Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,759 members • 39,032 posts

All posts for February 2022

i26 hyperimmune egg powder

Has any one with lupus or diabetes had a positive experience taking i26 hyperimmune egg powder daily for inflammation and gut issues?

Has any one with lupus or diabetes had a positive experience taking i26 hyperimm...

UKMoss

•2 years ago

2 Replies

Long Covid, is it autoimmune?

Really interesting interview, first item in this program....

HeronNS

•2 years ago

20 Replies

Dizzy/lightheaded

Is it common and to be expected that I often feel dizzy or lightheaded? The room is not spinning. Kind of in between. Sometimes feel nauseous with it. If so...

Is it common and to be expected that I often feel dizzy or lightheaded? The roo...

Bajg

•2 years ago

18 Replies

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Going down a different route

Hi all, a wk of pain especially in neck, shoulders any joints my gp decided she would go by rheumatologist letter of fibromyalgia so been started on...

Hi all, a wk of pain especially in neck, shoulders any joints my gp decided she...

Hidden

•2 years ago

26 Replies

short synacthen test result

Hi everybody, Following on from my recent post and the trauma resulting from methotrexate hubby had the above test on monday and we have today received a copy...

Hi everybody, Following on from my recent post and the trauma resulting from met...

piggylovesgolf

•2 years ago

3 Replies

Letter from NHS re 4th jab

Many of you have had a letter saying you are entitled to a 4th Covid jab. What are the criteria for this? I was diagnosed with PMR in June 2021 and am...

Many of you have had a letter saying you are entitled to a 4th Covid jab. What a...

HalleysComet

•2 years ago

3 Replies

Wearing of masks in shops and public places

Following the announcement a few weeks ago on a Thursday regarding relaxation of wearing of masks, should I as a PMR sufferer still wear a mask given my...

Following the announcement a few weeks ago on a Thursday regarding relaxation of...

Littlejan22

•2 years ago

82 Replies

A sleep hack

Saw this on Twitter today and think it sounds brilliant:...

HeronNS

•2 years ago

17 Replies

New day - new aches and pains!

This is my first post after joining 3 months ago. I am an avid follower of the website .As you can see on my profile I am travelling along the steroid Road...

This is my first post after joining 3 months ago. I am an avid follower of the w...

Mapamundi1

•2 years ago

6 Replies

How Is this possible. .... 30 mg to 3mg in 10 months?

I'm worried about my friend's health. I'm going on year 3 and down to 6mg prednisone. She is very quickly reducing right now like 1mg every 2 weeks. No pain...

I'm worried about my friend's health. I'm going on year 3 and down to 6mg predni...

Paperroses

•2 years ago

13 Replies

Hard to book 4th jab

I've recieved an email from the NHS to say that I'm eligible for my 4th jab. I can't have it unless I have my 3rd jab referral letter which I don't have. My...

I've recieved an email from the NHS to say that I'm eligible for my 4th jab. I ...

Suet3942

•2 years ago

13 Replies

What’s the point?

This morning I received an email from the NHS telling me I should have a 4th covid booster but I need a letter from my GP or consultant to take with me. So I...

This morning I received an email from the NHS telling me I should have a 4th cov...

AnniesRyder5

•2 years ago

134 Replies

Back muscles and side of body muscles a mess

I have PRM since July 2021 but it started after 2nd Moderna shot. My first symptoms after 2 weeks from the shot began overnight. Terrible back muscle...

I have PRM since July 2021 but it started after 2nd Moderna shot. My first symp...

Microbe1943

•2 years ago

11 Replies

Now have had every side effect of prednisone

Learnt this week that I have now had every single side effect of prednisone having been told by my rheumatologist after a syncathen test that I have low...

Learnt this week that I have now had every single side effect of prednisone havi...

Manihiki

•2 years ago

12 Replies

Weak and shaky

I take my 10 mg dose of pred at 3 am and get up between 8 and 9. M.y, head feels like itwill explode but no pain and my hands are shaking,knees are stiff and...

I take my 10 mg dose of pred at 3 am and get up between 8 and 9. M.y, head feels...

ancientprune

•2 years ago

2 Replies

Finally it's been Disgnosed as PMR even tho I'm "too young"

Hi all. Some of you know had some anxiety waiting for a scan and pain having to wait for it on zero pred etc. had the results today. It didn't show any...

Hi all. Some of you know had some anxiety waiting for a scan and pain having to ...

Buttonshutton

•2 years ago

14 Replies

pain again

hi everyone I have recently been in such a lot of pain and was told by my GP to increase my dose of pred from 5mg to 6mg which made no difference to the pain...

hi everyone I have recently been in such a lot of pain and was told by my GP t...

Wendy-woo2

•2 years ago

5 Replies

struggling with fatigue

Hi, Having been diagnosed with PMR in early summer 2020, and reducing smoothly from 30mg of pred, to 12mg I'm really struggling to reduce any lower, and would...

Hi, Having been diagnosed with PMR in early summer 2020, and reducing smoothly f...

Ann1A

•2 years ago

15 Replies

New on this sight,

Hi every one my Name is Kathleen, i have had Polymyaliga for 18months, i was down to 2mg Steriod, but not to good, had to back to 4mg, never heard of it...

Hi every one my Name is Kathleen, i have had Polymyaliga for 18months, i was d...

Harrigan

•2 years ago

10 Replies

Flare of PMR or hormonal imbalance?

Flare of PMR? I was diagnosed with pmr in November 2018. Had treatment with pred 15 mg. Good response. After a few mild flares where I increased pred., I have...

Flare of PMR? I was diagnosed with pmr in November 2018. Had treatment with pred...

PollyBrown

•2 years ago

3 Replies

Should I increase my pred

I was diagnosed in August 2021 with a set of textbook PMR symptoms. 15mg of prednisolone worked like magic. I seem to have avoided any weight gain, moon face...

I was diagnosed in August 2021 with a set of textbook PMR symptoms. 15mg of pred...

Sweetpeasoprano

•2 years ago

10 Replies

Shivering

I can't be sure exactly when it started, but around the 6mg pred dose I found myself sometimes waking after about an hour's sleep with my heart pounding (not...

I can't be sure exactly when it started, but around the 6mg pred dose I found my...

Clarbeston

•2 years ago

43 Replies

GCA on 10mg..tingling pains

Does anyone else experience tingling or pain around the biopsy site ? Does this count as a flare, or symptom of pred reduction...it happens for about an hour...

Does anyone else experience tingling or pain around the biopsy site ? Does this ...

Temoral

•2 years ago

12 Replies

Be aware of high fevers

I just spent a week in the hospital. The prednisone caused me to become unaware of my surroundings. Fortunately my husband saw these changes and called an...

I just spent a week in the hospital. The prednisone caused me to become unaware ...

Ronswife

•2 years ago

10 Replies

Tingling tongue and numbness in tongue and teeth

Has anyone else experienced these symptoms. Reduced to 2.5mg a week ago but also had 2 fillings in teeth 2 weeks ago although in top teeth but numbness is in...

Has anyone else experienced these symptoms. Reduced to 2.5mg a week ago but also...

Rosshigh

•2 years ago

18 Replies

Electric recliner chair with life assist - beneficial or not?

I went to a mobility care shop this morning as Im considering treating myself to an electric recliner chair with lift assist. Has anyone got one and found it...

I went to a mobility care shop this morning as Im considering treating myself to...

HappyDiamonds

•2 years ago

52 Replies

Is this possibly GCA again?

I am looking for some advice please. I was diagnosed with PMR 4four years ago and this was followed by Giant Cell Arteritis. I was given 60 mgs Prenisolone...

I am looking for some advice please. I was diagnosed with PMR 4four years ago a...

pamela4215

•2 years ago

17 Replies

Stopped Prednisolone and started Hydrocortisone.

Well, have been on Hydro for 4 weeks now........20 Mg morning, 10 Mg at 2 Pm. 4 weeks to go , then a blood test for Cortisol , acth , and u & e...........then...

Well, have been on Hydro for 4 weeks now........20 Mg morning, 10 Mg at 2 Pm. 4 ...

billydownunder

•2 years ago

19 Replies

Insomnia

Hi, Can any of my fellow PMR sufferers advise on sleep problems? I have been on pred for five years now. Currently on 7mg which I cannot seem to get below....

Hi, Can any of my fellow PMR sufferers advise on sleep problems? I have been o...

Bleakley1

•2 years ago

37 Replies

Pred sick day rules.

I'm currently on 2mg of Pred and weekly Tocilizumab and doing Ok as far as PMR and GCA symptoms go. However I've caught the dratted cold that's doing the...

I'm currently on 2mg of Pred and weekly Tocilizumab and doing Ok as far as PMR a...

PastelsinArt

•2 years ago

11 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for February 2022

i26 hyperimmune egg powder

Long Covid, is it autoimmune?

Dizzy/lightheaded

Going down a different route

short synacthen test result

Letter from NHS re 4th jab

Wearing of masks in shops and public places

A sleep hack

New day - new aches and pains!

How Is this possible. .... 30 mg to 3mg in 10 months?

Hard to book 4th jab

What’s the point?

Back muscles and side of body muscles a mess

Now have had every side effect of prednisone

Weak and shaky

Finally it's been Disgnosed as PMR even tho I'm "too young"

pain again

struggling with fatigue

New on this sight,

Flare of PMR or hormonal imbalance?

Should I increase my pred

Shivering

GCA on 10mg..tingling pains

Be aware of high fevers

Tingling tongue and numbness in tongue and teeth

Electric recliner chair with life assist - beneficial or not?

Is this possibly GCA again?

Stopped Prednisolone and started Hydrocortisone.

Insomnia

Pred sick day rules.

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