Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,643 members • 38,793 posts

All posts for July 2021

Interesting

https://www.medpagetoday.com/rheumatology/lupus/93543?xid=nl_mpt_SRRheumatology_2021-07-18&eun=g1806612d0r&utm_source=Sailthru&utm_medium=email&utm_campaign=Rhe

https://www.medpagetoday.com/rheumatology/lupus/93543?xid=nl_mpt_SRRheumatology_...

kimsaunsc

•3 years ago

2 Replies

Checking to see if anyone out there has been diagnosed with PMR before Their 50s?

I was just recently diagnosed (one week ago) with PMR. I had all the classic symptoms. Both my shoulders and my hips. Also affected my hands greatly at times....

I was just recently diagnosed (one week ago) with PMR. I had all the classic sy...

RWH-

•3 years ago

32 Replies

4 mgs for a year now

Seem to be stuck on 4 mgs. Have moved house with 99 year old mother and autistic son and now in rented, which is probably not helping. Can really answer my...

Seem to be stuck on 4 mgs. Have moved house with 99 year old mother and autistic...

Poshdog

•3 years ago

15 Replies

Want to take advantage of all our features? Just log in!

Encouraging news on the vaccine front

https://www.rheumatologynetwork.com/view/autoimmune-rheumatic-disease-does-not-influence-immune-response-against-covid-19 This has just been posted on the...

https://www.rheumatologynetwork.com/view/autoimmune-rheumatic-disease-does-not-i...

PMRpro

Ambassador•3 years ago

45 Replies

Thin skin

Hi can anyone suggest a bandade to put on ripped skin without making it worse.

Denbo51

•3 years ago

28 Replies

Peeling legs

I'm down to 3mg prednisolone from starting on 15mg. My question is my skin on legs and arms have got very thin and the least knock I bruse like red blood....

I'm down to 3mg prednisolone from starting on 15mg. My question is my skin on l...

Denbo51

•3 years ago

8 Replies

Prednisone

I took pred at 7.30 this morning 10mg but I think I may need more I’m in pain can I take 5 mg extra now and then 15 mg in morning to see if works he maybe...

I took pred at 7.30 this morning 10mg but I think I may need more I’m in pain ca...

Uglow

•3 years ago

4 Replies

Prednisone

Hi all Iv cut down from 12.5 to 11.1 now 10mg My consultant wanted me to go to 12.5 to 10 in one go but I kinda followed advice on here. I cut down over one...

Hi all Iv cut down from 12.5 to 11.1 now 10mg My consultant wanted me to go to ...

Uglow

•3 years ago

13 Replies

Can any one please help me understand these dexa scan readings?

I posted earlier about my rheumatologist wanting me to go on AA. And after much soul searching and help from this forum I am not going to take it. Reasons of...

I posted earlier about my rheumatologist wanting me to go on AA. And after much ...

Reddev

•3 years ago

10 Replies

Newly diagnosed.

Hi i am new here. I had stiffness etc from just after my first covid vaccine and have seen someone else mention theirs started after the first one too so so im...

Hi i am new here. I had stiffness etc from just after my first covid vaccine and...

Buttonshutton

•3 years ago

108 Replies

Magnesium Supplements

I'm taking 350mg soluble magnesium carbonate every other day, as suggested by my GP before I was diagnosed. However, I have read that Magnesium Glycinate is...

I'm taking 350mg soluble magnesium carbonate every other day, as suggested by m...

Pr0jection

•3 years ago

22 Replies

Calling UK tocilizumab or epipen users: How do you dispose of your self-injector? Who arranges it?

Someone on the Vasculitis forum is encountering difficulty - is expected to attend the hospital to be handed her self-injection medication because they claim...

Someone on the Vasculitis forum is encountering difficulty - is expected to atte...

PMRpro

Ambassador•3 years ago

53 Replies

Devastating floods in Germany

Watching the evening news and feeling so sorry for the people affected by the floods in Germany and other places. I hope you and your loved ones are safe this...

Watching the evening news and feeling so sorry for the people affected by the fl...

Purplecrow

•3 years ago

5 Replies

Do the maths!

Do these GP’s know how to do the maths?

madhouse1

•3 years ago

40 Replies

Fluid in the legs, anyone? swelling?

I'm just really looking for any tips...I'm sure I'm not alone in this. My legs swell even though I wear compression Tubigrip all the time. As you see below,...

I'm just really looking for any tips...I'm sure I'm not alone in this. My legs ...

Grammy80

•3 years ago

59 Replies

Bones

Not sure whether to take Advil for bones. Tbh I’m a bit scared. My dexa said no change since 2015 but the Gp keeps saying I MUST take because of being on...

Not sure whether to take Advil for bones. Tbh I’m a bit scared. My dexa said no ...

Uglow

•3 years ago

28 Replies

Cystitis

Good morning all. I remember reading someone’s recommendation for bicarbonate of soda as a possible relief for cystitis. I can’t find the post. I would...

Good morning all. I remember reading someone’s recommendation for bicarbonate of...

Ana-16

•3 years ago

3 Replies

Update re What to do? I’m exhausted!

Well my GP suspects that I am having a flare up of my PMR. I’m one way I’m pleased as the results from all the bloods taken have been good. My inflammation...

Well my GP suspects that I am having a flare up of my PMR. I’m one way I’m pleas...

Spittal9

•3 years ago

11 Replies

Aches and pains but not PMR/GCA

I’m now down to 10mg pred , having come down from 60mg, and I’ve started to ache all over and painkillers are pretty useless. Spoke to the GP, who immediately...

I’m now down to 10mg pred , having come down from 60mg, and I’ve started to ache...

PuttyPenguin

•3 years ago

29 Replies

Methotrexate and CoVid risk

Its been a very hard year for most of us. I have lost a son a sister a job and career, to top it all I was not seen by the Rheumatologist for obvious reasons....

Its been a very hard year for most of us. I have lost a son a sister a job and c...

Travs

•3 years ago

24 Replies

Bit of Advice

Hey everyone, I'm after more advice. So I've done 3 days on 10mg (dropping from 12.5mg). I kmow it's not long but am starting to feel some of the old symptoms...

Hey everyone, I'm after more advice. So I've done 3 days on 10mg (dropping from...

Shiba64

•3 years ago

27 Replies

CEV and post lockdown UK

As we near the so called ‘Freedom Day’ in the UK when all previous lockdown measures are set aside we have to think about protecting ourselves. Double vaxed -...

As we near the so called ‘Freedom Day’ in the UK when all previous lockdown meas...

Bachfugue

•3 years ago

36 Replies

More on HELP #3 Day in Hospital Possible Giant Cell Arteritis Biopsy Tomorrow. San Antonio Rose

All, More to add- after much discussion with Ophthalmology late yesterday afternoon, it was decided, based on pictures I sent them, that I might have shingles...

All, More to add- after much discussion with Ophthalmology late yesterday after...

SARose

•3 years ago

6 Replies

Minor Gum Surgery

My periodontist will be removing a piece of tooth left in from a dental implant. He suggested I increase my prednisone dosage from 6.5 mg to 15 mg for a few...

My periodontist will be removing a piece of tooth left in from a dental implant....

Trident58

•3 years ago

12 Replies

Blood test results

Finally managed to get a copy of my latest BT results, which included previous results and actually spoke to my Rheumy but, unfortunately, before I had the...

Finally managed to get a copy of my latest BT results, which included previous r...

Flivoless

•3 years ago

16 Replies

Few questions

Hi all I just been reading comments on Facebook pmr page about gca symptoms. There was a few I wondered if they were right. So going to ask. That pain both...

Hi all I just been reading comments on Facebook pmr page about gca symptoms. The...

Hidden

•3 years ago

13 Replies

Swollen ankles and a bit of good news!

I’ve had a phone all from a doctor from my surgery asking how I was! Well he got the lot, he listened and agreed that what I’d said was what the Rheumy had...

I’ve had a phone all from a doctor from my surgery asking how I was! Well he go...

madhouse1

•3 years ago

21 Replies

Adrenals

Evening all. I am having my adrenal function tested Friday and the information on the letter says it should take about half an hour. Bit surprised about that....

Evening all. I am having my adrenal function tested Friday and the information o...

SuziCutie

•3 years ago

30 Replies

HELP #3 Day in Hospital Possible Giant Cell Arteritis Biopsy Tomorrow. San Antonio Rose

Friends, Spent Saturday in the ER, omitted Sunday early AM to hospital. After all the consultations and tests released Monday afternoon. I'm scheduled for a...

Friends, Spent Saturday in the ER, omitted Sunday early AM to hospital. After ...

SARose

•3 years ago

11 Replies

Update to my PMR journey 10 months in

Good morning from the US! Just wanted to provide an update to my journey and recent rheumi telehealth appt. I was diagnosed Sept. 2020 and started on 20mg...

Good morning from the US! Just wanted to provide an update to my journey and rec...

SallyLeon

•3 years ago

18 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2021

Interesting

Checking to see if anyone out there has been diagnosed with PMR before Their 50s?

4 mgs for a year now

Encouraging news on the vaccine front

Thin skin

Peeling legs

Prednisone

Prednisone

Can any one please help me understand these dexa scan readings?

Newly diagnosed.

Magnesium Supplements

Calling UK tocilizumab or epipen users: How do you dispose of your self-injector? Who arranges it?

Devastating floods in Germany

Do the maths!

Fluid in the legs, anyone? swelling?

Bones

Cystitis

Update re What to do? I’m exhausted!

Aches and pains but not PMR/GCA

Methotrexate and CoVid risk

Bit of Advice

CEV and post lockdown UK

More on HELP #3 Day in Hospital Possible Giant Cell Arteritis Biopsy Tomorrow. San Antonio Rose

Minor Gum Surgery

Blood test results

Few questions

Swollen ankles and a bit of good news!

Adrenals

HELP #3 Day in Hospital Possible Giant Cell Arteritis Biopsy Tomorrow. San Antonio Rose

Update to my PMR journey 10 months in

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