Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,757 members • 39,024 posts

All posts for November 2021

Painful ribs?

Hello everyone. I’ve recently been diagnosed with PMR after starting with a painful groin which was initially thought to be arthritis of the hip.Then the pain...

Hello everyone. I’ve recently been diagnosed with PMR after starting with a pain...

Daisymaud

•3 years ago

14 Replies

Methatrexate and hair loss.

I have been prescribed Mtx for RA as well as dealing with a flare of GCA. Can’t sleep like many people and thinking of trying Amatriptalene. My main concern is...

I have been prescribed Mtx for RA as well as dealing with a flare of GCA. Can’t ...

Kyrenia

•3 years ago

9 Replies

Vomiting & Prednisolone dosage

Hi, I’ve been ill through the night with a tummy bug. I’m normally on 2.5mg Prednisolone. Do I need to increase that today please….assuming I can keep it...

Hi, I’ve been ill through the night with a tummy bug. I’m normally on 2.5mg Pred...

Lyndaki

•3 years ago

9 Replies

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Jaw and teeth could it be GCA

My jaw and teeth are so bad but Dr doesn't think it's anything to do with pmr. My teeth are so sensitive thought it was with steroids and my jaw hurts really...

My jaw and teeth are so bad but Dr doesn't think it's anything to do with pmr. M...

Bling123

•3 years ago

25 Replies

Swollen Knees Synovitis Update

In June I asked for advice regarding if stiff and swollen knees were a part of my PMR. I received some good advice which has helped, i.e check calcium intake...

In June I asked for advice regarding if stiff and swollen knees were a part of m...

Prahran

•3 years ago

5 Replies

Cumulative steroid dose

I’ve been wandering around the information posts and found this in a post quoting Prof Dasgupta. I am interested in how you calculate the accumulated dose but...

I’ve been wandering around the information posts and found this in a post quotin...

Billiebobdog

•3 years ago

12 Replies

Follow on the Not out the Woods yet

I took the 5mg for 5 days and on day 5 of 4mg. It seems to be working, good news. I’m having the third covid vaccine on the 7 th November. Hoping it won’t...

I took the 5mg for 5 days and on day 5 of 4mg. It seems to be working, good news...

Cyclegirl54

•3 years ago

5 Replies

Steroid injection

Apparently I’m not eligible for steroid jab as my back is probably muscular problem so physio route. 😢😂

Apparently I’m not eligible for steroid jab as my back is probably muscular prob...

Uglow

•3 years ago

6 Replies

After 2 Pfizer injections and the booster, I have Covid

Last Friday, I went to emergency dept at hospital, because of shortness of breath. After 6 hours of tests, I was diagnosed with Covid. The doc said I was...

Last Friday, I went to emergency dept at hospital, because of shortness of breat...

Purplecrow

•3 years ago

65 Replies

GCA and RA

I have been prescribed Methatrexate alongside prednisolone. I have tried Sulfasaladine, but can’t cope with side effects. Has any one got ant tips please about...

I have been prescribed Methatrexate alongside prednisolone. I have tried Sulfasa...

Kyrenia

•3 years ago

10 Replies

Rapid online survey about the roll-out of the third primary COVID-19 vaccine doses - PLEASE COMPLETE (courtesy of LupusUK)

https://healthunlocked.com/lupusuk/posts/147094481/rapid-online-survey-about-the-roll-out-of-the-third-primary-covid-19-vaccine-doses-please-complete?utm_source

https://healthunlocked.com/lupusuk/posts/147094481/rapid-online-survey-about-the...

PMRpro

Ambassador•3 years ago

23 Replies

Increased Prednisolone

Hallo everyone. I was diagnosed with PMR in May and began on 15 mg and have been reducing by 1mg/month ever since. I slowed it to 1/2mg/fortnight since 7...

Hallo everyone. I was diagnosed with PMR in May and began on 15 mg and have bee...

Miserere

•3 years ago

43 Replies

Dry mouth

Jeez dry mouth sticks together. Any tips anyone

Uglow

•3 years ago

16 Replies

Rheumatologists

I have just read the post by The Great Pretender “I’m Cured” and I see nothing changes! Luckily I have been off pred since September 2019 (diagnosed in...

I have just read the post by The Great Pretender “I’m Cured” and I see nothing c...

Urtica

•3 years ago

29 Replies

Pandemic and Telemedicine

Thought you may be interested in this first paper of a survey/study into the Pandemic and Telemedicine. The link is the main page, to read the full article...

Thought you may be interested in this first paper of a survey/study into the Pan...

Bcol

•3 years ago

10 Replies

Should burning at tip of shoulder be the PMR symptom to judge taper?>

My History: My onset was probably in January 2021 when I couldn't build past stiffness after a 1 hour cross country ski to my typical 2+ hour ski. Over...

My History: My onset was probably in January 2021 when I couldn't build past sti...

wil3y

•3 years ago

11 Replies

Adrenals

Do most people’s adrenals kick in when pred lowered. 😩

Uglow

•3 years ago

34 Replies

No calories here?

I'm trying to keep my weight down, so I wondered if there is anyone who could give me some ideas on what I can eat or drink that has NO calories. This is a...

I'm trying to keep my weight down, so I wondered if there is anyone who could gi...

pal-o-mine

•3 years ago

62 Replies

Update on where I am on the great PMR journey

I have had PMR for 4 years now, and have just offloaded my Rheumy as she works too closely to guidelines(1 size fits all) only had phone calls the last two...

I have had PMR for 4 years now, and have just offloaded my Rheumy as she works t...

Purplegloss

•3 years ago

14 Replies

Steroid injection

Has anyone had steroid injection for pain due to fractured vertebrae!

Uglow

•3 years ago

21 Replies

PMR question…..

I am currently off steroids , but has anyone else had issues with hand tremors, my right hand , and not all the time, if I am holding a cup will start to...

I am currently off steroids , but has anyone else had issues with hand tremors, ...

Truckfoot

•3 years ago

12 Replies

Just a general reminder to get your eyes checked yearly

Hi All This is just a general reminder to get your eyes checked on a yearly basis. Nothing to do with PMR but age I think. I have glaucoma and if I didn't...

Hi All This is just a general reminder to get your eyes checked on a yearly basi...

whitefishbay

•3 years ago

5 Replies

I'M CURED

I had a hospital appointment to see a “Rheumatologist” (ST4 trainee I believe) at the beginning of last month and received the results today. Great news, my...

I had a hospital appointment to see a “Rheumatologist” (ST4 trainee I believe) a...

TheGreatPretender

•3 years ago

18 Replies

Synacthen Results

My results came back as "Normal" as follows: Cortisol.... 380.9 After 30 minutes 603.1 After 60 minutes 654. 5 The Dr hasn't called me yet....

My results came back as "Normal" as follows: Cortisol.... 380.9 After ...

diana1998

•3 years ago

4 Replies

Tapering and blood pressure meds ?

I am tapering on rheumatologists instruction by 2.5 per week over 6 weeks (posted re this before to perform a scan without pred masking anything). Since then...

I am tapering on rheumatologists instruction by 2.5 per week over 6 weeks (poste...

Buttonshutton

•3 years ago

7 Replies

Welcome to our new members

Hello and welcome to all our new forum members - 231 new members in October! We hope you've had a chance to look around and find answers to your questions....

Hello and welcome to all our new forum members - 231 new members in October! We ...

Fran_Benson

Partner•3 years ago

9 Replies

Booster Covid 19 can be given sooner than 6 months for vulnerable people.

I think this is additional to the info held on FAQs. https://www.medscape.com/viewarticle/961969 I hope it’s there!

I think this is additional to the info held on FAQs. https://www.medscape.com/vi...

SheffieldJane

•3 years ago

When I’m feeling low

When I’m feeling low this is the first place I go to. Then I feel connected to people that understand it all. And some of the odd things we feel and do. I’d be...

When I’m feeling low this is the first place I go to. Then I feel connected to p...

Uglow

•3 years ago

29 Replies

PMR

Just given rough date for rheumatology app! 52 weeks!!!!!!!

Bedwell

•3 years ago

39 Replies

"Foot Drop" ?

I've started finding that when I'm out walking, my feet tend to flap down, and have on numerous occassion tripped when going up steps, by catching the front...

I've started finding that when I'm out walking, my feet tend to flap down, and h...

apttony

•3 years ago

27 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for November 2021

Painful ribs?

Methatrexate and hair loss.

Vomiting & Prednisolone dosage

Jaw and teeth could it be GCA

Swollen Knees Synovitis Update

Cumulative steroid dose

Follow on the Not out the Woods yet

Steroid injection

After 2 Pfizer injections and the booster, I have Covid

GCA and RA

Rapid online survey about the roll-out of the third primary COVID-19 vaccine doses - PLEASE COMPLETE (courtesy of LupusUK)

Increased Prednisolone

Dry mouth

Rheumatologists

Pandemic and Telemedicine

Should burning at tip of shoulder be the PMR symptom to judge taper?>

Adrenals

No calories here?

Update on where I am on the great PMR journey

Steroid injection

PMR question…..

Just a general reminder to get your eyes checked yearly

I'M CURED

Synacthen Results

Tapering and blood pressure meds ?

Welcome to our new members

Booster Covid 19 can be given sooner than 6 months for vulnerable people.

When I’m feeling low

PMR

"Foot Drop" ?

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A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

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