Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,758 members • 39,025 posts

All posts for November 2021

When can I take my Prednisolone?

Hello! On being dropped from 9 mg to 8 mg 2 weeks ago ( 15mg initially in May) I have had a huge flare up and am now BACK on 15mg for a while. However, I...

Hello! On being dropped from 9 mg to 8 mg 2 weeks ago ( 15mg initially in May) ...

asoth

•3 years ago

12 Replies

I'm down to between 3 and 4 mg, but am now all achy. So I took 8 mg of prednisone. Will taper starting tomorrow. Is this correct?

Have been on prednisone for PMR for 5 years. Have been doing slow taper from 30 mg to 4.

Have been on prednisone for PMR for 5 years. Have been doing slow taper from 30 ...

blueisgreen

•3 years ago

30 Replies

Depression from GCA or from prednisone

I hate to complain every time I’m on here. I know many of you have suffered for years and some have endured personal heartaches and tragedy. Life could be a...

I hate to complain every time I’m on here. I know many of you have suffered for ...

nallufl24

•3 years ago

17 Replies

Want to take advantage of all our features? Just log in!

Burning hot - no fever

Does anyone have burning, tingling inside, mainly the trunk, but no fever. I lay for hours last night, with air conditioning at F68. No covers. Could feel...

Does anyone have burning, tingling inside, mainly the trunk, but no fever. I la...

Jane424

•3 years ago

9 Replies

Breathless

Any one else breathless on prednisone. Not everyday random

Uglow

•3 years ago

35 Replies

HELP

Don't know if I've taken med or not this morning 🤔 .

Harrywogan

•3 years ago

25 Replies

Hope this is ok….

I’m a bit of a fraud as I don’t have PMR, but my partner does (diagnosed by GP in Feb this year) I hope you don’t mind me joining the group but I feel I need...

I’m a bit of a fraud as I don’t have PMR, but my partner does (diagnosed by GP i...

Fudgethecat

•3 years ago

18 Replies

NHS app health record says my GCA is minor!

I've just downloaded the NHS app and looked at my health record. I am somewhat disturbed to see this: 29 October 2021 Giant cell arteritis without polymyalgia...

I've just downloaded the NHS app and looked at my health record. I am somewhat d...

Broseley

•3 years ago

91 Replies

Cough and Methotrexate? Is there a link? and

I have been taking methotrexate since August 30th. Recently I developed a cough, is a cough a side effect of methotrexate? I am currently at 4 tablets 10 mg...

I have been taking methotrexate since August 30th. Recently I developed a cough,...

Musiclady18

•3 years ago

6 Replies

Getting off prednisone.

Been on pred since 3/2017. I have been trying to get off of prednisone and I am using an endocrinologist. I feel like she is milking this to make more money....

Been on pred since 3/2017. I have been trying to get off of prednisone and I am...

Aleish

•3 years ago

9 Replies

tapering after a wrongly diagnosed flare!

About 6 weeks ago I started getting some acute pain especially in one leg. My surgery suggested I should increase the pred. dose to 5mg (I was previously on 3...

About 6 weeks ago I started getting some acute pain especially in one leg. My su...

humlies

•3 years ago

20 Replies

Help/ Advice needed on Biphosphonates

Would welcome some comments/advice from anyone with experience of biphosphonates. I've had my Dexa results - have mixed T score results. Spine is the worst...

Would welcome some comments/advice from anyone with experience of biphosphonates...

Humphreydonk

•3 years ago

36 Replies

Drug overload

I’ve been on prednisone for a year now, starting at 60mg , tapered to 7, had a flare and up to 15mg. Added TCZ about 6 months ago. Dr thinks I need to add...

I’ve been on prednisone for a year now, starting at 60mg , tapered to 7, had a f...

Tucki

•3 years ago

8 Replies

Any advice on GCA fatigue and treatment?

Hi, I'm new to this forum but hoping to learn from others' experience. Diagnosed with GCA 10 weeks ago, (PET/CT) on 50mg prednisone daily, dropped to 40mg 2...

Hi, I'm new to this forum but hoping to learn from others' experience. Diagnose...

Happyexplorer

•3 years ago

74 Replies

Just started prednisone

Just started prednisone on 50 mg she thinking I have GCA and PMR.Monday having a biopsy so it may tell us something.I have not felt this good since last July...

Just started prednisone on 50 mg she thinking I have GCA and PMR.Monday having a...

Shortfoot

•3 years ago

11 Replies

Double vision while bending over

I went back up to 40mg Prednisolone on Thursday as a result of a GCA flare. No symptoms on Thursday or Friday, but then today I've had six short periods of...

I went back up to 40mg Prednisolone on Thursday as a result of a GCA flare. No s...

Lutra2

•3 years ago

8 Replies

Tocilizumab arrived at last! Do I need a new taper plan?

Just in case anyone else is 'in-waiting" - I was prescribed TCZ back in July, after a flare, and was expecting to start the course in August, but it didn't...

Just in case anyone else is 'in-waiting" - I was prescribed TCZ back in July, af...

Jonimoroni

•3 years ago

27 Replies

Methotrexate

I developed GCA in August 2019 and was dismissed by my local NHS in April in 2020 and placed in the care of my local doctor, February this year I developed PMR...

I developed GCA in August 2019 and was dismissed by my local NHS in April in 202...

Phed

•3 years ago

24 Replies

Outcomes of COVID-19 in patients with primary systemic vasculitis or polymyalgia rheumatica from the COVID-19 Global Rheumatology Alliance

This research has just been published and makes very interesting reading. Attached are the links:- https://authors.elsevier.com/c/1e1X-9UBHvgQIV...

This research has just been published and makes very interesting reading. Attac...

DAW28

•3 years ago

14 Replies

Coloured lights in eye

Does anyone get coloured lights in the eye associated with GCA? I'm not talking about the "scintillating scotoma" or visual migraine (have had several of...

Does anyone get coloured lights in the eye associated with GCA? I'm not talking...

podo

•3 years ago

20 Replies

Blood calcium level testing?

Having just read various posts about knee troubles, some mention blood calcium levels found to be too high, causing pseudogout. I have had knee troubles for a...

Having just read various posts about knee troubles, some mention blood calcium l...

Roltuba

•3 years ago

13 Replies

Snacks

Can anyone give me some ideas please as i m trying to follow the mediterranean diet to help with my pmr. I am only just about to start but i feel i will...

Can anyone give me some ideas please as i m trying to follow the mediterranean d...

Cosmos22Marigold

•3 years ago

54 Replies

Good website for GCA

This website is New Zealand based, but I think it is really good. The veterans on this site may already know it. There is a link towards the bottom for PMR...

This website is New Zealand based, but I think it is really good. The veterans o...

Broseley

•3 years ago

14 Replies

Effect of coming off humira for rheumatoid arthritis

Can anyone says what effects they had from coming off humira for rheumatoid arthritis ( after melanoma diagnosis) did you get a flare in joints? Did it get...

Can anyone says what effects they had from coming off humira for rheumatoid arth...

Salfee

•3 years ago

1 Reply

Prednisolone and cancer

Hi Everyone. I have had PMR for 18 months now and I am currently on 5mg of Prednisolone. In August I had facial surgery to remove a Squamous Cell Carcinoma...

Hi Everyone. I have had PMR for 18 months now and I am currently on 5mg of Pred...

paintpots

•3 years ago

7 Replies

Pfizer Pill

I received this news via the New York Times which, if true, will be helpful as we learn to live with this wretched disease. A Covid pill developed by Pfizer...

I received this news via the New York Times which, if true, will be helpful as w...

Thelmarina

•3 years ago

26 Replies

For any new people on this forum.

Can you relate to the persons journey? https://onlinelibrary.wiley.com/doi/full/10.1002/imed.1010

Can you relate to the persons journey? https://onlinelibrary.wiley.com/doi/full...

Estellemac

•3 years ago

13 Replies

Help please! Trying to get over a bad flare

My last comfortable steroid dose was 8.5 mg in mid August. Under the instructions of my Rheumatologist I was told to keep reducing down. I did the DSNS...

My last comfortable steroid dose was 8.5 mg in mid August. Under the instructio...

Tiggy70

•3 years ago

39 Replies

So much weight gain, moonface and facial hair

In about 5 weeks I have put 2 stone on (28lbs), I have moo face and I am now getting a lot of facial hair. I was on 60mg of prednisone, and have just lowered...

In about 5 weeks I have put 2 stone on (28lbs), I have moo face and I am now get...

DawnMezza

•3 years ago

25 Replies

Taking full dose of Pred in morning?

Apologies for asking this question as I am sure I have seen it answered somewhere but can't find it. My GP prescribed 15mg of pred to be taken 3 times a day....

Apologies for asking this question as I am sure I have seen it answered somewher...

Doorstep

•3 years ago

33 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for November 2021

When can I take my Prednisolone?

I'm down to between 3 and 4 mg, but am now all achy. So I took 8 mg of prednisone. Will taper starting tomorrow. Is this correct?

Depression from GCA or from prednisone

Burning hot - no fever

Breathless

HELP

Hope this is ok….

NHS app health record says my GCA is minor!

Cough and Methotrexate? Is there a link? and

Getting off prednisone.

tapering after a wrongly diagnosed flare!

Help/ Advice needed on Biphosphonates

Drug overload

Any advice on GCA fatigue and treatment?

Just started prednisone

Double vision while bending over

Tocilizumab arrived at last! Do I need a new taper plan?

Methotrexate

Outcomes of COVID-19 in patients with primary systemic vasculitis or polymyalgia rheumatica from the COVID-19 Global Rheumatology Alliance

Coloured lights in eye

Blood calcium level testing?

Snacks

Good website for GCA

Effect of coming off humira for rheumatoid arthritis

Prednisolone and cancer

Pfizer Pill

For any new people on this forum.

Help please! Trying to get over a bad flare

So much weight gain, moonface and facial hair

Taking full dose of Pred in morning?

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive