Dry mouth : Jeez dry mouth sticks together. Any... - PMRGCAuk

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Dry mouth

Uglow profile image
16 Replies

Jeez dry mouth sticks together. Any tips anyone

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Uglow profile image
Uglow
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16 Replies
Bedwell profile image
Bedwell

Yes!!! I have an organic purifying mouthwash from dr Organic ltd!! Which helps a bit!

Uglow profile image
Uglow in reply to Bedwell

Great do we know why it happens

Bedwell profile image
Bedwell in reply to Uglow

All a bit of a mystery to me! The whole steroid issues of symptoms. ! Drives me up the wall !! So dizzy this morning!!!

Uglow profile image
Uglow in reply to Bedwell

Dizzy drives me nuts feels like a dream that you don’t wake up from. I feel constantly stoned. And I’m definitely not

Bedwell profile image
Bedwell in reply to Uglow

People who haven’t had it don’t understand!!!! That’s why this online is good! Though not always reassuring! I’m 83… is the rest of my life going to be on steroids??? Dizzy ? Etcetc

Uglow profile image
Uglow in reply to Bedwell

I hope not. Xxx

pal-o-mine profile image
pal-o-mine in reply to Uglow

I'm glad it's not just me then.

PMRpro profile image
PMRproAmbassador in reply to Uglow

Part of autoimmune disorders in general.

Rache profile image
Rache

Some medications can cause dry mouth. I have found chewing sugar free gum can help

SheffieldJane profile image
SheffieldJane

PMRPro recommended a product that has solved this for me, especially overnight. XyliMelts. You stick a little tablet to your upper side tooth ( incisor). It sticks very securely. Gradually it dissolves and keeps your mouth lubricated all night. Magic! I got it on-line from Amazon, there are other stockists. Make sure you are well hydrated as well. I drink lots of water. I don’t know what causes this side effect. It didn’t start immediately with me.

tangocharlie profile image
tangocharlie

At one point I had a very dry mouth and dry eyes which was thought might be Sjogrens syndrome. My dentist refered me to the local dental hospital who gave me all sorts of useful things for dry mouth such as sprays, SLS-free toothpaste, saliva stimulating pastilles etc. It just disappeared eventually and mysteriously.

2013mayo profile image
2013mayo

Hi, How strange, I thought this was just me, it must be part of GCA/PMR.

I wake up with a terrible dry mouth, and throughout the day my mouth gets very dry, I also have dry eyes which causes blurry vision, I have eye drops but it doesn’t do a lot, last about 10 seconds and the I’m back to blurry vision.

If anyone has an answer please let me know.

Xx

Uglow profile image
Uglow in reply to 2013mayo

I have the blurry eyes too. I might try drops. It’s so blooming annoying you think you combat one thing then another x

2013mayo profile image
2013mayo in reply to Uglow

True, 🤔🤣

PMRpro profile image
PMRproAmbassador in reply to 2013mayo

It may be "just" sicca (dry) syndrome which often accompanies autoimmune disorders. There is also Sjogrens syndrome, an autoimmune complaint in its own right and which has identifiable antibodies, otherwise the symptoms and management are much the same for both.

2013mayo profile image
2013mayo in reply to PMRpro

Wow, Just looked symptoms of sjogrens and there is a lot of symptoms that I have, hope it’s not that, I’ve got enough going on.

Does it ever end 🙁

Xx

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