Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,440 members • 38,330 posts

All posts for October 2021

Supplements whilst on Preds

I have looked in the FAQ’s but is there a simple post with the information regarding supplements to take whilst on Preds? If not can someone with more...

I have looked in the FAQ’s but is there a simple post with the information regar...

Billiebobdog

•3 years ago

12 Replies

Just had third Covid jab

No issues and I feel fine. Not sure if this is a good thing or not. I’ve read if you have a reaction it shows your immune system is working

No issues and I feel fine. Not sure if this is a good thing or not. I’ve read if...

Rosina1871

•3 years ago

5 Replies

Advice about possible GCA

My husband who has secondary progressive MS, has had a headache every day for the last 25 days. On day 13 he had a telephone consultation with his GP who...

My husband who has secondary progressive MS, has had a headache every day for th...

jacdo

•3 years ago

9 Replies

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Can I have adrenal insufficiency whilst taking 13mg pred?

I am on 13mg pred having been told to increase from 7mg by my GP as I am experiencing a flare. He advised 10mg but I did not improve so increased by 1mg a week...

I am on 13mg pred having been told to increase from 7mg by my GP as I am experie...

Paininthenck

•3 years ago

7 Replies

Can anyone recommend a pill cutter/splitter

Hi all, I'm wondering if anyone has bought a pill splitter, in UK, that can cut 1mg Pred in half without too much drama. Having looked on-line there are...

Hi all, I'm wondering if anyone has bought a pill splitter, in UK, that can cut...

pal-o-mine

•3 years ago

116 Replies

Massive flair

Here I go again!PMR since May 2018.Have flared several times ,the pain just creeps up on you- I have hip bursitis, a painful knee which am having MRI for ,and...

Here I go again!PMR since May 2018.Have flared several times ,the pain just cree...

bakingD

•3 years ago

13 Replies

A feather in your caps folks!

At last a GP who is up to speed with PMR. Maybe my usual GP understands but doesn't communicate in the easiest way. Today's doctor...suspect she was a...

At last a GP who is up to speed with PMR. Maybe my usual GP understands but does...

ChinaWuntoo

•3 years ago

5 Replies

is it too soon to for a PMR flare ?

advice needed please, I was diagnosed with PMR in August and started on 15mg Prednisone tapered 1 mg beg Sept to 14 mg and again beg Oct, to 13 mg ,aiming...

advice needed please, I was diagnosed with PMR in August and started on 15mg P...

seamaid

•3 years ago

24 Replies

SYMPTOMS MUCH WORSE AFTER JUST 1MG DROP

SYMPTOMS WORSE PMR since Spring ( diagnosed 2 weeks after Covid jabs!) Started on 15mg Prednisolone, recently dropped to 8mg. But, since then have joint pain...

SYMPTOMS WORSE PMR since Spring ( diagnosed 2 weeks after Covid jabs!) Started o...

asoth

•3 years ago

10 Replies

Is tinnitus like symptoms a GCA problem.

GCA

Crommie

•3 years ago

5 Replies

Minor dental surgery & prednisolone

Hi, Next month I am due to have a tooth stump removed which will probably entail cutting the gum….🥴…..I’m currently on 2.5mg Prednisolone a day. Do you think...

Hi, Next month I am due to have a tooth stump removed which will probably entai...

Lyndaki

•3 years ago

11 Replies

GCA affecting other areas?

Hi. As you know my mum is totally blind through doc not realising GCA in time. ( almost 2 years next month) She’s on 5mg pred Gets headaches still. We are...

Hi. As you know my mum is totally blind through doc not realising GCA in time. (...

Daughters2

•3 years ago

15 Replies

Rheumatologist?

Dear all Unfortunately as my surgery is not really functioning I would be grateful if anyone could recommend a specialist in the Rutland/Leicestershire area...

Dear all Unfortunately as my surgery is not really functioning I would be gratef...

AnniesRyder5

•3 years ago

11 Replies

Predisolone without food

Do you think it would matter if for once I had predisolone without breakfast as I usually do? I have a very early hospital appointment for an operation. With...

Do you think it would matter if for once I had predisolone without breakfast as ...

DDKRM

•3 years ago

6 Replies

Reducing pred dosis on same day as flu shot a good idea?

Hello all, recently diagnosed with PMR, this is my first question in this haven for the suffering. Have been on prednisolone 20 mg for about a month, talked to...

Hello all, recently diagnosed with PMR, this is my first question in this haven ...

Lucia-1

•3 years ago

42 Replies

Upper back pain

I am a 70 yo male that was diagnosed with PMR in January of this year. Started on 20 mg prednisone and currently on my third week at 8 mg. Sunday morning I...

I am a 70 yo male that was diagnosed with PMR in January of this year. Started ...

jsretaw

•3 years ago

17 Replies

Against all rules and advice for PMR, All types of arthritis and 'other' nasties

This was sent to me by a friend recently: If you're happy and you know it - stay in bed If you're happy and you know it - stay in bed If you're happy and...

This was sent to me by a friend recently: If you're happy and you know it - sta...

Constance13

•3 years ago

34 Replies

FAQ's

Morning everyone, beautiful day here in blighty, please can someone tell me how to find the FAQ's ! I'm struggling to find them 🤷‍♀️ tks

Morning everyone, beautiful day here in blighty, please can someone tell me how ...

Lovetobe

•3 years ago

11 Replies

Prednisolone tapering down.

Since being on a maintenance dose of 5mg for some considerable time (2 yrs in fact) and have no PMR symptoms whatsoever I wonder whether I even have PMR at all...

Since being on a maintenance dose of 5mg for some considerable time (2 yrs in fa...

alansouthworth42

•3 years ago

3 Replies

PMR, tapering prednisone and methotrexate

At age 74, I was diagnosed with PMR and put on 20 mg prednisone. Now also on methotrexate 10 mg and 11 mg prednisone. Slowly reducing prednisone dose. MTX is...

At age 74, I was diagnosed with PMR and put on 20 mg prednisone. Now also on met...

Darkchocolate1

•3 years ago

4 Replies

low dosage pred with functioning adrenal

Hello to my learned fellow sufferers. Since my diagnose in 2014 I have gone from 20mm of Pred following the slow taper chart printed from HealthUnlocked., now...

Hello to my learned fellow sufferers. Since my diagnose in 2014 I have gone from...

Southmead

•3 years ago

13 Replies

Dexa scan results

Hi all,eventually had my dexa scan results back today and they showed I have Osteopenia (not sure if that is spelt right). It feels like one thing after...

Hi all,eventually had my dexa scan results back today and they showed I have Ost...

Hidden

•3 years ago

3 Replies

Cortisol question

I have been off prednisone for 4 months and doctor finally sent me for a cortisol test and does anyone know what a healthy reading would be? thanks

I have been off prednisone for 4 months and doctor finally sent me for a cortiso...

remission

•3 years ago

15 Replies

Pfizer vacc. and Methotrexate

Had my 3rd covid jab and a flu jab yesterday, slight tenderness to arms and thats all, however, the person administering the shots said to miss the next 2...

Had my 3rd covid jab and a flu jab yesterday, slight tenderness to arms and that...

bikesanddogs1

•3 years ago

19 Replies

Headaches

Hi everyone, I’m desperately trying to cut down on pred, for a about 10 days I’ve reduced quite a lot, I’ve got down to 2 or 3 mg per day but have started to...

Hi everyone, I’m desperately trying to cut down on pred, for a about 10 days I...

2013mayo

•3 years ago

75 Replies

Anyone offered Remicade

Hi all, my rhumy wants me to get Remicade infusion to try to deal with my pain levels. He is frustrated (as am I) that nothing he's tried has dealt with it...

Hi all, my rhumy wants me to get Remicade infusion to try to deal with my pain ...

watercolours

•3 years ago

12 Replies

Nodules

I have small painful nodules about 6 of them ( half pea size ) in a line on my forearm , and up under my arm , but not in my arm pit. Same on other arm but...

I have small painful nodules about 6 of them ( half pea size ) in a line on my...

Avadip12

•3 years ago

25 Replies

Stuck on 10mg pred

I was diagnosed with PMR in November last year and was started on a dose of 20mg a day pred. I am now down to 10mg a day for the past two months and find that...

I was diagnosed with PMR in November last year and was started on a dose of 20mg...

Hankb

•3 years ago

23 Replies

Prednisone

Can you mix coated and non coated pred as my 1 mg are not coated. Thanks people

Can you mix coated and non coated pred as my 1 mg are not coated. Thanks people ...

Uglow

•3 years ago

14 Replies

Tapering and Endocrinology

Have any of you been referred to an Endocrinologist as you've tapered down to 5mg or so in order check that your adrenal glands are working adequately? Is this...

Have any of you been referred to an Endocrinologist as you've tapered down to 5m...

Lutra2

•3 years ago

18 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for October 2021

Supplements whilst on Preds

Just had third Covid jab

Advice about possible GCA

Can I have adrenal insufficiency whilst taking 13mg pred?

Can anyone recommend a pill cutter/splitter

Massive flair

A feather in your caps folks!

is it too soon to for a PMR flare ?

SYMPTOMS MUCH WORSE AFTER JUST 1MG DROP

Is tinnitus like symptoms a GCA problem.

Minor dental surgery & prednisolone

GCA affecting other areas?

Rheumatologist?

Predisolone without food

Reducing pred dosis on same day as flu shot a good idea?

Upper back pain

Against all rules and advice for PMR, All types of arthritis and 'other' nasties

FAQ's

Prednisolone tapering down.

PMR, tapering prednisone and methotrexate

low dosage pred with functioning adrenal

Dexa scan results

Cortisol question

Pfizer vacc. and Methotrexate

Headaches

Anyone offered Remicade

Nodules

Stuck on 10mg pred

Prednisone

Tapering and Endocrinology

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