Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,642 members • 38,792 posts

All posts for July 2021

Carer check for Covid.

I have LVV so stay close to camp. However wife goes out several times, how often should she check with the Boots Covid kit, everytime. Now the gloves are off...

I have LVV so stay close to camp. However wife goes out several times, how often...

Elbowpiece

•3 years ago

12 Replies

NATURAL REMEDIES

Are there any natural remedies out there for PMR...I just got diagnosed with it and tried prednisone for 10 days with very bad side effects. Had to stop

Are there any natural remedies out there for PMR...I just got diagnosed with it ...

ttboxjps

•3 years ago

28 Replies

GCA, Adrenal Insufficiency, and an Ice Cream Head.

I am 83 and was diagnozed with GCA in October 2019. I finished the course of prednisolone on the April 2021 without having had a flare up. In early January...

I am 83 and was diagnozed with GCA in October 2019. I finished the course of pre...

VicSat

•3 years ago

45 Replies

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Fatigue and hot weather

Very relieved to see everyone is talking about fatigue - feel a bit more normal now!But is anyone else finding that the hot weather is making the fatigue...

Very relieved to see everyone is talking about fatigue - feel a bit more normal ...

Sharitone

•3 years ago

53 Replies

We're recruiting an admin assistant.

We're recruiting a full-time admin assistant. If you know anyone who is London-based (or thereabouts) and would like to work for a small charity committed to...

We're recruiting a full-time admin assistant. If you know anyone who is London-...

Fran_Benson

Partner•3 years ago

10 Replies

Should I be worried?

Hi, everyone, it’s me again! Another problem; I started to get a bloodshot eye about 3 weeks ago which hasn’t gone away. I contacted the drs surgery and they...

Hi, everyone, it’s me again! Another problem; I started to get a bloodshot eye a...

BPlady

•3 years ago

6 Replies

Just had my dexascan

Had the scan an hour ago. Easy peasy. Knocked on the door of the rhuem nurse lead as I was leaving just to say hi. I’ve known her for 30 yrs in different parts...

Had the scan an hour ago. Easy peasy. Knocked on the door of the rhuem nurse lea...

MiloCollie

•3 years ago

12 Replies

Trigger Thumb

Has anyone had a trigger thumb? Suddenenly every time I bent my thumb it triggered and made me shudder. Also very painful. My gp gave me a cortizone jab (very...

Has anyone had a trigger thumb? Suddenenly every time I bent my thumb it trigger...

diana1998

•3 years ago

10 Replies

When is a flare a flare?

At what stage does one recognise a flare? Presently I am at 3.5 mg pred daily and whilst uncomfortable for a couple of hours each morning the 3.5mg seems to...

At what stage does one recognise a flare? Presently I am at 3.5 mg pred daily an...

HamishPMR

•3 years ago

6 Replies

Upsetting experience with rheumatologist

Had a very upsetting telephone consultation yesterday, well I say consultation! The first thing he said when I answered the call was " I don't know why you are...

Had a very upsetting telephone consultation yesterday, well I say consultation! ...

Jax1962

•3 years ago

24 Replies

Low fat vs. Full fat Yoghurt

I was always eating the low fat version of greek yoghurt and then read the full fat might help with curbing some of my hunger pains and cravings. I do feel...

I was always eating the low fat version of greek yoghurt and then read the full ...

pomeranion

•3 years ago

82 Replies

Tingling in the feet

Should I be concerned about toes feeling tingly when I lie down? I have vasculitis GCA and poor circulation but this is something new.

Should I be concerned about toes feeling tingly when I lie down? I have vasculi...

shella

•3 years ago

29 Replies

Too hot!!

I used to love every moment of hot weather, which really brought me to life. Now I find I can't wait for the cooler evenings to arrive..is this, I wonder, an...

I used to love every moment of hot weather, which really brought me to life. Now...

humlies

•3 years ago

42 Replies

PMR & Concrete blocks tied to legs feeling, when walki

Hello everyone. Do any of you have this problem when walking? It has been like this for me ever since diagnosis last August. I had a face to face...

Hello everyone. Do any of you have this problem when walking? It has been like...

Hidden

•3 years ago

19 Replies

Thoughts on Acupuncture

I wondered what people thought of acupuncture. I ask because I have been in the most dreadful place with pain from muscles to the point last week where I...

I wondered what people thought of acupuncture. I ask because I have been in the...

Sophiestree

•3 years ago

54 Replies

Tapering from 30 mg Pred?

Hi All. I have just began tapering from 30 mg and first step was to 27.5 mg and all seems OK so far. Had a look on this Forum for (approved or acknowledged)...

Hi All. I have just began tapering from 30 mg and first step was to 27.5 mg and...

LBM1953

•3 years ago

43 Replies

Tips for coping with chronic pain etc

I posted a link in the Arthritis Action community and thought a lot of the points made apply to PMR too....

I posted a link in the Arthritis Action community and thought a lot of the point...

HeronNS

•3 years ago

8 Replies

Tocilizumab treatment extension, and latest PET-CT scan results

Three weeks ago, I discovered (via this wonderful group) that the NHS had decided to extend Tocilizumab injections until March 2022 (and indeed, my...

Three weeks ago, I discovered (via this wonderful group) that the NHS had...

Suzita76

•3 years ago

27 Replies

Night fevers

In Feb. I was taking 8mgs of pred .Now taking 6.5 tapering .05 mg down to 5mgs.For the past 3 nights I've been running a fever of 99 to 101 but it's been gone...

In Feb. I was taking 8mgs of pred .Now taking 6.5 tapering .05 mg down to 5mgs.F...

ancientprune

•3 years ago

9 Replies

Prednisone

Iv taken 15mg for 2 days no difference on pain I think must be fracture! Can I jus drop back to my 10 mg tomorrow without effects please

Iv taken 15mg for 2 days no difference on pain I think must be fracture! Can I j...

Uglow

•3 years ago

23 Replies

Dexa scan

Hi all, I received my dexa scan appointment today for end of aug, is it just a scan then wait for results to go to my gp or do I see a dr there and then? If so...

Hi all, I received my dexa scan appointment today for end of aug, is it just a s...

Hidden

•3 years ago

12 Replies

Neck and bicep pain

Hello lovely, knowledgeable people, I just wondered if anyone had encountered aches and pains coming back in the neck ? I was diagnosed at the beginning of May...

Hello lovely, knowledgeable people, I just wondered if anyone had encountered ac...

Coco63

•3 years ago

11 Replies

Humidity affecting PMR?

Does anyone find a correlation between high humidity and increased PMR symptoms? I can get an hourly graph of our local city and find my symptoms during the...

Does anyone find a correlation between high humidity and increased PMR symptoms...

Jane424

•3 years ago

11 Replies

Dexa results in, but what do they mean?

Got my results today, (apologies if this post is a bit long). The Summary letter says: RESULTS: With the lowest T-score of 1.5 in the Neck of Femur and Lumbar...

Got my results today, (apologies if this post is a bit long). The Summary letter...

LBM1953

•3 years ago

11 Replies

No more Pred!

Thank you to everyone on this site for all your help and guidance regarding PMR. Following GP advice my first tapering was a disaster!! But following ‘Dorset...

Thank you to everyone on this site for all your help and guidance regarding PMR....

40abba

•3 years ago

5 Replies

Has anyone had success with infra red therapy to treat PMR pain?

Hi there - I’m wondering if anyone has had any relief from symptoms using infra red therapy? Thanks

Hi there - I’m wondering if anyone has had any relief from symptoms using infra ...

Smallstepsforward

•3 years ago

9 Replies

Doing good

DOING GOOD Morning all. I haven't posted for a while but have been following all the advice from this site. I felt that my Dr gave up on me as i havent...

DOING GOOD Morning all. I haven't posted for a while but have been following ...

Cosmos22Marigold

•3 years ago

15 Replies

Swelling ankles

Hi all, I been on 12mg for nearly week now also co-cordimol 4 times a day, which have got to say I feel ok, not pain free, I have notice my ankles are swelling...

Hi all, I been on 12mg for nearly week now also co-cordimol 4 times a day, which...

Hidden

•3 years ago

11 Replies

Fatigue at 2mgs.

Hi everybody. Hope you are all keeping safe and well. I am having a bit of a problem and would be very happy if l could get your feedback. After a long...

Hi everybody. Hope you are all keeping safe and well. I am having a bit of a pro...

Alwynk

•3 years ago

50 Replies

Getting off prednisone post PMR and Covid-19. No pain, no gain.

I have been on prednisone for 30 months. In December 2020 I contracted Covid-19 and was hospitalized for 44 days. My doctor and others that saw me in hospital...

I have been on prednisone for 30 months. In December 2020 I contracted Covid-19 ...

DeWet

•3 years ago

12 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2021

Carer check for Covid.

NATURAL REMEDIES

GCA, Adrenal Insufficiency, and an Ice Cream Head.

Fatigue and hot weather

We're recruiting an admin assistant.

Should I be worried?

Just had my dexascan

Trigger Thumb

When is a flare a flare?

Upsetting experience with rheumatologist

Low fat vs. Full fat Yoghurt

Tingling in the feet

Too hot!!

PMR & Concrete blocks tied to legs feeling, when walki

Thoughts on Acupuncture

Tapering from 30 mg Pred?

Tips for coping with chronic pain etc

Tocilizumab treatment extension, and latest PET-CT scan results

Night fevers

Prednisone

Dexa scan

Neck and bicep pain

Humidity affecting PMR?

Dexa results in, but what do they mean?

No more Pred!

Has anyone had success with infra red therapy to treat PMR pain?

Doing good

Swelling ankles

Fatigue at 2mgs.

Getting off prednisone post PMR and Covid-19. No pain, no gain.

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