Tingling in the feet

[shella]

Should I be concerned about toes feeling tingly when I lie down? I have vasculitis GCA and poor circulation but this is something new.

[PMRpro Ambassador]

Have you spoken to the GP? It could be a trapped nerve - something changing when you lie down. Or it could be the early stages of peripheral neuropathy - what medications are you on? Pred I assume with GCA, that can occasionally cause it.

You say vasculitis GCA - by that do you mean GCA AND some other form of vasculitis? Do you know why you have poor circulation?

[shella in reply to PMRpro]

Hi… thanks for your reply. Just hydrocortisone of 5 a day ….always had very poor circulation with chilblains as a child and always feeling cold …,except for now! ESR and CRP and bloods all normal. Haven’t spoken to doc…as ok when I am walking.

[PMRpro Ambassador in reply to shella]

Why hydrocortisone? Is that for adrenal insufficiency rather than to manage GCA?

[shella in reply to PMRpro]

Was put on that back in 2013 as bad reaction to everything else …, also PMR… so far only toes

[shella]

Never had adrenal test as nobody thought it necessary when I mentioned it

[shella]

Under a lot of stress right now as lost my dearest son to Covid …, maybe causing all the stomach problems too..,,

[Kendrew in reply to shella]

So very sorry to hear such sad news. You must miss your son very much and I'm sure the pain of that loss must be unbearable. Sadly I can't make things better for you or change anything thats happened, but I can tell you that I know every single person on this forum who has read your post, will have you in their thoughts and will be sending you their love at such a sad time. ❤❤️

[PMRpro Ambassador in reply to shella]

Hugs - nothing anyone can say to make that feel any less awful xxx

[SheffieldJane in reply to shella]

Oh shella, I am so sorry that you are suffering so much. I cannot imagine anything worse. Sending you love and strength to get through this!My feet burn at night and tingle especially after a glass of wine or spicy food, I also have psoriasis on my feet. I find a base cream gives me some ease.

[winfong in reply to SheffieldJane]

I put aloe vera on mine before bed, then keep them uncovered - very effective

[Rachmaninov2 in reply to winfong]

I put aloe vera gel on my hands which gives me temporary relief from Inflamatory Arthritis pain.

[Longtimer in reply to shella]

So sorry for you, have an only son can't imagine how you are feeling...heartbreaking...thinking of you.....

[123-go in reply to shella]

I am so very sorry for your loss and my heart goes out to you, shella. ❤️

[2013mayo in reply to shella]

So sorry for your loss.Sending you a big hug.

Xx 😍

[Hidden in reply to shella]

Thinking of you in your loss.

[DorsetLady PMRGCAuk volunteer in reply to shella]

🌸

[shella]

Thank you so much it’s very painful…. I think I am still trying to come to terms with everything 💗

[Here1am in reply to shella]

I’m so very sorry. Our hearts are with you.

[Sophiestree in reply to shella]

Utterly unbearable for you. Sending you huge hugs x

[LovetheRoses]

You have a lot to cope with just now, so I'm sure that the more hugs you get the better. Sending you hugs too.

[Bcol]

So sorry to hear your news, please add my hugs to all the others. Xx

[Poshdog]

More hugs xx

[Brantuk]

Hi Shella it may well be the beginnings of peripheral neuropathy as indicated above. I had what I call the "frog leg" tests about 4-5yrs ago when my toes started tingling. They put probes on your legs then pass a current to get a twitch and a graph reading. It turns out that I'd lost a couple of nerve systems in my legs due to poor circulation from my GCA - the nerve dies off when it can't get enough blood. It's wierd because there are other major nerve systems in the legs which compensate, so my legs, feet, and all muscles work fine as normal, but they feel numb. I can touch the skin anywhere (feet & legs) and feel it instantly - but walking around they feel tingly, numb, and stiff. Hope that helps.

[shella in reply to Brantuk]

Thank you …. did you ask your doctor for this test? Better go once I feel safer after second vaccination which I have been delaying. So far the toes feel tingly and sometimes lack of feelings but it’s ok when I am moving.

[shella in reply to shella]

I put achy legs - usually tops - down to heat right now ….when i wriggle toes feels a bit strange maybe better have word with doctor.,,,,

[Brantuk in reply to shella]

I didn't ask my rheumy for the test - he's been monitoring my GCA and I just mentioned my feet were getting tingly and he sent me straight for the test. Bear in mind this was a few years ago in pre covid times. Your "tingly but ok when moving" symptoms sound very similar mine. I'd have a chat with your doctor even if just to eliminate peripheral neuropathy.

[Oumaof2]

shella, there are no words... Sending hugs and strength...

[shella]

Thank you everyone for your thoughts and hugs. Robert was a healthy 49 year old so we are all still in shock.

[Zulily]

So very, very sorry for your loss. Thinking of you. Take care. ❤️❤️❤️❤️