Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,759 members • 39,032 posts

All posts for September 2021

Protein absorption in the Blood

I understand that there is a link between excess sugar in the blood and ability to break down and absorb the protein molecule. Apparently the free sugar...

I understand that there is a link between excess sugar in the blood and ability ...

cycli

•3 years ago

8 Replies

Does caffeine affect PMR? If so how?

I usually drink tea but recently started to crave a good strong cup of coffee. Does Chai black tea have caffeine? I don't want to upset my slow...

I usually drink tea but recently started to crave a good strong cup of coffee. ...

pomeranion

•3 years ago

22 Replies

Alendronic Acid - needed or not?

Hi to all you lovely, helpful people, Wonder if someone can advise me. I am currently on 10mg of Prednisolone which I take after Omeprasol every morning. My...

Hi to all you lovely, helpful people, Wonder if someone can advise me. I am curr...

pal-o-mine

•3 years ago

47 Replies

Want to take advantage of all our features? Just log in!

Switched dosing time

Hello all you wonderful people across the the sea. I have been chugging along my journey, taking 3 mg of prednisone, (and feeling almost my old self, half the...

Hello all you wonderful people across the the sea. I have been chugging along m...

misspops

•3 years ago

21 Replies

Tapered from 20 to 3.5 mg Pred 1 year

I'm a 51 year old male just over 1 year in and I have tapered as above without too many problems. General stiffness on occasion and one proper flare but...

I'm a 51 year old male just over 1 year in and I have tapered as above without t...

Jondoyle

•3 years ago

18 Replies

Topical pain relief

A couple of weeks ago I had a swollen top to my foot. The swelling has gone but the top of my foot is still painful and limiting the distance I can walk....

A couple of weeks ago I had a swollen top to my foot. The swelling has gone but...

Hidden

•3 years ago

9 Replies

Immunosuppressed

I had PMR 13 years ago which was diagnosed eventuallyby my physio daughter when I visited her in London. I had what I think of now as typica PMR . My GP was...

I had PMR 13 years ago which was diagnosed eventuallyby my physio daughter whe...

Booge_15

•3 years ago

14 Replies

Mobility, Stretching and Exercise.

INTRODUCTION I have read the original and restructured it plus finishing this sector. I hope it works for you all. I thought this title would do to set the...

INTRODUCTION I have read the original and restructured it plus finishing this ...

cycli

•3 years ago

25 Replies

Inner Elbow Pain. Related to PMR?

Inner elbow pain. Golfer’s Elbow or…I am an avid indoorswoman so def not due to sports! Pain goes up slightly. Seems swollen. Very sore to touch

Inner elbow pain. Golfer’s Elbow or…I am an avid indoorswoman so def not due to ...

Stickgal316

•3 years ago

9 Replies

Forgot to say

Sorry forgot to say that this is for immunosuppressed people only.

Hollybee21

•3 years ago

3 Replies

Third Covid Vaccine

I have had a message from my local Health Authority (Swansea Bay NHS) stating that they will be in touch shortly with a third vaccine for Covid followed by a...

I have had a message from my local Health Authority (Swansea Bay NHS) stating th...

Hollybee21

•3 years ago

27 Replies

Diet for a vegetarian with T score of -3.5 on the spine

Hello all. I’m 61, male, and was on pred for 30 months to treat GCA and PMR, finally stopping in January this year but had to restart at 15mg in July,...

Hello all. I’m 61, male, and was on pred for 30 months to treat GCA and PMR, fi...

Brizzleben

•3 years ago

23 Replies

The Saga Continues after PMR

I have had no symptoms of PMR for almost three years. However, my legs were never the same. They always felt heavy and it was really an effort to walk a long...

I have had no symptoms of PMR for almost three years. However, my legs were nev...

Robinre

•3 years ago

20 Replies

Should I increase my Prednisolone?

Hi, I’ve been unwell since middle of August just a summer virus I thought. By 2/9/21 I was actually feeling worse and was staying in bed. I did an e-consult...

Hi, I’ve been unwell since middle of August just a summer virus I thought. By ...

Felixstowe

•3 years ago

12 Replies

Back on Pred

Hi guys just an update, finally had my appointment with the Specialist through NHS . Back on 15 mg Pred a day! For one month then 12.5 for one month etc etc...

Hi guys just an update, finally had my appointment with the Specialist through N...

Toobusyforthis

•3 years ago

9 Replies

Why is rheumy’s tapering schedule so inflexible??

Hi all, I was diagnosed with PMR at the end of March 2021, started on 15mg pred daily, got down to 9mg by early June but the started GCA symptoms and was put...

Hi all, I was diagnosed with PMR at the end of March 2021, started on 15mg pred...

Nextoneplease

•3 years ago

73 Replies

PMR Flare and Numbness in Toes

Hello to all. Back for more advice. I believe that I'm starting another flare. Rheumatologist has me on a 1mg a month taper, now at 8mg, since my shingles...

Hello to all. Back for more advice. I believe that I'm starting another flare. ...

SARose

•3 years ago

8 Replies

Side effects

Hi all. I'm experiencing some very bad what i think are side effects from steroids. I am down to 7.5mgs reducing slowly by half mg every 5 weeks. This...

Hi all. I'm experiencing some very bad what i think are side effects from ster...

Cosmos22Marigold

•3 years ago

9 Replies

Surgery.

I bit the bullet. After Sweden said we could not enter Sweden (ONCE AGAIN>>> third cancellation for me since 2020. ... I decided after two more attacks to...

I bit the bullet. After Sweden said we could not enter Sweden (ONCE AGAIN>>> th...

yogabonnie

•3 years ago

27 Replies

Recent research on alternative PMR treatment to prednisolone

Hi everyone, Someone recently posted a link to a recent clinical trial on alternative treatment for PMR to prednisolone. I can't find the link. Does anyone...

Hi everyone, Someone recently posted a link to a recent clinical trial on altern...

Smallstepsforward

•3 years ago

11 Replies

Just a Huge Thank you.

A huge thank you for all your replies re struggle to get out of the bath. Think I will pay a visit to the doctor, just to clarify there is nothing wrong....

A huge thank you for all your replies re struggle to get out of the bath. Think...

morrison

•3 years ago

4 Replies

Can any of you you lovely people recommend a pain killer that doesn’t cause constipation. Help!

Pain

Crommie

•3 years ago

47 Replies

Pros and Cons of GCA/PMR prescribed Prednisolone.

I’m basically an optimist who questions everything. Therefore despite the many drawbacks with this medication I am looking for the silver lining. I think I may...

I’m basically an optimist who questions everything. Therefore despite the many d...

cycli

•3 years ago

32 Replies

Shingles

A few days ago I thought I had pulled another muscle in my side as I reached to close a high window. This morning I woke up to red rash on one side of my back...

A few days ago I thought I had pulled another muscle in my side as I reached to ...

York54

•3 years ago

42 Replies

Prednisolone

I have been on Prednisolone now for about 3 years started on 40mg and over a fair period got down to 5mg but then serious flairs back up to 30 on and off....

I have been on Prednisolone now for about 3 years started on 40mg and over a fai...

Blomps

•3 years ago

21 Replies

Member support

Due to my recent post asking if there were any members who lived near me in London, S.W.20 and who might like to meet up, I was contacted by two ladies who...

Due to my recent post asking if there were any members who lived near me in Lond...

Hidden

•3 years ago

20 Replies

Dosing off prednisone.

I have not posted in years. My cortisol is low at 2.0 and the ACTH is low at 1.5. I am on 5 mgs prednisone and on actemra. I am having trouble getting off 4...

I have not posted in years. My cortisol is low at 2.0 and the ACTH is low at 1....

Leeleep

•3 years ago

8 Replies

Should I increase Pred?

Hallo everyone. Will try to be as brief as possible. Diagnosed summer 2019 and started on 15 mg Pred reducing 1 mg every 6 weeks. Was OK until I reached 8 mg...

Hallo everyone. Will try to be as brief as possible. Diagnosed summer 2019 and s...

Tapestry1057

•3 years ago

19 Replies

BP Monitoring at home

GP has said to monitor my BP at home, twice a day for four days taking three readings and reporting the best of three. Bought a monitor and proceeded. Puzzling...

GP has said to monitor my BP at home, twice a day for four days taking three rea...

Hidden

•3 years ago

12 Replies

Flu jab -PMR

Hi everyone, does anyone have any experience of flare up after a flu jab?

Golden20

•3 years ago

49 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for September 2021

Protein absorption in the Blood

Does caffeine affect PMR? If so how?

Alendronic Acid - needed or not?

Switched dosing time

Tapered from 20 to 3.5 mg Pred 1 year

Topical pain relief

Immunosuppressed

Mobility, Stretching and Exercise.

Inner Elbow Pain. Related to PMR?

Forgot to say

Third Covid Vaccine

Diet for a vegetarian with T score of -3.5 on the spine

The Saga Continues after PMR

Should I increase my Prednisolone?

Back on Pred

Why is rheumy’s tapering schedule so inflexible??

PMR Flare and Numbness in Toes

Side effects

Surgery.

Recent research on alternative PMR treatment to prednisolone

Just a Huge Thank you.

Can any of you you lovely people recommend a pain killer that doesn’t cause constipation. Help!

Pros and Cons of GCA/PMR prescribed Prednisolone.

Shingles

Prednisolone

Member support

Dosing off prednisone.

Should I increase Pred?

BP Monitoring at home

Flu jab -PMR

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive