Help PMR out of control

[bakingD]

Some advice would be great kind people- I requested bloods a couple of weeks ago as felt my PMR was out of control- was getting rashes,swelling when bitten ,even had toput ice packs where my blood had been taken as swelling came up,increased stiffness and pain..On 2 mg pred,PMR since May 2018

Shall I go to 7 mg for 7 days then back to 5 or4??not too sure

Can’t get hold of my Rheumy till March!!so am being seen by Rod Hughes week after next

Thanks for any advice

[bakingD]

Sorry forgot to say CRP 16,ESR 38,Albumin 33

[PMRpro Ambassador]

If it were me - I would try to hold out until I saw Rod Hughes so he can see your symptoms in all their glory. Could you manage that?

[bakingD in reply to PMRpro]

Yes I could do

[PMRpro Ambassador in reply to bakingD]

And keep some detailed notes ...

[bakingD in reply to PMRpro]

Ok thanks v much!!

[Stravaman in reply to PMRpro]

Absolutely wait till you see Rod Hughes - excellent and enlightened. You're fortunate to be seeing him.

[SnazzyD]

“Swelling when bitten”? Typo or have you been bitten and if so by what?

[bakingD in reply to SnazzyD]

No something in house was biting me(not hubby!!!)we have cat/dog etc- and I swell up over site where have been bitten!!

[Nextoneplease in reply to SnazzyD]

I wondered this too

[Nextoneplease]

I agree with PMRpro - hold out if you can, and I hope you have a helpful consultation in a week to ten days time.

That said, the swelling’s something I haven’t personally come across…

Good luck, I hope all goes well xx

[bakingD in reply to Nextoneplease]

Thanks v much for that !

[Jontie]

Intrigued to know who Rod Hughes is.

[Jontie in reply to Jontie]

No worries - Googled him. Sounds good. Good luck.