Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,462 members • 38,395 posts

All posts for September 2021

PMR, steroids and atrial fibrillation.

I was diagnosed with PMR exactly 2 years ago and apart from heading towards non-diabetic hyperglycaemia (which I avoided through diet) I've had a very easy...

I was diagnosed with PMR exactly 2 years ago and apart from heading towards non-...

Mack100

•3 years ago

13 Replies

Immunity suppressed

Hello, This follows on from my previous post on the same subject as I've been looking in my diary 😀 It seems that I had PMR symptoms from early April, but...

Hello, This follows on from my previous post on the same subject as I've been ...

Hidden

•3 years ago

11 Replies

n00b

hello, everyone! just thought I'd do more than skulk and read the the read mees for a moment, as I'm likely to be asking for help at some point and it might be...

hello, everyone! just thought I'd do more than skulk and read the the read mees ...

hazmatrec

•3 years ago

19 Replies

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Should I increase pred with covid.

I have had a positive covid lateral flow test and am doing a pcr test today, I think it will be positive I feel rough my head is killing and feels like I've...

I have had a positive covid lateral flow test and am doing a pcr test today, I t...

Chewy21

•3 years ago

20 Replies

Decreased dose of prednisone

When you decrease dose of prednisone do you get any withdrawals. Iv gone fine to 16 from 17,5 and feel really lightheaded. 3 days down lightheaded today. Maybe...

When you decrease dose of prednisone do you get any withdrawals. Iv gone fine to...

Uglow

•3 years ago

120 Replies

no Actemra

Been on Actemra for 9 months. Finally kicked in and was helping me feel better. This week my appt. for infusion was cancelled. The Actemra is on back...

Been on Actemra for 9 months. Finally kicked in and was helping me feel bette...

phebamom

•3 years ago

3 Replies

Perplexing DEXA scan results

Hello all. I posted a question about a week ago about vegetarian diet and self-treating for osteoporosis, and big thanks again to all of you who replied. I...

Hello all. I posted a question about a week ago about vegetarian diet and self-...

Brizzleben

•3 years ago

3 Replies

Flucloxacillin

I have been prescribed flucloxacillin but seem to have developed a red mouth at the back in to my throat is this a normal side effect .Also at the back of my...

I have been prescribed flucloxacillin but seem to have developed a red mouth at...

Jessicakitty

•3 years ago

25 Replies

I really have had enough!

After a very difficult four year journey with PMR, I seemed to have settled down on 5mg and intended staying there for a LONG time. But, PMR has other ideas...

After a very difficult four year journey with PMR, I seemed to have settled down...

Janann25

•3 years ago

31 Replies

Haemorrhoids itching and Bowels.

Sorry about this and if too personal I will remove immediately requested. It's just that I would like to know if anyone else has had a similar experience. We...

Sorry about this and if too personal I will remove immediately requested. It's j...

cycli

•3 years ago

49 Replies

Bump and swelling on template arteries in between

my wife get swelling in side of head and bump on and off even with treatment of prednisone and acterma , she take aspirin and pain killer to get relief . Is...

my wife get swelling in side of head and bump on and off even with treatment of...

Rajuguide

•3 years ago

5 Replies

Good News

I asked ZOE for an antibody test and after a few weeks they arranged one for me which I did and sent of. Came back today saying I have got antibodies. That...

I asked ZOE for an antibody test and after a few weeks they arranged one for me ...

ValleysBoy

•3 years ago

8 Replies

to eat or what to eat ???

After 18 months of struggling I managed to lose 4 stone following Slimming World. but had a huge shock when I was researching foods which are bad for PMR and...

After 18 months of struggling I managed to lose 4 stone following Slimming World...

seamaid

•3 years ago

27 Replies

Covid jab & flare.

Hello everyone, I always hoped that I'd never have need to write a post again other than my Seasonal Best Wishes post but alas it was not meant to be. I was...

Hello everyone, I always hoped that I'd never have need to write a post again o...

tina-shelley

•3 years ago

13 Replies

Blood Tests a Bit Alarming

Glucose. 225. I’ve never been diabetic A1c. 6.1 Neutrophils elevated White blood cells slightly elevated. I’ve only been on pred about 6 weeks. If my sugar has...

Glucose. 225. I’ve never been diabetic A1c. 6.1 Neutrophils elevated White blood...

Stickgal316

•3 years ago

24 Replies

bone profile blood test

Hi, can anyone enlighten me please? I dont understand why Ive been put on risedronate when my bone profile blood test results are all in normal parameters.

Hi, can anyone enlighten me please? I dont understand why Ive been put on rised...

Hidden

•3 years ago

6 Replies

Reduced sweating

I’ve been on 2mg of preds for 6 months and have reduced to 1.5mg over the last 3 days. Have noticed a reduction in neck pain and excessive sweating of face and...

I’ve been on 2mg of preds for 6 months and have reduced to 1.5mg over the last 3...

Pinkpepper

•3 years ago

11 Replies

3rd vaccine

I’ve just received my letter for my 3rd vaccine has anyone else had the 3rd and how is everyone feeling about getting the 3rd and 4th I’m told .

I’ve just received my letter for my 3rd vaccine has anyone else had the 3rd and ...

Rottsuzi

•3 years ago

4 Replies

Is there anyone who is well controlled with pred and who is still experiencing fatigue and exhaustion.

Is there anyone who is well controlled with pred and who is still experiencing fatigue and exhaustion that you feel is related to the disease? And by well...

Is there anyone who is well controlled with pred and who is still experiencing ...

Ozark

•3 years ago

31 Replies

Coming off PPIs when taking 4mg prednisolone

I have been getting excessive flatulance, intermittent diarrhoea and general stomach discomfort over the last few weeks. I have been taking Lansoprazole with...

I have been getting excessive flatulance, intermittent diarrhoea and general sto...

Karendeena

•3 years ago

18 Replies

Cataract surgery mistake

I have had PMR since October of 2019. I was down to 6mgs. of methyprednisolone when my cataract was getting to the point that I couldn’t drive any longer,...

I have had PMR since October of 2019. I was down to 6mgs. of methyprednisolone ...

SandraLinks

•3 years ago

14 Replies

Has anyone achieved a reduction in fatigue from PMR through the introduction of tocilizumab (Actemra) into their treatment regimen?

Lately it seems as though my fatigue and depression are getting worse. I've had PMR for about 3 years now and it seems as though I am going downhill in so far...

Lately it seems as though my fatigue and depression are getting worse. I've had ...

Ozark

•3 years ago

39 Replies

Forever on the line!

Having only one injection of Tocilizumab left, which I should take tomorrow, I called my supply service (who I know have a shortage of Toc.) they were...

Having only one injection of Tocilizumab left, which I should take tomorrow, I c...

lindyloy

•3 years ago

15 Replies

Advice please

After having PMR for 6 years I finally reduced to 0.5mg and then zero. I began to have discomfort again but didn’t know if It was OA as I also stopped taking...

After having PMR for 6 years I finally reduced to 0.5mg and then zero. I began t...

margiebell4

•3 years ago

5 Replies

Amitriptyline with antibiotics

Hi I'm on amitriptyline 25 mg for nerve pain but also quitiapine 150 mg for borderline personality disorder any help welcome thanks

Hi I'm on amitriptyline 25 mg for nerve pain but also quitiapine 150 mg for bord...

Bubba44

•3 years ago

3 Replies

Third Vaccine

Good news today have had my appointment for my third Covid Vaccine next week. Also saw my Rheumatologist yesterday (first time for a good few years) and he was...

Good news today have had my appointment for my third Covid Vaccine next week. Al...

Hollybee21

•3 years ago

11 Replies

Cholesteatoma question

Uncertain if I have the right site. Was looking for anyone who has had this type of growth in the inner ear and undergone the surgery to tell me how...

Uncertain if I have the right site. Was looking for anyone who has had this typ...

Truckfoot

•3 years ago

1 Reply

Information about the third Covid vaccine and boosters for immunocompromised patients

https://www.lupusuk.org.uk/covid19-vaccination/ This is a link to the excellent LupusUK resource about the vaccines - drawn up/approved by doctors and other...

https://www.lupusuk.org.uk/covid19-vaccination/ This is a link to the excellent ...

PMRpro

Ambassador•3 years ago

13 Replies

Update on my shingles

Beginning my 4th day on antiviral (Aciclovir). Rash and pain not too bad but I don’t know if it is a side effect but during the night, and this morning, I’m...

Beginning my 4th day on antiviral (Aciclovir). Rash and pain not too bad but I d...

York54

•3 years ago

12 Replies

Face to Face Rheumatology Visit yesterday

I just thought I'd share my experience yesterday. I'd had a phone call with him in June and from that he ordered lots of blood tests, a chest x-ray. chest CT...

I just thought I'd share my experience yesterday. I'd had a phone call with him ...

MiloCollie

•3 years ago

16 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for September 2021

PMR, steroids and atrial fibrillation.

Immunity suppressed

n00b

Should I increase pred with covid.

Decreased dose of prednisone

no Actemra

Perplexing DEXA scan results

Flucloxacillin

I really have had enough!

Haemorrhoids itching and Bowels.

Bump and swelling on template arteries in between

Good News

to eat or what to eat ???

Covid jab & flare.

Blood Tests a Bit Alarming

bone profile blood test

Reduced sweating

3rd vaccine

Is there anyone who is well controlled with pred and who is still experiencing fatigue and exhaustion.

Coming off PPIs when taking 4mg prednisolone

Cataract surgery mistake

Has anyone achieved a reduction in fatigue from PMR through the introduction of tocilizumab (Actemra) into their treatment regimen?

Forever on the line!

Advice please

Amitriptyline with antibiotics

Third Vaccine

Cholesteatoma question

Information about the third Covid vaccine and boosters for immunocompromised patients

Update on my shingles

Face to Face Rheumatology Visit yesterday

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