Is this diet book any good?: I received an email... - PMRGCAuk

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Is this diet book any good?

Broseley profile image
35 Replies

I received an email from Amazon recommending this diet book for polymyalgia. I have read on this forum how members find a low carb diet to be beneficial, but this diet recommends low fat and meat and suggests it might even help to cure PMR and prevent GCA. I have copied the summary below. What do members think?

"Polymyalgia rheumatica might mean that you are suffering from chronic pain right now – but with the right medications and proper diet, it doesn’t have to stay that way. Many studies have shown that dietary changes, along with exercise and stress-reduction can actually be an effective way to treat the condition. This can lead to a reduction or even elimination of medications. Following a low-fat, low-meat diet reduces your risk of developing giant cell arteritis – a serious complication of PMR. Changing your diet is a process – it’s difficult to radically change your diet overnight. However, following the recipes included in this book will help you tailor your diet towards the polymyalgia rheumatica diet that’s recommended by medical professionals. This groundbreaking cookbook contains delicious recipes from all corners of the globe, sure to tickle your taste buds."

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Broseley profile image
Broseley
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35 Replies
piglette profile image
piglette

I think I would be worried about anyone who writes “Following a low-fat, low-meat diet reduces your risk of developing giant cell arteritis”. I wonder what research has told them that. Diet does make a difference to how good or bad your symptoms are, however how you feel is true of diet generally.

I don't know if you have read some of the comments on this book? The book has been mentioned on this discussion board a while back, there was nothing particularly positive about it, if I remember. It seems if you do not live in the US it is not much help.

Broseley profile image
Broseley in reply topiglette

Thanks. I was thinking low fat, low meat, low carb - there's not a lot left! Veganism or vegetarianism is not for me!

PMRpro profile image
PMRproAmbassador in reply toBroseley

That's the trouble - cut carbs and you have to eat good protein and fat. Low fat just leaves you hungry all the time and you "fail" - unsurprisingly

PMRpro profile image
PMRproAmbassador

Um - I'm far from sure there is a PMR diet recommended by medical professionals!! Never come across one at least.It is probably basically an antiinflammatory diet - but most foods discussions on the forums over the years tend to show that everyone is different in what foods tend to trigger symptoms. For example, there was a discussion about nightshades recently but for most of us it appears they don;t make much difference. Or someone might react badly to tomatoes but not anything else. But in general - sugar and carbs make the biggest difference, because of their role in weight gain in pred and the risk of steroid-induced diabetes,

Itls the sort of book I MIGHT buy on a Deal of the Day for 99p. I wouldn't pay full price.

jinasc profile image
jinasc

I have a article written by a Lead Dietican in the University Diabetic Centre. The lady wrote it after attending a support group meeting. A PM with email address, which will be deleted once sent.

Also in the FAQ's take a look at the Newcastle Diet, written by the leading research guy who has been working and researching for over 20 years. If you do buy it all proceeds go to the Diabetes Charity.

Koalajane profile image
Koalajane

For my type 2 diabetes I eat low carb high fat so no good to me. Plus a lot of low fat food have additives in them so no thanks

Theziggy profile image
Theziggy in reply toKoalajane

I try to eat low carb for my Type 2 but the doctors won't supply me with any means of monitoring my blood sugar levels so I don't have a clue as to what my blood sugar levels are. I am on steroids which raise the blood sugar levels.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toTheziggy

Are you under a diabetic clinic? They should be making sure you have a monitor -although you can buy them from any pharmacy or online - approx £25-30.

The testing strips should then be on prescription with GPs - although you can purchase them as well - but should need to.

See link for more info -,

diabetes.org.uk/guide-to-di...

PMRpro profile image
PMRproAmbassador in reply toDorsetLady

Often you get the device free - because they each only use one make of test strips which is where the company makes its profit. Because THEY cost a small fortune!

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toPMRpro

Yes they do - but hubby used to get on script..but that was 9 years and longer ago … not sure about now!

PMRpro profile image
PMRproAmbassador in reply toDorsetLady

I gather it is next to impossible to persuade a GP to provide the disposables if you aren't properly diabetic ...

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toPMRpro

I can understand that, but Theziggy says on profile he is Type 2, which is why I queried if under Diabetic clinic....

PMRpro profile image
PMRproAmbassador in reply toDorsetLady

Awful lot of doctors don't test Type 2s - want to say lord knows why - I know why, cost ...

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toPMRpro

..bonkers, a couple of years ago (before you know what) diabetes was the big concern everyone was talking about...but of course things have changed. 😉

PMRpro profile image
PMRproAmbassador in reply toDorsetLady

They'd rather hand out metformin and then assume that solves the problem ...

Koalajane profile image
Koalajane in reply toDorsetLady

You only get strips on prescription if you are on a medication like gliclazide that can cause your sugars to drop too low

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toKoalajane

Ok thanks ..my hubby was on metformin then insulin - but as I said it was long time ago - he died 9 years ago. Rules change….

Koalajane profile image
Koalajane in reply toDorsetLady

Yes being on insulin would entitle him

Louisa1840 profile image
Louisa1840

Hmm sounds like a hard book sell to me but admittedly I am becoming more cynical as I grow older. I think if there was a sure fire diet to help our PMR symptoms someone would have found it by now and we would all be on it. However, there is an interestng account in Kate Gilbert's book, PMR and GCA a Survival Guide on page 130. Bascially this person went on a very severe restrictive diet, ate only plant based foods and cut out all sugar, caffeine, wheat, dairy and alcohol and she is now in control of her PMR. I would like to think I could find the discipline to do it.........

Broseley profile image
Broseley in reply toLouisa1840

To me, an inveterate meat eater, that would be very difficult. Thanks, I'll have a look as I bought the book.

PMRpro profile image
PMRproAmbassador in reply toLouisa1840

There was actually a small scale study of the effect of a strictly vegan diet done in RA patients - some years ago so being vegan then was a bit difficult and the subjects had their food delivered to them. During the 1 year it lasted half of the RA patients had almost total relief from joint pain - but as soon as they had even the smallest amount of animal protein reintroduced the RA pain was back. Despite this immense relief, once they had to fend for themselves and seek purely vegan food they lapsed - all saying it was too strict and expensive to keep to long term. Of course, it is much simpler now - unless like me you have a wheat allergy! Non-wheat vegan is a very difficult restriction! And PMR isn't RA ...

Louisa1840 profile image
Louisa1840 in reply toPMRpro

Thanks Pro that is interesting. A vegan diet does seem to have a lot of backing but surely meat would have been primitive man's sole diet? Perhaps we have evolved so much we should now all be only on plants? I think if my motivation were high enough I could do it but I am managing well enough and now on 3 and a half mgs and enjoying y occasional steaks!!!

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toLouisa1840

Original diet certainly included meat, but not sure how often, doubtful every day, or even every week!Probably more fruit and plants foraged.

Plus of course, no sitting on the couch watching tv or playing games on PC console…,,,😊

Louisa1840 profile image
Louisa1840 in reply toDorsetLady

And there you have it DL. We are so sedentary.....!!

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toLouisa1840

Doesn’t help, that’s for sure…

Theziggy profile image
Theziggy in reply toLouisa1840

I'm a veggie so it should be easier for me to do

agingfeminist profile image
agingfeminist

stick with the right medications...eat a healthy diet because that's a good idea for overall well being....they are making false claims about low-fat diet etc. and GCA. really dangerous.

Sharitone profile image
Sharitone

I do not like people who say 'giant cell arteritis – a serious complication of PMR'! They're just trying to frighten us. We're not dead yet!

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toSharitone

"I do not like people who say 'giant cell arteritis – a serious complication of PMR'! They're just trying to frighten us. We're not dead yet!"

No, they are not trying to frighten you, they are warning you of the serious implications of GCA - if it isn't treated...

would you rather they didn't tell you, and you lost your sight.. better to be forewarned.

Sharitone profile image
Sharitone in reply toDorsetLady

But it's an advert!Guess I'm in denial. Don't want to believe I have anything serious.

🥴

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toSharitone

Sorry you might not want to believe it….but it’s a fact. GCA is serious - you only have to look at my profile and posts - but it doesn’t mean you stop living or enjoying yourself.

But being aware is no bad thing surely…perhaps not in an advert though .., but if it gets the message across.

Sharitone profile image
Sharitone in reply toDorsetLady

Oh sorry, I didn't mean to cause to offence. I just can't seem to make any progress with this stinking disease!

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toSharitone

I’m not offended in any way…just saying both are serious illnesses… but GCA can be even more so which is why you need to be aware of it.

It is difficult to get your head around both of them, and yes Pred has some very nasty side effects- but one thing to hang on to is that for the majority of patients both do go into remission. That can’t be said of all autoimmune illnesses.

Broseley profile image
Broseley

Agreed. I was shocked when I applied for a quote with Staysure travel insurance recently when I put in PMR, all fine, but when I then entered GCA, it said I already had it as part of PMR! So they're assuming that everyone with PMR also has GCA!

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toBroseley

Not necessarily, they are assuming they are linked... and whilst most companies have PMR listed, they don't always have GCA as I discovered when I took out revised travel insurance a few years ago.

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