Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,644 members • 38,797 posts

All posts for July 2021

Skin thinning

Hi as anyone experienced that legs and arms their skin is getting transparent. And very easlbruse and skin peals easly. I only have to catch leg or hands arms...

Hi as anyone experienced that legs and arms their skin is getting transparent. A...

Denbo51

•3 years ago

37 Replies

Article in the Guardian re guidance for CEV people

More guidance and information regarding efficacy of vaccines discussed:...

Rache

•3 years ago

5 Replies

New guidance for CEV due

Hi all New guidance for some of us due out soon - this is a copy of a tweet from Ton Newton-Dunne (chief political commentator). Hopefully this is reassuring...

Hi all New guidance for some of us due out soon - this is a copy of a tweet from...

Coffeebeans

•3 years ago

4 Replies

Want to take advantage of all our features? Just log in!

If you want to say your bit about the lifting of restriction - have a look at this

https://healthunlocked.com/vasculitis-uk/polls/146446957/how-are-you-feeling-about-the-proposed-lifting-of-covid19-restrictions-on-19th-july-let-us-know-if-your

https://healthunlocked.com/vasculitis-uk/polls/146446957/how-are-you-feeling-abo...

PMRpro

Ambassador•3 years ago

18 Replies

Pred reduction ok so far - herbal remedies helping?

First, just wanting to thanks Dorset Lady, PMRpro and the other kind folks who have advised me over recent months. On DL's Slow Taper Plan I have reduced 15 -...

First, just wanting to thanks Dorset Lady, PMRpro and the other kind folks who h...

Hopingsail

•3 years ago

52 Replies

Update on op

Hi everyone, Well you are not going to believe this, but, my op got cancelled, 3.30pm today, ran out of time, the op is going to be a lot bigger than they...

Hi everyone, Well you are not going to believe this, but, my op got cancelled...

2013mayo

•3 years ago

63 Replies

Effectiveness of vaccination for people on steroids

Okay so I’m sure we are all wondering and no professional has yet been able to give me a semi confident answer. Has anybody had an anti bodies test to see if...

Okay so I’m sure we are all wondering and no professional has yet been able to g...

Matma

•3 years ago

17 Replies

finding a persons posts

How do I find a particular persons posts? Thanks

Linny3

•3 years ago

3 Replies

Dexascan Intervals??

Once I manage to have a baseline Dexascan, is there a recommended interval between scans. Having spoken to one provider, they will not do a Dexascan within...

Once I manage to have a baseline Dexascan, is there a recommended interval betwe...

LBM1953

•3 years ago

14 Replies

Pain and stiffness hits around midday after taking pred in the morning

Hi All, Hoping someone can throw some light on why these days I wake feeling dandy (well, moderately ok anyway...), take 15mg pred about 9.30 am with...

Hi All, Hoping someone can throw some light on why these days I wake feeling da...

redruth123

•3 years ago

13 Replies

Nausea and stomach pains.

I have been on Pred for PMR 23 months and have just successfully reduced to 2.5mgs using DSNS. Prior to this starting in 2016 I have been having episodes of...

I have been on Pred for PMR 23 months and have just successfully reduced to 2.5m...

Bagadash

•3 years ago

7 Replies

Advice please

Tapering and been on 4mg for two weeks have developed niggle in what feels like kidneys and it’s just that , a niggling pain/ache I drink literally gallons of...

Tapering and been on 4mg for two weeks have developed niggle in what feels like ...

Tillylosh2021

•3 years ago

7 Replies

Prednisolone and increased cholesterol

Hi, I have been on steroids for nearly a year and have tapered down to 7mg. I recently had a blood test which revealed that my medication has contributed to my...

Hi, I have been on steroids for nearly a year and have tapered down to 7mg. I re...

pigeonstreet

•3 years ago

5 Replies

Gilbert sindrum is my big problem these days (and spelling 😂) what foods do you fine best

What foods is really bad .

Rocketronzy

•3 years ago

14 Replies

Flagging today

Not sure what to do about work 🙁 I work in care at home 4 on 4 off, 9am to 2 pm then 5pm to 10pm. I was off work for a couple of weeks when I was diagnosed...

Not sure what to do about work 🙁 I work in care at home 4 on 4 off, 9am to 2 p...

Joneskye

•3 years ago

31 Replies

Tapering down on Prednisone

18 months since I was diagnosed with PMR I’ve managed to taper down to 4,5 mg per day, tried several times to get to 4 mg.Find my arm joints and hips ache even...

18 months since I was diagnosed with PMR I’ve managed to taper down to 4,5 mg pe...

Brears

•3 years ago

18 Replies

Rotator cuff pain

I had aching shoulders in the early days - 5 years ago now - but this is different. I can raise my arms above my head, do some gardening, do my Pilates and...

I had aching shoulders in the early days - 5 years ago now - but this is differe...

Lochy

•3 years ago

14 Replies

Stroke vs GCA symptoms which to blame

I am fighting two battles at once recovering from GCA (July 2019) and a stroke (September 2020) so which to blame for my current symptoms? The numbness down my...

I am fighting two battles at once recovering from GCA (July 2019) and a stroke (...

Slowday

•3 years ago

3 Replies

what a conundrum! Is it PMR or NOT

Recently I had aT9 fracture, pelvic fracture and a labral hip tear. No injuries, just stress fractures from osteoporosis resulting from a 5 &1/2 year...

Recently I had aT9 fracture, pelvic fracture and a labral hip tear. No injuries,...

Linny3

•3 years ago

1 Reply

Welcome to our new forum members - July 2021

Hello and welcome to all our new forum members. We hope you've had a chance to look around and find answers to your questions. Here's a quick guide to get you...

Hello and welcome to all our new forum members. We hope you've had a chance to l...

Fran_Benson

Partner•3 years ago

Be the first to reply

Posts about "Freedom Day"

I know there are lots of mixed emotions about the removal of restrictions from our lives and many of you will want to discuss this. Can I please remind...

I know there are lots of mixed emotions about the removal of restrictions from o...

Fran_Benson

Partner•3 years ago

4 Replies

This Forum's filtering

How does this forum filter posts? When I first logged on today there was a post from Devoid about the stupid full relaxation of Covid restrictions in England....

How does this forum filter posts? When I first logged on today there was a post ...

Lutra2

•3 years ago

6 Replies

Pred increased to 30 mg. Symptoms OK (more or less). Dexascan problems.

Hi all fellow sufferers. Result of my bloods last week showed further improvement in my markers. CRP down to 13 from 22 (106 highest). PV 1.79 (2.06...

Hi all fellow sufferers. Result of my bloods last week showed further improveme...

LBM1953

•3 years ago

6 Replies

VISION DISTURBANCE

For the first time today i was seeing colours in my vision blues and reds and it lasted about 5 mins there was no pain is it anything to worry about.

For the first time today i was seeing colours in my vision blues and reds and it...

vangelis8

•3 years ago

6 Replies

Advice please

Woke up this morning feeling quite sick. Managed to take my steroids but was wondering what to do if I am sick ?

Woke up this morning feeling quite sick. Managed to take my steroids but was won...

Ana-16

•3 years ago

6 Replies

Latest Update

Three weeks ago, I had a call out of the blue from my rheumy's team offering me a face to face appointment this Friday! This was the first contact since 30...

Three weeks ago, I had a call out of the blue from my rheumy's team offering me ...

Ansteynomad

•3 years ago

2 Replies

Staying positive

Hadn’t realised how negative my thinking has been especially over the past few months. I attended a BBQ at the weekend where even thought he weather wasn’t...

Hadn’t realised how negative my thinking has been especially over the past few m...

jaycee444

•3 years ago

17 Replies

Shingles vaccination

Hi I’m on 2.5mg prednisolone for PMR and have just received a text from my G.P telling me I am eligible for a Shingles Vaccine. Can anyone tell me if this is...

Hi I’m on 2.5mg prednisolone for PMR and have just received a text from my G.P t...

Peggy16

•3 years ago

11 Replies

COVID-19 Newsletter from Healthline

Recently I started receiving this in my inbox and find it quite interesting, although it is also interesting to see the contradictory information as the days...

Recently I started receiving this in my inbox and find it quite interesting, alt...

HeronNS

•3 years ago

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Prescriptions for Over 60s

Has anyone heard that the government want to increase prescription charges to include people up to 66 years old? That is in England only.

Has anyone heard that the government want to increase prescription charges to in...

piglette

•3 years ago

11 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2021

Skin thinning

Article in the Guardian re guidance for CEV people

New guidance for CEV due

If you want to say your bit about the lifting of restriction - have a look at this

Pred reduction ok so far - herbal remedies helping?

Update on op

Effectiveness of vaccination for people on steroids

finding a persons posts

Dexascan Intervals??

Pain and stiffness hits around midday after taking pred in the morning

Nausea and stomach pains.

Advice please

Prednisolone and increased cholesterol

Gilbert sindrum is my big problem these days (and spelling 😂) what foods do you fine best

Flagging today

Tapering down on Prednisone

Rotator cuff pain

Stroke vs GCA symptoms which to blame

what a conundrum! Is it PMR or NOT

Welcome to our new forum members - July 2021

Posts about "Freedom Day"

This Forum's filtering

Pred increased to 30 mg. Symptoms OK (more or less). Dexascan problems.

VISION DISTURBANCE

Advice please

Latest Update

Staying positive

Shingles vaccination

COVID-19 Newsletter from Healthline

Prescriptions for Over 60s

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

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