Update on op

[2013mayo]

Hi everyone,

Well you are not going to believe this, but, my op got cancelled, 3.30pm today, ran out of time, the op is going to be a lot bigger than they thought, surgeon told me I will need bone graft taken from my lower leg to build up bone on hip, plus muscle transfer.

He’s on holiday now for 3 weeks so earliest they can get me in is August. 😟

I feel absolutely exhausted, don’t know why as all I’ve done is sit in a chair all day waiting for the op. Nothing to eat or drink since last night. I had to be there for 7am and wait.

Xx

[MrsNails]

Oh Mayo, how awful for you, l am truly sorry 😢 The anticipation & waiting is extremely tiring......Is your Rheumatologist based at the same hospital as your Surgeon as l think it would be beneficial for them to have a discussion re your Prednisolone Dose Post Surgery.

Please keep us in the loop & l’m sure you’ll be glad to get into your own bed tonight.

Thinking of You 💐

MrsN

[2013mayo in reply to MrsNails]

Thank you so much for your kind reply, yes my rheumatologist is at the same hospital so I’ll get in touch with him.Just can’t believe how tired I am. I will definitely go to bed early tonight.

I’ll let you know when my next venture will be.

Xx

[MrsNails in reply to 2013mayo]

Get yourself something to eat & have a good rest tomorrow as you could get a bit of a ‘Stress Kick Back!’

When l had my Surgery the Registrar rang my Rheumatologist to check what dose of Pred l needed Post Op & she raised it by 2.5mg per day for two weeks then back to 7.5mg so l would imagine that you will need some kind of amendment to your current dose.

Did l send you the links on Patients on Steroids having Surgery & Sick Day Rules?

MrsN

[2013mayo in reply to MrsNails]

Yes I do have that, thanks.Can’t believe how much it takes out of you, I have eaten and had several cups of tea.

Xx

[MrsNails in reply to 2013mayo]

Sleep Well! x

[123-go]

What a horrible, stressful day you've had! Spoil yourself tomorrow: you deserve it.

[2013mayo in reply to 123-go]

Will do.😍

[Jackie1947]

I'm so sorry as it must be both disappointing and stressful. Sending positive vibes. Take care

[2013mayo in reply to Jackie1947]

Thank you😍

[Flosy in reply to 2013mayo]

Hi.i feel sorry for you,you must be very stressed an tired.sending love to you.x

[2013mayo in reply to Flosy]

Hi, Yes it’s surprising how much it takes out of you, I feel as though I’ve been through a lot even though I’ve not had the op.

Thank you for your msg.

😍

[Flosy in reply to 2013mayo]

Take care and look after yourself.x

[piglette]

I would be so annoyed and upset if that had happened. Surely if they had planned a bit better they would know that your op would take time??

[2013mayo in reply to piglette]

Nothing surprises me re this op, it will happen soon but even more nervous now surgeon told me I need bone graft.😟😍

[piglette in reply to 2013mayo]

It all seems a bit bizarre. You would have thought he would have known that before the day of the actual op. When did you last see him? I sat all day waiting for an op with a general anaesthetic having arrived at 7am in the morning. They then told me I could have it at 10pm that night. I had not eaten since the previous day, so I decided to go home. When I finally had the op, it took one and half hours, so it would have been nearly midnight if I had waited on the original day.

[2013mayo in reply to piglette]

Wow, and I thought I had it bad, can’t believe they left you all that time.Xx

[piglette in reply to 2013mayo]

It was getting there at 7am that really got me! On a Sunday.

[mgrogers99 in reply to 2013mayo]

I had a bone graft in 1992 and never had a problem with it....just to share a positive thought with you!

[2013mayo in reply to mgrogers99]

Thank you, I had a bone graft a good few years ago, on the same hip, it was allograft, I didn’t know anything about it until they woke me up and told me.

It’s just the thought of taking it from my lower leg, another scar, I’ve heard that’s very painful. It was just a shock as it was never mentioned before, he tells me I have no bone covering my thigh to attach muscle to, no wonder it’s so weak.

Thank you for your positive outcome.

😍

[mgrogers99 in reply to 2013mayo]

I think of all my scars like my gray hair.... I have earned all of them!!!

[2013mayo in reply to mgrogers99]

Well I’ve got plenty of both 😟Xx

[DorsetLady PMRGCAuk volunteer]

Oh flippin’ heck -what a nightmare. So sorry to hear - sincerely hope they put you first on the list next time around! 🌸

[2013mayo in reply to DorsetLady]

Well they said they would ?🤔Xx

😍

[DorsetLady PMRGCAuk volunteer]

🤞

[PMRpro Ambassador]

Well I know why you are exhausted!!!! So sorry and hopefully you will be first on the list next time since they have cancelled you twice now. I imagine the ones ahead of you overran too.

[2013mayo in reply to PMRpro]

Thank you,Well I’ve been told I will be first on list next time . Yes, he had a very big op before me, then he told me me my op was going to be a lot more complex than he first thought, then a emergency came in.

😍

[PMRpro Ambassador in reply to 2013mayo]

That's the trouble with orthopaedics - an emergency appears and the non-emergency patient must be bumped.

[2013mayo in reply to PMRpro]

HiHe’s actually I plastic surgeon, he deals with complicated procedures involving muscles and skin grafts etc on the bones, he only works at the Nuffield once a week, the rest of the time he work at John Radcliffe, or private.

I was put back as they had an emergency when I was supposed to be second on the list. I’m not too upset if someone was needing emergency surgery, I’ve had that happen to me when a poor lady was bumped off the list because of me when I dislocated my hip.

Xx

[DorsetLady PMRGCAuk volunteer in reply to 2013mayo]

swings and roundabouts!

[Kendrew]

What an awful experience to go through. I'm so sorry you've had to endure that. The whole build up, anticipation, preparation and anxiety that comes before an op is challenging enough when the surgery actually goes ahead, but to then be sent home at the 11th hour with the procedure not being completed must be so disappointing and mentally draining. Just try to accept what's happened.... there's nothing you can do to change it now but you can use the extra time you have to ensure you're as well as you possibly can be in readiness for the August date. Wishing you all the best. My fingers are crossed for you.

❤️

[2013mayo in reply to Kendrew]

Thank you for your kind words.I’m feeling a little better now, just a bit of a shock when it happened, also being told the op is going to be more complex, all too much to take on in one day.

😍

[Kendrew in reply to 2013mayo]

Of course it is. You've got through it though and all credit to you. Try to rest, relax and take comfort from knowing you'll be in good hands. It'll be ok.

Just wanted to add that it's far better the surgeon is fully prepared for your now 'more complex' surgery. Everything happens for a reason and whatever that reason, if he suddenly felt he required more time to ensure a successful outcome then that can only benefit you.

❤️

[2013mayo in reply to Kendrew]

Oh I agree,Thank you

😍

[SheffieldJane]

You will have been in a state of high tension and stress. Absolutely exhausting! You have no real choice but to wait and work on getting into a calm, grounded state, focusing on a great outcome. I really feel for you.

[2013mayo in reply to SheffieldJane]

Thank you😍

[Bcol]

So sorry to hear this, at the very least, it must be really frustrating. I can't speak from personal experience but my next door neighbour asked me to keep an eye on her house when she she went in for a cancer operation last week (it had unexpectedly returned). She was in for 11:00, been prepped and ready to go to theatre when they told they had no staff and sent her home. No new date yet. To say she was frustrated, and fed up would be an understatement. Hopefully your surgeon will come back from holiday fully refreshed and on top form for your extended op.

[2013mayo in reply to Bcol]

HiWell that’s what I’m hoping, let’s hope he come back fully refreshed and better prepared, and that I’m first on the list.

Thank you

Ps, hope your neighbour doesn’t have to wait too long.

😍

[Devonspinner]

I am so sorry to hear about your day. Hopefully the surgeon will be relaxed and ready to go when he comes back from holiday. Good luck x

[2013mayo in reply to Devonspinner]

Thank you, Yes I’m hoping it will all come right. He is a very good surgeon.

😍

[bussell]

Frustrating and exhausting for you. After sleeping in your own bed, hope you are feeling more positive this morning. We are all rooting for you, and you can at least use the next 3 weeks to make sure you're in as good physical form as poss. Big hug (ha ha). Chin up - as no one says anymore, bur you know what I mean.😘

[2013mayo in reply to bussell]

Oh I do indeed, thank you so much, It took some time for me to get to sleep as I was probably still in shock, I think it will tell on me today as my eyes are very fuzzy today, I may well take a few extra pred for a couple of days just to get me back on form.

😍

[Uglow]

So frustrating I wish you well

[2013mayo in reply to Uglow]

Thank you😍

[borednow]

I'm really really sorry - here's to a successful outcome when he gets back from holiday (it would have been nice if he'd asked you to go with him).

[2013mayo in reply to borednow]

Ooh I don’t know about that, 🤔 I don’t think my hubby would too pleased, 😀 , can you imagine if I said I’m off on my hols with my surgeon 😂😍

[borednow in reply to 2013mayo]

Well under the circumstances, you could have insisted your husband went as well!! Good luck for August, do let us know how you get on.

[Pixix]

Sending hugs, that’s very tough. S x

[2013mayo in reply to Pixix]

Thank you😍

[Thelmarina]

Oh you poor darling. You must feel completely shattered having screwed up your courage and ready to get on with it. I hope you’ve had a good and fortifying meal that will make you feel a bit better, I think sometimes hospital admin is so complex that administrators forget that patients are human beings and that how we feel has an effect on healing. Thinking of you - you will get there...❤️

[2013mayo in reply to Thelmarina]

Thank you,Yes I’m a bit more positive today, obviously the op is going to be a lot more involved so maybe he’ll be fortified when he returns from his holiday .

😍

[whitefishbay]

That stinks. Sorry.

[2013mayo in reply to whitefishbay]

Never mind, I’ll get there.😍

[whitefishbay in reply to 2013mayo]

One thing we have all learned is patience. Hang in there.

[scottygirl73]

Oh goodness how awful for you ,treat yourself to something really nice you deserve it,after such dissapointment.Virtual hugs

🤗 xx

[2013mayo in reply to scottygirl73]

Thank you😍

[LCfan]

so sorry for you. I hope you are feeling more rested today. Good luck for the next time!

[2013mayo in reply to LCfan]

Thank you😍

[Jackoh]

Just wrote you a long reply. Fell asleep and lost it!! But just to say I’m so sorry. Hope and pray next appointment is plain sailing. Xx💐

[2013mayo in reply to Jackoh]

Thank you😍

[singingloud]

The whole ordeal can make you exhausted. Take time to rest.

[2013mayo in reply to singingloud]

I’m actually surprised by how much it’s taken out of me, I’ve slept most of today, yet I still feel tired. I will get there, just taking a bit longer than I’d like.😍

[singingloud in reply to 2013mayo]

Getting ready for a major surgery and then having it cancelled is enough to stress one out but then to find out the surgery will be even more extreme would put anyone in exhaustion. I'll be praying for you. My back surgery is in August and I'm sure it is what is adding to my emotional state even now. Take care of yourself.

[2013mayo in reply to singingloud]

Oh bless you,

Thank you so much for your kind words, I hope too that your your surgery goes well. Yes you are quite correct in saying that getting ready for surgery puts a lot of strain on your body, and as you say to be told it’s even more than you thought. I’ve calmed down now but it’s taken a lot out of me, I’m trying to remain positive and at least it’s now given me time to adjust to what’s going to be done.

All the best for you in August, please let us all know how you get on.

😍