hello, everyone! just thought I'd do more than skulk and read the the read mees for a moment, as I'm likely to be asking for help at some point and it might be nice to have said hello already.
the gp seemed very excited when i said i couldn't raise my arms and both hips were giving me new grief, neither being relieved by the pain medication i already took (tramadol, codeine, aspirin, topiramate) nor by the nortriptyline that altho got me some sleep for the first time in months didn't seem to affect the nico receptor... things. and then even the sleep bonus stopped as i adjusted. he said he was optimistic because he had an idea what it might be, which doesn't always happen with me. one blood test with a high crp result. one month wait to see if it stayed high. one week after that was confirmed when the practice said 'now we'll wait another one or two months to see if it continues' fir me to write in about sixty days of anguish every time i wake up to realize i needed to urge myself to fight again, to not stop. to maybe not weep, or to explain myself while weeping (one husband, one son, one cat). to not feel like a useless lump. a useless expensive waiting lump. had just started some excellent my- sized physio at disability north, where in the bad day, the bike starts your muscles moving fir you. but even getting there was beyond me at this point. and to remind them that i was already ten months down the shoulder and hip pain path, since i usually wait a month or two for things i notice to fizzle away because i do, and then we upped what i was taking already, then we titrated the nortriptyline up plus two, then two rounds of blood tests and results. i said if 'we' are waiting anymore, i want pain hibernation, full blast pain for, because I've used up every tool in the box to get through and I'm tired and need a rest. dope me till the meta-doc is ready to see me. so fed up. and extremely not my way. i also said, whatever your test result, I STILL HURT . so very extremely not my way. turns out they auto sent me a message after the blood test without checking. it wasn't my usual gp, and there was no case reading. sooo, they're going to check some of their protocol for automatic admin procedures because they can see how this 'might have been distressing'. i bit my tongue. i hate that kind of apology. finally got to talk to my tenacious but terrified gp who said he thinks it's pmr, he prescribed corticosteroids for five days. and then we had a phone call two days after they ended. three days in, i could get my coat on myself which was a delight! the morning of the phone call tho, after two nights with no corticoids, i was crying again. he apologized and said he wasn't allowed to prescribe more than five days at a time without measures in place. so he represcribed, added a ppi, and i have a f2f follow u up on Thursday with more blood test and planning. whether i need to go to rheum again to check other things, back to endo for hypothyroid vs corticoids, etc. cautiously hopeful.
sorry this is so long. i haven't had the best intro to pmr, and the breath let out is fresh, but having something somewhat diagnosed in a morass of uctd and comorbidity is novel. and i appreciate knowing there are people willing to talk about things with common understanding. i promise to be less verbose 🤭. and i how i can be of help too.
hello, everyone!
cath tyler
Update on 'where do I go next'
Follow up with the doctor. Markers down but still in pain 
Confused & frustrated!
Too little pred or too much gardening?
Update to “Pain in ribs”
