Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for September 2021

Methotrexate? Is it too soon to go onto this drug

Hi everyone, I was diagnosed with PMR in August 2020 and have found this forum invaluable over the past 13 months. This is my first post as so far I have...

Hi everyone, I was diagnosed with PMR in August 2020 and have found this forum i...

Tiggy70

•3 years ago

7 Replies

Statins

Have a telephone appointment tomorrow with my surgery. I’m sure they will suggest status as my cholesterol isn’t good. I’m not over weight. I eat really...

Have a telephone appointment tomorrow with my surgery. I’m sure they will sugges...

Rosina1871

•3 years ago

55 Replies

PMR symptoms after 2 months of zero prednisone

Hello. I’ve had GCA/PMR for 4 years exactly, with a few flares in that time. When those flare started I went up 5 mg from my dose for 3/4 days, then straight...

Hello. I’ve had GCA/PMR for 4 years exactly, with a few flares in that time. Wh...

Pamk1949

•3 years ago

23 Replies

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There’s always something! Now more breathing problems.

There’s always something! I have absolutely no symptoms PMR no matter the dose. But I do have adrenal insufficiency and pulmonary problems. I am on a steroid...

There’s always something! I have absolutely no symptoms PMR no matter the dose. ...

Karenjaninaz

•3 years ago

7 Replies

Temporal Artery Biopsy, just had mine and they couldn't find it, so they took a tissue sample from the site instead.

Anyone else had this experience? I think they said the arteritis might have obliterated it but not quite sure what that means.

Anyone else had this experience? I think they said the arteritis might have obl...

SFFo

•3 years ago

42 Replies

First rheumatologist appointment

First apt with rheumatologist. Really disappointed cos they are experts yet started with the you are too young thing. (51). Wants me to come off one pred...

First apt with rheumatologist. Really disappointed cos they are experts yet star...

Buttonshutton

•3 years ago

21 Replies

Nearly there?

Advice pls. This is my 3rd attempt coming off Pred. I followed all the proper complete slow tapers and the first two times I knew very quickly when I came...

Advice pls. This is my 3rd attempt coming off Pred. I followed all the proper ...

edithhope

•3 years ago

19 Replies

4mg and sticking!

I have not posted on here since the end of last year but have continued to read daily for support and advice. Great forum. I took the advice in Nov 2020 and...

I have not posted on here since the end of last year but have continued to read...

Queenie1901

•3 years ago

3 Replies

Reducing to allow Specialist to investigate

I have been on this journey since 2016 when I was diagnosed by the dr that I had PMR and put on steroids and became pain-free, I am now 54. Long story short...

I have been on this journey since 2016 when I was diagnosed by the dr that I had...

Mamamia21

•3 years ago

4 Replies

Magnesium

As we know magnesium can become depleted, especially if we take calcium supplements, so some of us supplement our dietary intake of magnesium. Here is an...

As we know magnesium can become depleted, especially if we take calcium suppleme...

HeronNS

•3 years ago

11 Replies

Chickenpox risk ?

I've not been able to post for a while. For some reason my access details became not valid but now all of a sudden they are OK. All of the information given on...

I've not been able to post for a while. For some reason my access details became...

Trainy

•3 years ago

22 Replies

Somic therapy/Rolfing therapy

Hi there - has anyone tried this for pain relief and found it useful? I’m interested to know as someone suggested it to me the other day. Thanks!

Hi there - has anyone tried this for pain relief and found it useful? I’m intere...

Smallstepsforward

•3 years ago

19 Replies

What is a reasonable amount of time to determine whether to taper down or go back up if needed?

My biggest problem with PMR is usually the overnight. I wake up very stiff but am active during the day. Started last Feb at 15mg. Got as low as alternating 5...

My biggest problem with PMR is usually the overnight. I wake up very stiff but a...

Branches

•3 years ago

9 Replies

Where is the best place to buy K2 mk 7

Hello everyone - hope you are all as well as can be expected considering we all have health issues. I see a lot of people suggest taking vitamin K2 Mk 7 to aid...

Hello everyone - hope you are all as well as can be expected considering we all ...

pal-o-mine

•3 years ago

32 Replies

Antibodies

Ive just looked in the FAQ section and can’t see a subject relating to antibodies - although I’m sure there have been other questions about this. I recently...

Ive just looked in the FAQ section and can’t see a subject relating to antibodie...

Janann25

•3 years ago

15 Replies

? G C A in March 2020

Thanks to the excellent advice from the Taunton PMRGCAuk group and this forum I went to Southend to see Prof Dasgupta's team who , following an U/S , gave me...

Thanks to the excellent advice from the Taunton PMRGCAuk group and this forum I ...

muddledme

•3 years ago

2 Replies

PMR and swelling on neck above breastbone

Hi has anyone experienced a swelling just above breastbone where you have a hollow on neck. Just wonder if it might be to do with my thyroid. Wonder if this...

Hi has anyone experienced a swelling just above breastbone where you have a holl...

Rosshigh

•3 years ago

40 Replies

Does anyone have experience of lung problems as a symptom of GCA?

I have had PMR for three years, and am almost off Prednisolone with no return of the original pre-diagnosis symptoms. I have been in hospital twice since the...

I have had PMR for three years, and am almost off Prednisolone with no return of...

angiek

•3 years ago

7 Replies

Is PMR coming back?

Can PMR return after 5 year absence?

Rachael17

•3 years ago

14 Replies

Making Good Choices can Pay Off.

I've just received my latest battery of routine blood test results...all 18 of them!!.... and was very happy to see that every single result was within normal...

I've just received my latest battery of routine blood test results...all 18 of t...

Kendrew

•3 years ago

50 Replies

Update on Exercise Post and Food for thought post

https://healthunlocked.com/pmrgcauk/posts/146868176/mobility-stretching-and-exercise.%C2%A0...

https://healthunlocked.com/pmrgcauk/posts/146868176/mobility-stretching-and-exer...

cycli

•3 years ago

50 Replies

Osteoporosis, fosmax and prednisone

Osteoporosis and pred. Hello, I would appreciate some advice. I am 1 1/2 years in. I am taking 4-5 mg pred and Methatroxate. I also have an auto immune...

Osteoporosis and pred. Hello, I would appreciate some advice. I am 1 1/2 years...

Suzorand

•3 years ago

16 Replies

Would DHEA supplements be advisable

I was recently reading about a study that was done on untreated patients with PMR/GCA and the amounts of the different hormones that are released by the...

I was recently reading about a study that was done on untreated patients with PM...

misspops

•3 years ago

9 Replies

How long should I be having headaches or "pressure" head?

Hi everyone, still a relative newbie & I'm sure many of you have been through all this so many times now, it is reassuring & heartening for me to read the...

Hi everyone, still a relative newbie & I'm sure many of you have been through al...

Poll8

•3 years ago

47 Replies

Dexa scan results

I have just received my Dexa scan results, which are as follows; Lumbar spine; There is a mild degenerative right convex lumbar scoliosis. From L1-L4 the...

I have just received my Dexa scan results, which are as follows; Lumbar spine; T...

Purplegloss

•3 years ago

13 Replies

Update on yesterday.

I’m not used to posting photos on line and certainly never on this site but just wanted you to see the results of your advice!! I did as you all suggested and...

I’m not used to posting photos on line and certainly never on this site but just...

Janann25

•3 years ago

60 Replies

Missing steroids.

Has anybody missed one day of their preds and can tell me what the consequences were. I haven't missed mine but i get such a terrible head after I have...

Has anybody missed one day of their preds and can tell me what the consequences ...

Cosmos22Marigold

•3 years ago

4 Replies

3rd Primary Dose - Covid 19 Vaccinations

I thought I'd post a new comment to help clear up any confusion. A third primary dose is not a booster, even if your GP surgery may call it that. I've just...

I thought I'd post a new comment to help clear up any confusion. A third primary...

Roltuba

•3 years ago

19 Replies

Side effects of Prednisalone getting me down.

I am new here so to give some background. I was diagnosed with PMR 1yr ago. I started on 15mg of prednisalone and tapered down to 6mg by May this year but...

I am new here so to give some background. I was diagnosed with PMR 1yr ago. I st...

Deneez99

•3 years ago

59 Replies

New Biologics Treatment Coming…

I have now received the date for my biologics treatment delivery. Then a date for the nurse to attend the next 2 weeks. Anyone else having biologics...

I have now received the date for my biologics treatment delivery. Then a date fo...

DawnMezza

•3 years ago

1 Reply

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for September 2021

Methotrexate? Is it too soon to go onto this drug

Statins

PMR symptoms after 2 months of zero prednisone

There’s always something! Now more breathing problems.

Temporal Artery Biopsy, just had mine and they couldn't find it, so they took a tissue sample from the site instead.

First rheumatologist appointment

Nearly there?

4mg and sticking!

Reducing to allow Specialist to investigate

Magnesium

Chickenpox risk ?

Somic therapy/Rolfing therapy

What is a reasonable amount of time to determine whether to taper down or go back up if needed?

Where is the best place to buy K2 mk 7

Antibodies

? G C A in March 2020

PMR and swelling on neck above breastbone

Does anyone have experience of lung problems as a symptom of GCA?

Is PMR coming back?

Making Good Choices can Pay Off.

Update on Exercise Post and Food for thought post

Osteoporosis, fosmax and prednisone

Would DHEA supplements be advisable

How long should I be having headaches or "pressure" head?

Dexa scan results

Update on yesterday.

Missing steroids.

3rd Primary Dose - Covid 19 Vaccinations

Side effects of Prednisalone getting me down.

New Biologics Treatment Coming…

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