Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,643 members • 38,794 posts

All posts for July 2021

Shin pain in PMR

Anyone experiencing knee and shin pain. Not a typical symptom.

RHR76

•3 years ago

14 Replies

PMR Was active 76 year old until now

I am retired and keeping busy. Was walking 4 miles a day. Playing golf 4 days a week. Then I suddenly developed severe pain in hips, groin, back of my legs,...

I am retired and keeping busy. Was walking 4 miles a day. Playing golf 4 days a ...

RHR76

•3 years ago

10 Replies

Cardiologist Took me Off all Heart Medication. Can you share if you had bad side effects from your cardiologist stopping your Metropolol.

I had an ablation and ever since my blood pressure has been slightly high 140/70. Cardiologist put me on Metropolol for the last three years. Three weeks ago...

I had an ablation and ever since my blood pressure has been slightly high 140/70...

kristy43551

•3 years ago

4 Replies

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Manuka Honey?

Well, tonight, I barely touched my leg with my grabber, and now I have three holes in my left leg. The two older ones, 2 weeks now, are looking like they are...

Well, tonight, I barely touched my leg with my grabber, and now I have three hol...

Grammy80

•3 years ago

41 Replies

Lower back spasms

Been down from 10mg of pred for about a 10 days now and had a bad episode of lower back spasms on my right side. Was so painful for about an hour. Took...

Been down from 10mg of pred for about a 10 days now and had a bad episode of l...

paskymom

•3 years ago

4 Replies

Broken wrist, live alone, currently on 7mg preds, in huge pain, plus good digestion has gone, nausea, the runs - Q:

Just been through first days of a fall and dealing with fractured wrist bones. My health has gone haywire, and I will be grateful for advice on Preds. .

Just been through first days of a fall and dealing with fractured wrist bones. M...

Bennijax

•3 years ago

19 Replies

Swollen ankles

I’m tapering pred at a rate of 1 mg every three weeks since May. I’m now on 5 mgs and have been for two weeks. Is it usual to gave swollen ankles to the point...

I’m tapering pred at a rate of 1 mg every three weeks since May. I’m now on 5 mg...

madhouse1

•3 years ago

25 Replies

Sed rate has sky rocketed to an all out high

So my last sed rate was normal 3 months ago. And this time I asked my rheumatologist to check my sed rate and my CRP. The only results I've got back so far is...

So my last sed rate was normal 3 months ago. And this time I asked my rheumatolo...

Amkoffee

•3 years ago

10 Replies

Methotrexate & Prednisolone

Hi So sorry to hear what you have been and are currently going through, you must feel so vunerable right now. I was on Prednisolone for only 6 weeks but you...

Hi So sorry to hear what you have been and are currently going through, you mus...

Shyandretiring

•3 years ago

2 Replies

Hair loss helped!

Over the can past months I’ve noticed more and more hair in my brush- I just brushed less - once in the morning usually - and very gently. But it niggled….I...

Over the can past months I’ve noticed more and more hair in my brush- I just bru...

Jonimoroni

•3 years ago

22 Replies

Phlebitis and flucloxacillin

I have been given flucloxacillin 500mg to take for phlebitis 4 times a day for 5 days is this safe as I am over 50 yrs old also?

I have been given flucloxacillin 500mg to take for phlebitis 4 times a day for 5...

Jessicakitty

•3 years ago

4 Replies

Change of Prednisolone dose time.

I have been taking Pred early morning ( 8:30 am ish) for 3 years and 1 month. Pred is my best friend xxx. As mornings, upto just after midday are always a bit...

I have been taking Pred early morning ( 8:30 am ish) for 3 years and 1 month. Pr...

pmrgcavictim

•3 years ago

6 Replies

covid vaccine pfizer-biotech

was off prednisone Feb 2021 had the vaccine mar 2021 within a month couldn't open my hand felt like glass crystals. Shoulders not to bad but calves of my...

was off prednisone Feb 2021 had the vaccine mar 2021 within a month couldn't op...

Vayne

•3 years ago

17 Replies

The regularity of Tocilizumab injections - in reply to christine2715 and for others on long term tocilizumab use ...

I saw my specialist (in France) 2 days ago for the first time face to face this year. The last consultation was by telephone in January. She diagnosed me with...

I saw my specialist (in France) 2 days ago for the first time face to face this ...

Frenchduck

•3 years ago

16 Replies

Is PMR hereditary?

My mum (aged 83) has just been diagnosed with PMR too - I wasn't aware it might run in families and wonder if anyone else has close relatives who are affected....

My mum (aged 83) has just been diagnosed with PMR too - I wasn't aware it might ...

SwimmingUpHill

•3 years ago

10 Replies

Steroid reduction

Good morning lovely people I’ve been patiently doing the slow tapering regime from 15mg and have now got down to 3. I started to not feel too right so I’ve...

Good morning lovely people I’ve been patiently doing the slow tapering regime ...

Doraflora

•3 years ago

9 Replies

SLEEP APNEA MACHINES GLOBAL RECALL BY PHILLIPS

Hi Folks, Can you please share these links with any users and healthcare providers you might know!...

Hi Folks, Can you please share these links with any users and healthcare provide...

Benos123

•3 years ago

Be the first to reply

I have a dilemma.

Folks, I am asking for suggestions and/or anecdotal accounts of this happening to you and how you handled the situation with getting the Covid vaccine. I...

Folks, I am asking for suggestions and/or anecdotal accounts of this happening t...

libchp65

•3 years ago

10 Replies

Actemra side effects

Can't find any evidence of this anywhere else, but every time I get an infusion, I just have to crawl in bed. I usually have my infusion on Fridays, so the...

Can't find any evidence of this anywhere else, but every time I get an infusion,...

winfong

•3 years ago

9 Replies

What doctors don't tell us

Thankful for this site. But cannot understand why when doctors give their diagnosis, that's the limit of info. You have GCA ?PMR. so now we will set you on a...

Thankful for this site. But cannot understand why when doctors give their diagno...

jarn

•3 years ago

90 Replies

When to take steroids

More of your wisdom please. Following your advice I have managed to control my symptoms by taking 15 mg in the morning and 5 mg in the evening. This has helped...

More of your wisdom please. Following your advice I have managed to control my s...

Ana-16

•3 years ago

3 Replies

Changing the timing of Pred and that 2:00 am suggestion

Hello, new here and appreciative of everyone's insights! I have read multiple posts on the timing of taking Pred and would love thoughts on the following; I am...

Hello, new here and appreciative of everyone's insights! I have read multiple po...

Sunnyday365

•3 years ago

17 Replies

Good news

Had to share this with someone who might understand. I took my kayak out for the first time in over a year this past weekend. Short route, no current, but...

Had to share this with someone who might understand. I took my kayak out for th...

winfong

•3 years ago

27 Replies

Rheumy telephone call appointment

I had a telephone appointment with my Rheumy yesterday, and basically it didn't go well!! The last time I spoke to her was November 2020, and I have not...

I had a telephone appointment with my Rheumy yesterday, and basically it didn't ...

Purplegloss

•3 years ago

23 Replies

Long term tocilizumab use

Hello all - I wonder if anyone has experience of long term tocilizumab use. I have been having injections every 4 weeks. I began weekly and gradually moved to...

Hello all - I wonder if anyone has experience of long term tocilizumab use. I h...

christine2715

•3 years ago

4 Replies

PRED AND METHOTREXATE DILEMMA! PMR versus Crohns

Hello, I’ve not posted for a while as I have been in and out of hospital with my other ailment - fistulising Crohns - all brought about by the Covid...

Hello, I’ve not posted for a while as I have been in and out of hospital with m...

Songbird69

•3 years ago

18 Replies

GLOBAL RECALL FOR PHILLIPS PAP AND VENTILLATORS

Hi Folks, Can you please share these links with any users you might know!...

Benos123

•3 years ago

Be the first to reply

Pred vs CRP results

Brain fog and poor memory means I can’t recall asking this before. Am I right in thinking that CRP results are going to be lower if you’re on enough pred to...

Brain fog and poor memory means I can’t recall asking this before. Am I right in...

Griggser

•3 years ago

30 Replies

500,000 Immunosuppressed in UK

There was an interesting bit on Radio 4 Today this morning. I think many people don’t realise they are in this category - I think we are if we are on pred. Can...

There was an interesting bit on Radio 4 Today this morning. I think many people ...

DogAgilityObsessed

•3 years ago

11 Replies

The cutting of 1 mg tablets

Sorry if this seems a stupid question but why is it only the plain tablets that can be cut? A scenario comes to mind where a GP might choose to only prescribe...

Sorry if this seems a stupid question but why is it only the plain tablets that ...

Hidden

•3 years ago

63 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2021

Shin pain in PMR

PMR Was active 76 year old until now

Cardiologist Took me Off all Heart Medication. Can you share if you had bad side effects from your cardiologist stopping your Metropolol.

Manuka Honey?

Lower back spasms

Broken wrist, live alone, currently on 7mg preds, in huge pain, plus good digestion has gone, nausea, the runs - Q:

Swollen ankles

Sed rate has sky rocketed to an all out high

Methotrexate & Prednisolone

Hair loss helped!

Phlebitis and flucloxacillin

Change of Prednisolone dose time.

covid vaccine pfizer-biotech

The regularity of Tocilizumab injections - in reply to christine2715 and for others on long term tocilizumab use ...

Is PMR hereditary?

Steroid reduction

SLEEP APNEA MACHINES GLOBAL RECALL BY PHILLIPS

I have a dilemma.

Actemra side effects

What doctors don't tell us

When to take steroids

Changing the timing of Pred and that 2:00 am suggestion

Good news

Rheumy telephone call appointment

Long term tocilizumab use

PRED AND METHOTREXATE DILEMMA! PMR versus Crohns

GLOBAL RECALL FOR PHILLIPS PAP AND VENTILLATORS

Pred vs CRP results

500,000 Immunosuppressed in UK

The cutting of 1 mg tablets

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