Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,636 members • 38,787 posts

All posts for July 2021

Adcal D3

How long do you need to take these pills For? Someone said as long as your on pred and beyond x is this true.

How long do you need to take these pills For? Someone said as long as your on pr...

Harrywogan

•3 years ago

5 Replies

Mood Swings

Hello! I am speaking as the long suffering wife of a GCA sufferer. One year ago, diagnosed after a stroke as a result , and impaired vision (because of the...

Hello! I am speaking as the long suffering wife of a GCA sufferer. One year ago,...

Bella1310

•3 years ago

51 Replies

Osteoporosis and osteopenia

As the issue of bone thinning is a constant worry for those of us on long term corticosteroid treatment, I thought this YouTube video posted recently in the...

As the issue of bone thinning is a constant worry for those of us on long term c...

HeronNS

•3 years ago

59 Replies

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Medicinal experiences

Hi all Following all the recent conversations about various meds people are being prescribed I thought I would add my experiences to the mix. Might be...

Hi all Following all the recent conversations about various meds people are be...

Ana-16

•3 years ago

4 Replies

Another update …

Hi Everyone … I am now at .75mg!!!! Woohoo. My TCZ jabs have been 3 weekly for a while but now I have been asked to move to 4 weekly. Let’s see what...

Hi Everyone … I am now at .75mg!!!! Woohoo. My TCZ jabs have been 3 weekly for...

LemonZest11

•3 years ago

2 Replies

Having to wait.

Hi everyone who responded to my question, and many thanks! I saw the optician again as I didn’t want to make a fuss ,and she had another look at my eyes and...

Hi everyone who responded to my question, and many thanks! I saw the optician ag...

BPlady

•3 years ago

6 Replies

A bit gutted 😞

Hi all, Haven’t posted in a while. I’ve been doing fairly well and have been hovering between 1 and 2 mgs of Pred per day. I’ve just had the results of a...

Hi all, Haven’t posted in a while. I’ve been doing fairly well and have been hov...

GerriMc

•3 years ago

21 Replies

Dental braces at 72

My dentist tells me my teeth are slowly moving like tectonic plates (his words) and are now wearing the back of my front top teeth. He suggests a brace to...

My dentist tells me my teeth are slowly moving like tectonic plates (his words)...

Poshdog

•3 years ago

3 Replies

Sore and swollen tongue

Hi.i am just wondering if anyone has any advice my tongue feels sore and swollen,I have thrush alot,but this feel different,first thing in morning it looks...

Hi.i am just wondering if anyone has any advice my tongue feels sore and swollen...

Flosy

•3 years ago

8 Replies

Cateract op.

Hi all. Everything went fine on Tuesday for my op except the delay as they were so busy. I should have gone to theatre at 3.45 but got there at 5.55. Last...

Hi all. Everything went fine on Tuesday for my op except the delay as they were...

Cosmos22Marigold

•3 years ago

14 Replies

Recently diagnosed with GCA. What the hell ! Update !

Hello everyone. It’s been a roller coaster of a ride the last 2 months. I am starting to feel better. I am taking the Actemra and am down to 20 mg of...

Hello everyone. It’s been a roller coaster of a ride the last 2 months. I am sta...

GlennStephen

•3 years ago

6 Replies

Covid jab

Any advice on how to prepare for COVID jab regarding steroid dose I’m on 11mg and what side effects to expect. Please no get it done advice I’m trying to make...

Any advice on how to prepare for COVID jab regarding steroid dose I’m on 11mg an...

Uglow

•3 years ago

16 Replies

Valued Advice

Hi everyone, i'm writing again in the hope that I can receive some expert advice from the forum. Your opinions are of tremendous value and help me to make...

Hi everyone, i'm writing again in the hope that I can receive some expert advice...

maxgarry

•3 years ago

6 Replies

PMR question

Initially followed the advice frm the forum and stayed clear of using Celebrex to ween off of prednisone and was doing fine, got off of the prednisone and had...

Initially followed the advice frm the forum and stayed clear of using Celebrex t...

Truckfoot

•3 years ago

2 Replies

Immunosuppresants and vaccine efficacy

Read and was told some interesting facts about efficacy of vaccine whilst on immunosuppresants, quite scary

Read and was told some interesting facts about efficacy of vaccine whilst on imm...

Lola5670

•3 years ago

29 Replies

Any advice on Statins?

I have had PMR since October and now down to 10mg Pred. Feeling ok although have put on 1/2 stone and sleeping badly. Got new GP, she’s a registrar and very...

I have had PMR since October and now down to 10mg Pred. Feeling ok although have...

GrannyJane

•3 years ago

19 Replies

Nausea

Has anyone experienced short periods( approx 30 seconds) of nausea or a short period of vomiting while tapering on prednisone? I have tapered to 5mg and not on...

Has anyone experienced short periods( approx 30 seconds) of nausea or a short pe...

Caloo650

•3 years ago

15 Replies

An update....vision and flare~!

Well, it seems I'm in the middle of a GCA flare and not feeling very good or very comfortable. I'm taking 20mg of prednisone per day but still having some...

Well, it seems I'm in the middle of a GCA flare and not feeling very good or ver...

Grammy80

•3 years ago

15 Replies

Dilemma

I've taken quick Covid tests for the last 3 days - all negative. Started with runny nose and tickly sore throat, Wednesday, which responded to hay fever tabs,...

I've taken quick Covid tests for the last 3 days - all negative. Started with ru...

Q-owl

•3 years ago

42 Replies

PMR and heart disease?

Hello, Question about PMR and heart palpitations. I am wondering if any of you have experienced arythmias? I realize that they can be quite benign, but...

Hello, Question about PMR and heart palpitations. I am wondering if any of you h...

SandyBoots

•3 years ago

15 Replies

Help!

so I called my they my because I have had a stiff neck since April and it seems to be getting worse, achy arms and legs and trouble getting up, reaching for...

so I called my they my because I have had a stiff neck since April and it seems ...

Logic

•3 years ago

8 Replies

Query - Adrenals and UTI

Over the past year or so I have tried reducing daily dosage of Pred. I get down to 5mg and then I get a UTI and have to go up again. I am beginning to wonder...

Over the past year or so I have tried reducing daily dosage of Pred. I get down...

Jantayl

•3 years ago

5 Replies

Small things

Hi all, I dont want to count my chickens before they hatch but I just had my monthly food shopping delivered and I put it all away on my own, (well I say on my...

Hi all, I dont want to count my chickens before they hatch but I just had my mon...

Hidden

•3 years ago

15 Replies

Medical Cannabis

Medical Cannabis Hi everyone, has anybody taken medical cannabis for pain relief and help with sleeping ? I live in Spain where it is legal to grow 3 plants...

Medical Cannabis Hi everyone, has anybody taken medical cannabis for pain relie...

Lico

•3 years ago

48 Replies

Body temperature control

Does PMR affect the temp control centre in my body? Hi everyone. I hope you are managing to keep cool. I have never liked the heat, but since I have had PMR, I...

Does PMR affect the temp control centre in my body? Hi everyone. I hope you are ...

sewingscissors

•3 years ago

25 Replies

The 4 sorts of Covid vaccine and how they work

I though you might like the information here about the different types of vaccine being developed:...

I though you might like the information here about the different types of vaccin...

PMRpro

Ambassador•3 years ago

1 Reply

tocilizumab or ...death

https://www.versusarthritis.org/about-arthritis/treatments/drugs/tocilizumab/ "If you’re an adult, you will also be screened for hepatitis B and C infection"...

https://www.versusarthritis.org/about-arthritis/treatments/drugs/tocilizumab/ "...

ignatz

•3 years ago

24 Replies

Methotrexate

Hi a little update seen the rheumatologist yesterday (not the bad one ) I have tapered down to 10mg but I have had jaw pain and limited opening of my mouth...

Hi a little update seen the rheumatologist yesterday (not the bad one ) I have t...

Rottsuzi

•3 years ago

35 Replies

Should I up the pred?

Hi, I need quick advice. Have been reducing using Dead slow method from 10mg starting about November last year (for PMR) after being on 10 mg since March 2020...

Hi, I need quick advice. Have been reducing using Dead slow method from 10mg st...

oscarandchloe

•3 years ago

11 Replies

Hand pain

Hello PMR diagnosed in Nov 2020 and now on 2.5mg prednisolone and felt I was doing really well, until the onset of hand pain. It started with slight...

Hello PMR diagnosed in Nov 2020 and now on 2.5mg prednisolone and felt I was do...

Marigold3

•3 years ago

22 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2021

Adcal D3

Mood Swings

Osteoporosis and osteopenia

Medicinal experiences

Another update …

Having to wait.

A bit gutted 😞

Dental braces at 72

Sore and swollen tongue

Cateract op.

Recently diagnosed with GCA. What the hell ! Update !

Covid jab

Valued Advice

PMR question

Immunosuppresants and vaccine efficacy

Any advice on Statins?

Nausea

An update....vision and flare~!

Dilemma

PMR and heart disease?

Help!

Query - Adrenals and UTI

Small things

Medical Cannabis

Body temperature control

The 4 sorts of Covid vaccine and how they work

tocilizumab or ...death

Methotrexate

Should I up the pred?

Hand pain

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