Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,219 members•40,230 posts

All posts for August 2021

Blood Test Delays due to Shortages. Interesting and Probably Relevant to us

BBC News - NHS stops some blood tests due to vial shortages https://www.bbc.co.uk/news/business-58324108

BBC News - NHS stops some blood tests due to vial shortages https://www.bbc.co.u...

Bcol

•3 years ago

13 Replies

Another Prednisone Question…sorry

Diagnosed about a week ago. PA placed me on 40mg pred to decrease to 35 or 30 at my discretion in 4 weeks. Meantime I will make appt with rheumy. This seems...

Diagnosed about a week ago. PA placed me on 40mg pred to decrease to 35 or 30 at...

Stickgal316

•3 years ago

9 Replies

Best news

I had my endoscopy yesterday to look at what the consultant thought might be a stomach tumour……dr that did the test was 99% sure that it wasn’t…. They took a...

I had my endoscopy yesterday to look at what the consultant thought might be a s...

Joneskye

•3 years ago

23 Replies

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Tapering

Hi All, I have been on pred now for just over 18 months and have been tapering as per all your brilliant advice. I had an operation December 2020 which slowed...

Hi All, I have been on pred now for just over 18 months and have been tapering a...

TMenz

•3 years ago

9 Replies

WOW! OUR NEW FAQs PAGE IS THE BEST NEW THING HERE IN A LONG TIME!

(I am re-posting my comment from an earlier post.) I looked the FAQs page and if we can keep it current, we could dispose of the search bar altogether! I know...

(I am re-posting my comment from an earlier post.) I looked the FAQs page and if...

LIVEORDIEHEREIAM

•3 years ago

23 Replies

Tocilizumab treatment?

A friend of mine recently suggested that I try the monoclonal antibody tocilizumab as a treatment for my PMR. My questions are as follows: Has tocilizumab...

A friend of mine recently suggested that I try the monoclonal antibody tocilizum...

Ozark

•3 years ago

31 Replies

Update on week of BP take

Update on weekly BP taken to surgery this am. Scores were low. Some in the 70s. Call from GP surgery (don't know who) rang on my mobile which I can hear but...

Update on weekly BP taken to surgery this am. Scores were low. Some in the 70s....

Suffererc

•3 years ago

19 Replies

Proteolytic Enzymes... Has anyone had any success with them?

I already take Curcumin and Vit K2 on top of ADCAL supplements and wondered if anyone has used Proteolytic Enzymes. Are they worth the money? I am currently...

I already take Curcumin and Vit K2 on top of ADCAL supplements and wondered if a...

Mamamia21

•3 years ago

5 Replies

Exercises yes or no ?

I cannot decide whether doing exercises help or make my PMR worse. Generally activity seems to help! Any advice would be helpful.

I cannot decide whether doing exercises help or make my PMR worse. Generally act...

Hidden

•3 years ago

29 Replies

Karenwelch

They just want to remove any artifacts that obscure the bones in order to get a proper reading. maryanne

They just want to remove any artifacts that obscure the bones in order to get a ...

MaryA_

•3 years ago

3 Replies

Does the flu jab cause polymyalgea

My husband has Polymyalgea and is now on steroids. He has suffered quite severely but the steroids are definately helping. He is insistent that the problem was...

My husband has Polymyalgea and is now on steroids. He has suffered quite severel...

Dubonnet

•3 years ago

22 Replies

Dexa scan tomorrow

Hi all, got my dexa scan tomorrow and just read that any metal from waist down should be removed(not that I got any). So does this mean the scan only scans...

Hi all, got my dexa scan tomorrow and just read that any metal from waist down s...

Hidden

•3 years ago

14 Replies

Re FAQ s

Many thanks. I’m sure this will prove to be very helpful

Ana-16

•3 years ago

1 Reply

Jaw discomfort

Can anyone advise? Onset of PMR was September 2016 and I began prednisolone in January 2017 after a long delay in diagnosis being confirmed. DEXA in August...

Can anyone advise? Onset of PMR was September 2016 and I began prednisolone in ...

rosie_jones

•3 years ago

12 Replies

Hysterectomy and steroids

I am having a hysterectomy and bladder prolapse repair in a few weeks time is it advisable to up my steroids beforehand I am on 13mg at the moment for PMR/GCA

I am having a hysterectomy and bladder prolapse repair in a few weeks time is it...

Sorop

•3 years ago

12 Replies

Update re Sensible GP, Rheumatologist not so much…

Got a call from my Rheumatologist yesterday. Spoke to him on the phone ten days ago, when he said he wasn’t happy I hadn’t been able to lower my Pred dose for...

Got a call from my Rheumatologist yesterday. Spoke to him on the phone ten days ...

Spittal9

•3 years ago

12 Replies

Fractured ribs

Fractured ribs hi I’ve 4 broken ribs with a bad cough any tips.

Chetwode5

•3 years ago

12 Replies

a blind mice

Side effects of Prednisolone over & under-dosing. Has anyone ever been given a percentage chance of developing cataracts? ..by a Rheumatologist? ....by an...

Side effects of Prednisolone over & under-dosing. Has anyone ever been given a p...

ignatz

•3 years ago

9 Replies

the madness of PMR?

Side effects of Prednisolone overdosing? I had an idea that one may become a bit loopy if taking too much Pred but can no longer find any reference. "Symptoms...

Side effects of Prednisolone overdosing? I had an idea that one may become a bit...

ignatz

•3 years ago

15 Replies

Should I increase more....

Hi good people, diagnosed Oct 2019, started Pred at 15 mg, slowly slowly tapering down to my final week of 5 week taper from 3.5 to 3 mg a day. But then I had...

Hi good people, diagnosed Oct 2019, started Pred at 15 mg, slowly slowly taperin...

kalimche

•3 years ago

5 Replies

Advice needed My DXA scan taken in May 2019 shows Osteopenia T-scores - 0.7 to -1.3lumber spine, -1.6/7 hips, should I take Zelandronic acid

Advice needed My DXA scan taken in May 2019 shows Osteopenia T-scores - 0.7 to -...

Stellamavis

•3 years ago

14 Replies

Update on op

Hi everyone, Finally had my op on leg, had it done Friday, quite a major surgery done with the muscles and ligaments. Surgeon said it would take a long time...

Hi everyone, Finally had my op on leg, had it done Friday, quite a major surg...

2013mayo

•3 years ago

51 Replies

Digestive disturbances

I have hesitated in writing this post because it might be worrying or upsetting for some who read it, but I would like to hear from anyone who has a similar...

I have hesitated in writing this post because it might be worrying or upsetting ...

Odosmum

•3 years ago

5 Replies

How to find post please about specific things

Hi can’t work out how to find out specific things that may have already been said. I have a electric like pain from top of arm to toes in right arm. Can’t put...

Hi can’t work out how to find out specific things that may have already been sai...

Uglow

•3 years ago

14 Replies

Returned to the fold

Relapse of PMR after 4 years in the clear. Male aged 69 and down to 5mg prednisolone from 20 mg on March 1st as per my GP. So far so good but anticipate that...

Relapse of PMR after 4 years in the clear. Male aged 69 and down to 5mg predniso...

sighthill

•3 years ago

27 Replies

Knees

Hi everyone, I am still on 7mgs of Pred and haven’t tried to reduce. I have somehow injured my knee, Patella Tendonitis ( it seems I injure myself so easily...

Hi everyone, I am still on 7mgs of Pred and haven’t tried to reduce. I have some...

jules1955

•3 years ago

26 Replies

Still no diagnosis

Hi my hubby had awful pain side of the head for weeks and also affecting his eyesight. He had a semi diagnosis of GCA and was immediately put on prednisone....

Hi my hubby had awful pain side of the head for weeks and also affecting his eye...

Frankie1066cat

•3 years ago

2 Replies

K2 capsules

The additional medication I take -Magnesium Vit D Calceos K2 I have been taking daily 50ug of K2, purchased from Holland and Barrett at £13.99 for 30...

The additional medication I take -Magnesium Vit D Calceos K2 I have been takin...

Tinasleepyhead

•3 years ago

22 Replies

Distinguishing symptoms between PMR and GCA.

It's been 2 weeks since I noticed a distinct improvement in muscle condition and response. It's still wasting away but they work properly now almost like they...

It's been 2 weeks since I noticed a distinct improvement in muscle condition and...

cycli

•3 years ago

13 Replies

COVID-19 vaccines and vaccination explained - videos by scientists for healthcare workers and the public.

https://www.covid19infovaccines.com/?https%3A%2F%2Fwww.covid19infovaccines.com%2Fvideos%3Futm_source=facebook&utm_medium=traf&utm_campaign=la%20poblacion%20euro

https://www.covid19infovaccines.com/?https%3A%2F%2Fwww.covid19infovaccines.com%2...

PMRpro

Ambassador•3 years ago

20 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2021

Blood Test Delays due to Shortages. Interesting and Probably Relevant to us

Another Prednisone Question…sorry

Best news

Tapering

WOW! OUR NEW FAQs PAGE IS THE BEST NEW THING HERE IN A LONG TIME!

Tocilizumab treatment?

Update on week of BP take

Proteolytic Enzymes... Has anyone had any success with them?

Exercises yes or no ?

Karenwelch

Does the flu jab cause polymyalgea

Dexa scan tomorrow

Re FAQ s

Jaw discomfort

Hysterectomy and steroids

Update re Sensible GP, Rheumatologist not so much…

Fractured ribs

a blind mice

the madness of PMR?

Should I increase more....

Advice needed My DXA scan taken in May 2019 shows Osteopenia T-scores - 0.7 to -1.3lumber spine, -1.6/7 hips, should I take Zelandronic acid

Update on op

Digestive disturbances

How to find post please about specific things

Returned to the fold

Knees

Still no diagnosis

K2 capsules

Distinguishing symptoms between PMR and GCA.

COVID-19 vaccines and vaccination explained - videos by scientists for healthcare workers and the public.

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A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

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