Too hot!!: I used to love every moment of hot... - PMRGCAuk

PMRGCAuk

20,643 members38,793 posts

Too hot!!

humlies profile image
42 Replies

I used to love every moment of hot weather, which really brought me to life. Now I find I can't wait for the cooler evenings to arrive..is this, I wonder, an effect of Prednisilone, or PMR, or just advancing age!

This forum is wonderful and I feel so supported by all of you.

Written by
humlies profile image
humlies
To view profiles and participate in discussions please or .
42 Replies
Kendrew profile image
Kendrew

I suspect its a bit of everything. I love the sunshine but high weather temperatures leave me feeling much more fatigued. I'm ok if I can stay cool.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

A bit of all three probably….,and as discussed yesterday or day before, we don’t cope with extremes of weather very well, especially with illness or age!

Seacat30 profile image
Seacat30

Not sure whether I am sweating from the heat or the pred. Hate it anyway.

humlies profile image
humlies in reply to Seacat30

At least as someone said a few years ago we might not be putting on weight.....?

Pinkpepper profile image
Pinkpepper in reply to Seacat30

Same here any exertion or walking and my head and neck are drenched 🥵🥵🥵

humlies profile image
humlies in reply to Pinkpepper

However the drenching probably makes us cooler? I think that' s the idea of sweat.

2013mayo profile image
2013mayo

Phew!! I know the feeling, unable to do anything, just about have my shower in the mornings and very quickly clean the floors.

Didn’t sleep last night as I was just too hot, I used to love the hot weather but not this hot.

It’s only for a few more days.

Xx

humlies profile image
humlies in reply to 2013mayo

You're one up on me - I can't remember when I last cleaned the floors - at least I am doing a bit of gardening. We ae very fortunate to live near the sea - a 10 minute walk down (but then you have to come up..)

Seacat30 profile image
Seacat30

Glad that I am in Brighton. The South West sounds much worse.

Dorsetgirl17 profile image
Dorsetgirl17 in reply to Seacat30

Dorset was 29 degrees yesterday haven’t been out in garden for few days quite unbearable.

humlies profile image
humlies

Ah yes - we are in south Devon where it never (usually) gets hot, but our thermometer is nudging 30.

Joanbill13 profile image
Joanbill13

I feel dreadful. Just outside London. Roll on Friday

humlies profile image
humlies in reply to Joanbill13

Yes I gather London is as hot as Devon.

Joanbill13 profile image
Joanbill13 in reply to humlies

Yep ☹️

SheffieldJane profile image
SheffieldJane

Me too. Like a limp rag. I last about 6 minutes in the garden.

York54 profile image
York54

I manage to water the garden in the evening when it’s cooled off a little. Absolutely no pottering in the day, 3 showers yesterday !!!

ChrisinNam profile image
ChrisinNam in reply to York54

Extra showers during the day certainly make you feel better, even if only temporarily. I found that actually NOT putting moisturiser on arms and legs also helps the sweat to dry off, cooling me down. But the main thing is DRINK PLENTY OF WATER. This from someone who lived in a semi-arid country for 24 years actually in the desert for 18 months.

HeronNS profile image
HeronNS in reply to ChrisinNam

When it gets too humid sweat doesn't cool you off. It's been 100% humidity here (Nova Scotia) for days. Fortunately temperature dropping so with a breeze it's now quite pleasant. I remember returning home from 10 days holiday in Egypt during August a few years ago, and feeling far more miserable at home in my garden - it was the humidity at home!

humlies profile image
humlies in reply to HeronNS

Yes, I remember being in Las Vegas, of all places, when it was about 45, and because it was so intensely dry it was almost pleasant!

HeronNS profile image
HeronNS in reply to humlies

One just keeps on drinking (water) and moving very slowly! 😅🍺

Pixix profile image
Pixix

It was 34 degrees here in the New Forest yesterday. We left home! But went for a walk in the deeply shaded woods then had a shady picnic in what is usually a windy area! About 2pm a lovely breeze started so we stayed there with books, crochet, puzzles, watching the fawns eat etc! Sometimes, if you look, there’s a cooler alternative! Tomorrow we are packing a supper picnic and going into the forest in the evening! I realise not everybody has this choice, but if you have a public wooded area preferably on a hill, or the coast where’s there’s often a breeze, it may help! We are loving it!

Pixix profile image
Pixix in reply to Pixix

BUT forgot to say the dripping pouring head sweats are back! They were part of my initial diagnosis and I do have shoulder pain too! But flare is due to dropping steroids back from 5 to 3.5 after 2 weeks at 5mg I think....should have gone to 4.5mg first, then 4mg!

Pinkpepper profile image
Pinkpepper in reply to Pixix

Me too and only on 2mg

humlies profile image
humlies in reply to Pinkpepper

Do hope you feel cooler soon.

humlies profile image
humlies in reply to Pixix

Probably a good idea; I am struggling to go down to 4 1/2 from 5.

herdysheep profile image
herdysheep in reply to Pixix

That's a huge drop from 5 to 3.5mg. Since being on 10mg I have only ever dropped by .5 at a time, and that on the dead slow method. Now that I have reached 5, going even slower hoping to avoid the worst of the adrenal stuff.

Pixix profile image
Pixix in reply to herdysheep

Yes but I’d only leapt back up to 5mg for two weeks as per sick day rules and hoped then to be able to go directly back to my norm which had become 3.5. Normally I reduce by 0.5mg each time.

herdysheep profile image
herdysheep in reply to Pixix

Ahhh, that's different, then. Sorry, hadn't realised.

Pixix profile image
Pixix in reply to herdysheep

No problem, I should have put more info!

ChrisinNam profile image
ChrisinNam in reply to Pixix

Excellent idea!

S4ndy profile image
S4ndy

I can't cope well with the heat. I find it best to stay indoors with light clothing and a fan. The less I move about the more comfortable I am. Heat really saps my energy. We keep a stock of low calorie ice pops in our freezer to have as they are refreshing and hydrating :)

Pinkpepper profile image
Pinkpepper

🥵🥵🥵🥵

humlies profile image
humlies

Heard an interesting tip on Classic FM for coping with the heat - put aftershave on the soles of your feet......

Constance13 profile image
Constance13 in reply to humlies

😂😂😂 I wonder how many will try that. Gave me a laugh anyway.👵🏻

humlies profile image
humlies in reply to Constance13

Me too!

HeronNS profile image
HeronNS in reply to humlies

We've got a tv commercial running these days of a couple sitting outside drinking (eating?) something cold, with their feet immersed in a child's play pool.

humlies profile image
humlies in reply to HeronNS

been there too - when staying, along with our Vancouver family, in Oregon!

I can't stick the heat either and yet I used to love sitting in the sun! My feet are more swollen than usual too which is pretty uncomfortable. I'm in Lisburn, Northern Ireland and we've exceeded 30 degrees today, really not used to it!

humlies profile image
humlies in reply to Sufferinginsilence

I never think of Ireland as being hot! let's hope for your sake that you receive the change of weather first.

Sufferinginsilence profile image
Sufferinginsilence in reply to humlies

You're absolutely right Humlies - it is unusual for us to have such heat. I think that's why I'm struggling so much!

humlies profile image
humlies in reply to Sufferinginsilence

I am thinking of you now and hope you have the cooling breeze that we now have in Devon

PMRpro profile image
PMRproAmbassador in reply to Sufferinginsilence

My best friend is from Lisburn, she lives in Germany though

You may also like...

Hot flushes, sweating and hot weather!

and will cool overnight to 14 which will be fantastic. I have a good life, I have everything I...

HOT HOT HOT

I keep waiting up sweating cobs 4times last night . Is this the pred or.a combination of PMR? lot...

symptoms in hot weather

I’m wondering whether there’s a link between extremely hot weather, and symptoms of PMR/pred side...

Fatigue and very hot flushes

painful even an old break in my wrist is giving me jip. When these hot flushes come on I feel...

Hot flushes and cramp!

surge as a menopausal flush but often feeling unusually hot. Also I’m suffering badly with leg,...