diet book any good?

The rights and wrongs of taking pred

Going away this weekend and in pain. What shall I do?

Thanks

Best time

Everyone aware of Evusheld?

What would you do?

Confused about 4th Covid vaccination

Severe back pain - flare?

GCA symptom or something else ?

Hello.

Blood tests coming back normal

Introducing myself

84 year old male.

Actemra - dizziness? Nausea? Or too much wine?

84 year old male with occasional missed heart beats when checking pulse, should I be concerned.

Really surprised by the amount of self medication

Experience with Methotrexate?

Weight management

Steriods

Methotrexate

Masks

Catch 22

Can I quote you?

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive