Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,758 members • 39,030 posts

All posts for February 2022

Headaches

Does anyone have constant head pains and headache pressure that intensity goes up and down but headache pressure remains. I also have temporal pain on both...

Does anyone have constant head pains and headache pressure that intensity goes u...

Telsey

•2 years ago

4 Replies

I've missed you!

I've missed you all, but I'll give you the short version. Covid went through both of my son's families, grandchildren, and all with varying degrees of...

I've missed you all, but I'll give you the short version. Covid went through bo...

Grammy80

•2 years ago

29 Replies

Not to worry. I will try another day!

How do I log off? Leave this till another day? Sorry. What title? Choirlady or email?

How do I log off? Leave this till another day? Sorry. What title? Choirlady ...

Choirlady

•2 years ago

28 Replies

Want to take advantage of all our features? Just log in!

PMR Advice

Hi, I’m new to here as diagnosed with PMR just five days ago, I was prescribed Prednisone 15mg daily, a few hours after first dose the pain in my shoulders and...

Hi, I’m new to here as diagnosed with PMR just five days ago, I was prescribed P...

Tilian

•2 years ago

32 Replies

More news on my pain

Hi everyone, Well I’ve had a very interesting conversation with my doctor. She totally agrees that rheumatologist has fobbed me off. She agrees with me they...

Hi everyone, Well I’ve had a very interesting conversation with my doctor. She...

2013mayo

•2 years ago

13 Replies

Painkillers

Due to previous Radio/Chemo on the neck area I have developed necrotic breakdown of the bone tissue in the right side of my jaw and when I lapse in the...

Due to previous Radio/Chemo on the neck area I have developed necrotic breakdown...

AncientMariner

•2 years ago

9 Replies

Waking up in the night

My partner has been on prednisolone since last March and had reduced to 9 mg by November. Unfortunately, when he went for his Covid and flu vaccination, he...

My partner has been on prednisolone since last March and had reduced to 9 mg by ...

PMRZ

•2 years ago

64 Replies

Pain in legs and ankles

Can I ask if anyone has pains in there ankles this last week has been terrible and muscles in legs .tapering by 5mg yesterday and starting to get headaches...

Can I ask if anyone has pains in there ankles this last week has been terrible a...

MarilynRose

•2 years ago

8 Replies

Oops!

Good morning everyone. I hope you are all keeping as well as possible. A quick question. I fell asleep early and missed my 5 1/2 mg Pred dose last night which...

Good morning everyone. I hope you are all keeping as well as possible. A quick ...

Pangolin43

•2 years ago

10 Replies

Risedronate and parathyroid serum levels

Good morning . Hoping someone may have some knowledge of parathyroid serum levels whilst on risedronate. My latest blood results showed high parathyroid serum...

Good morning . Hoping someone may have some knowledge of parathyroid serum level...

Looby60

•2 years ago

8 Replies

Update on pain

Hi everyone, We’ll talk about quick reply, I sent an email to rheumatologist this morning and a nurse phoned me about 1/2 hour ago, he discussed the pain...

Hi everyone, We’ll talk about quick reply, I sent an email to rheumatologist t...

2013mayo

•2 years ago

31 Replies

Actemra and Blood pressure

Has any one else developed high blood pressure on Actemra. My rheumatologist doubled my Actemra dose last month and now my BP is out of control.

Has any one else developed high blood pressure on Actemra. My rheumatologist do...

phebamom

•2 years ago

6 Replies

Winter!

I thought you might like this. It tickled me!

Thelmarina

•2 years ago

1 Reply

Prednisone and decreased appetite???

I am on my trial period of prednisone for suspected PMR. It seems to decrease my appetite and after 1 week, lost 2 lbs?? 20mg, anybody have this with...

I am on my trial period of prednisone for suspected PMR. It seems to decrease my...

SLCR

•2 years ago

45 Replies

Pain

Hi everyone, Hope you can help, I’ve been struggling with pain in my shoulders, my neck, my hip and now my wrist. I did have this type of pain last year and...

Hi everyone, Hope you can help, I’ve been struggling with pain in my shoulders...

2013mayo

•2 years ago

32 Replies

Stopping Methotrexate

Hi all, I’ve had PMR since May 2019 and started Methotrexate that September. I’m just recovering from having Covid despite 4 vaccinations and so stopped my...

Hi all, I’ve had PMR since May 2019 and started Methotrexate that September. I’m...

EeneeBee

•2 years ago

7 Replies

What next?

Anybody know what date in March tocilizumab stops please? I finished Pred. in October and I haven't been informed what's happening, I haven't got a phone appt....

Anybody know what date in March tocilizumab stops please? I finished Pred. in Oc...

lindyloy

•2 years ago

21 Replies

struggling with weight since being on prednisone

Hopeing some have some wisdom for me on this. I have never tried weight loss products but am tempted to try RiduZone. I wonder if anyone has tried it? I can't...

Hopeing some have some wisdom for me on this. I have never tried weight loss pro...

Linny3

•2 years ago

17 Replies

HELP NEEDED PLEASE

Some advice needed please. I had an ACLASTA infusion for osteoporosis on the advice of my rheumatologist on 24th January & now have a flare affecting my...

Some advice needed please. I had an ACLASTA infusion for osteoporosis on the adv...

JEMOK

•2 years ago

41 Replies

Does anyone else suffer from restricted breathing?

My second question of the day. Hubby is having a flare at the moment, apart from the general feeling of having a child sat on your shoulders for six hours,...

My second question of the day. Hubby is having a flare at the moment, apart from...

Hollieby

•2 years ago

25 Replies

Saw the Rheumatologist

Hi all just got back from seeing my rheumatologist who I haven't seen since Dec 2020 when they found out my hip was crumbling. I was shocked to hear that in my...

Hi all just got back from seeing my rheumatologist who I haven't seen since Dec ...

Hiibilly

•2 years ago

21 Replies

Confusion over inflammatory markers

My hubby is the PMR sufferer, can anyone tell him if you are still using ESR/CRP on regular blood tests. My doctors say they don’t use ESR anymore as an...

My hubby is the PMR sufferer, can anyone tell him if you are still using ESR/CRP...

Hollieby

•2 years ago

35 Replies

Flare after 4 years?

I had a bout with PMR, took prednisone for a couple of years, then got off it about four years ago: now PMR is back. What's the prognosis the second time...

I had a bout with PMR, took prednisone for a couple of years, then got off it ab...

Steve2002

•2 years ago

3 Replies

Vitamin D & Fish oil?

https://www.peoplespharmacy.com/articles/preventing-autoimmune-diseases-with-vitamin-d-and-fish-oil?utm_source=The%20People%27s%20Pharmacy%20Newsletter&utm_camp

https://www.peoplespharmacy.com/articles/preventing-autoimmune-diseases-with-vit...

Boss302Fan

•2 years ago

10 Replies

More aches & pains!

Hello dear people For the last few weeks (about 8) I’ve had discomfort in my shoulders - which felt it was like a rotator cuff issue. However, lately I’ve...

Hello dear people For the last few weeks (about 8) I’ve had discomfort in my sh...

Doraflora

•2 years ago

27 Replies

4 dose.

I have been off steroids for about three months now and so far just the occasional headache, my question is do I really need to have the 4 dose of the covid...

I have been off steroids for about three months now and so far just the occasion...

Howard523

•2 years ago

22 Replies

Hearing loss

Hi everyone, as you know I am new to all this with GCA so grateful for any advice. My question has to do with hearing loss. Since starting the 60mg dose...

Hi everyone, as you know I am new to all this with GCA so grateful for any advic...

Charkha

•2 years ago

10 Replies

Stopping pred

Hi, I've been on pred for a year and a half, started at 40 then 20 have tapered to 5 for a while now, want to try and stop. So at what dose can you just stop...

Hi, I've been on pred for a year and a half, started at 40 then 20 have tapered ...

Painblame

•2 years ago

6 Replies

Toughest Pred reduction so far ..... any advice or tips please

Hello lovely folk, I am interested in your thoughts, wisdom and experience. I have been reducing my Pred, super slowly, for over 2 years. I have been...

Hello lovely folk, I am interested in your thoughts, wisdom and experience. I ...

Prof99

•2 years ago

31 Replies

Migraines

I have just been listening to a podcast about Migraines and they suggested that there was a possible link with Autoimmune conditions. Out of curiosity I...

I have just been listening to a podcast about Migraines and they suggested that ...

Shiv14

•2 years ago

35 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for February 2022

Headaches

I've missed you!

Not to worry. I will try another day!

PMR Advice

More news on my pain

Painkillers

Waking up in the night

Pain in legs and ankles

Oops!

Risedronate and parathyroid serum levels

Update on pain

Actemra and Blood pressure

Winter!

Prednisone and decreased appetite???

Pain

Stopping Methotrexate

What next?

struggling with weight since being on prednisone

HELP NEEDED PLEASE

Does anyone else suffer from restricted breathing?

Saw the Rheumatologist

Confusion over inflammatory markers

Flare after 4 years?

Vitamin D & Fish oil?

More aches & pains!

4 dose.

Hearing loss

Stopping pred

Toughest Pred reduction so far ..... any advice or tips please

Migraines

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive