Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,758 members • 39,032 posts

All posts for May 2021

slow taper

Good news ! I have just had a really useful phone appointment with a rheumatologist locum, who was enthusiastic about the idea of a dead slow taper along DL...

Good news ! I have just had a really useful phone appointment with a rheumatolog...

humlies

•3 years ago

9 Replies

Meloxicam as an alternative to prednisone.

A friend of mine has had PMR for approx 6 months and has been taking prednisone during this time. She recently changed her doctor and her new doctor has now...

A friend of mine has had PMR for approx 6 months and has been taking prednisone ...

Hankb

•3 years ago

16 Replies

Been to see respiratory physician

Well I attended my urgent appointment with chest consultant who advised me that at my last hospital admission I had pneumonia with pleurisy. I mentioned PMR...

Well I attended my urgent appointment with chest consultant who advised me that ...

Bev61

•3 years ago

5 Replies

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Prednisilone and PET scan

Following 6 mths of on again off again multiple health issues including digestive and bowel infections, OA and PMR flares. I have seen both a...

Following 6 mths of on again off again multiple health issues including digestiv...

mtrafter

•3 years ago

10 Replies

One more question about flares

I am holding off calling my Rheumy because I am pretty sure he will bump up my Prednisone..don’t want to Continue with this pain in my left foot ( ongoing for...

I am holding off calling my Rheumy because I am pretty sure he will bump up my P...

Darcy2000

•3 years ago

7 Replies

Hydroxychloroquine

Does anyone have experience taking Hydroxychloroquine in order to reduce cortisone?

Does anyone have experience taking Hydroxychloroquine in order to reduce cortiso...

aviva2637

•3 years ago

12 Replies

Could Covid immunization cause PMR remission

After my second Covid injection, I had a wicked PMR flare. But!!! Once the flare subsided, with a temp increase of Pred., my PMR symptoms seem to have...

After my second Covid injection, I had a wicked PMR flare. But!!! Once the fla...

Purplecrow

•3 years ago

19 Replies

Debilitating fatigue

Hi lovely people. I’m currently taking 8.5mg pred , but have overwhelming fatigue and some aching shoulders and tops of legs . I can cope with the aches more...

Hi lovely people. I’m currently taking 8.5mg pred , but have overwhelming fatigu...

Greensleeves

•3 years ago

91 Replies

Why does standing bring on my symptoms rapidly whereas walking doesn’t ?

I find this puzzling. I can walk the dog for an hour a day and feel pretty much ok , maybe I ll need a little nap later, maybe not. But if I stand for anything...

I find this puzzling. I can walk the dog for an hour a day and feel pretty much ...

Seekingasolution

•3 years ago

53 Replies

Tenderness

Hi all thanks for all your info such more helpful than docs who I haven't seen since diagnosis. I wondered if anyone else suffers with soreness and tenderness...

Hi all thanks for all your info such more helpful than docs who I haven't seen s...

Bee2222

•3 years ago

7 Replies

Carpal Tunnel Syndrome

Has anyone had surgery to correct Carpal Tunnel Syndrome and what was the result and experience?

Has anyone had surgery to correct Carpal Tunnel Syndrome and what was the result...

Hidden

•3 years ago

8 Replies

Covid-19 vaccine and PMR

Shortly after receiving my fist dose of Covid-19 vaccine I developed pain in my shoulders, back, buttocks and hips. Around the same time I also pressure washed...

Shortly after receiving my fist dose of Covid-19 vaccine I developed pain in my ...

Flivoless

•3 years ago

26 Replies

Stomach problems

I was wondering I anyone else has got stomach muscle and tummy problems caused by PMR rather than prednisolone or other tablets. I have had stomach muscle and...

I was wondering I anyone else has got stomach muscle and tummy problems caused ...

Clucket

•3 years ago

5 Replies

Am I undoing any good I may have done?

4 mgs has been manageable for last year, really hoping those adrenals are getting their act together. Am moving house now as 99 year old mother needs more care...

4 mgs has been manageable for last year, really hoping those adrenals are gettin...

Poshdog

•3 years ago

23 Replies

Did I take the dose?

I am on 10mgs of prednisolone, I don't know whether I took this morning's dose or not, what should I do? Any ideas? Many thanks

I am on 10mgs of prednisolone, I don't know whether I took this morning's dose o...

ellarowan

•3 years ago

8 Replies

Flare question

Before I jump the gun and assume it’s a flare as I have just dropped from 9 mg to 8 mg wondering what others on this site’s thoughts are on this question .Can...

Before I jump the gun and assume it’s a flare as I have just dropped from 9 mg t...

Darcy2000

•3 years ago

14 Replies

SST Test

I have been booked in for SST Test for Cortisol in a months time- mid June. Told to stay on my current 5mg. I feel terrible and now realise that I last felt...

I have been booked in for SST Test for Cortisol in a months time- mid June. Tol...

ignatz

•3 years ago

25 Replies

Post Covid-19 Vaccinations Test Results

Well, this is probably almost useless. Was taking 4.5mg/d Pred at the time of the 2 Moderna shots. The second was on 3/26. I know my antibody titer against the...

Well, this is probably almost useless. Was taking 4.5mg/d Pred at the time of th...

Boss302Fan

•3 years ago

34 Replies

Blurred vision and floaters

I have been reducing my steroids down by 1mg a month and am now at 13mg but in the last two weeks my eyes have got some blurred version and some floaters. Is...

I have been reducing my steroids down by 1mg a month and am now at 13mg but in t...

Maggie1313

•3 years ago

14 Replies

Please let it go!

My abrupt remark was an observation! Please don’t let it distract from good work on here. No offence meant.

My abrupt remark was an observation! Please don’t let it distract from good work...

Uglow

•3 years ago

5 Replies

2nd Jab

Good Morning everyone. Just a bit of lighthearted contemplation for a quiet moment. Had my 2nd jab early yesterday morning and as with the first one, lucky...

Good Morning everyone. Just a bit of lighthearted contemplation for a quiet mom...

Kendrew

•3 years ago

25 Replies

Low cortisol level?

Hi all! I am currently on alternating 7/6mg prednisolone and rheumatologist wants me to reduce as much as possible, preferably coming down 1mg every 2 weeks. I...

Hi all! I am currently on alternating 7/6mg prednisolone and rheumatologist want...

hjbradshaw

•3 years ago

6 Replies

Hydroxychlorquinine

Hydroxychlorquinine- after 3 years of PMR type symptoms and increased pain and stiffness have just been started on this drug - anyone had much experience of...

Hydroxychlorquinine- after 3 years of PMR type symptoms and increased pain and s...

bakingD

•3 years ago

16 Replies

2nd covid jab

Hi all received my appointment for 2nd covid jab on tuesday I'm just hoping I dont have to up my pred after this like with the 1st but if it's anything like...

Hi all received my appointment for 2nd covid jab on tuesday I'm just hoping I do...

Hidden

•3 years ago

10 Replies

Would a bad fall cause a flare up?

I have been on 15mg of pred for 3 weeks now. 4 days ago I had a bad fall, full stretch on a road and landed on my right side/arm/knee/hand. I grazed my knee...

I have been on 15mg of pred for 3 weeks now. 4 days ago I had a bad fall, full s...

MiloCollie

•3 years ago

27 Replies

Actemera (TCZ) Side Effects?

Have been on TCZ 14mos. Initially had some swelling in ankles/feet; for the last 6mos have had tingling in fingers & toes but that has now experiencing some...

Have been on TCZ 14mos. Initially had some swelling in ankles/feet; for the last...

jarn

•3 years ago

21 Replies

Tapering off Tocilizumab injections

Has anyone got any experience of tapering off tocilizumab injections that they would like to share? I have been on weekly injections (for GCA) for over 8...

Has anyone got any experience of tapering off tocilizumab injections that they w...

Frenchduck

•3 years ago

61 Replies

Heart muscles

As PMR affects the muscles, does it affect the heart which is a large muscle.

Gardenbay

•3 years ago

26 Replies

Protocol for changing Rheumatologist

Hello! I am experiencing ongoing conflict with my rheumatologist. My insurance is a huge networked operation, and there are other rheumatologists I could...

Hello! I am experiencing ongoing conflict with my rheumatologist. My insurance ...

Snerd

•3 years ago

8 Replies

I can't help feeling that pmr symptoms starting 2 weeks after 1st covid vaccine is a coincidence. Anyone else had this?

This is my first post/question and feeling a little overwhelmed by the whole thing.

This is my first post/question and feeling a little overwhelmed by the whole thi...

Trainy

•3 years ago

21 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2021

slow taper

Meloxicam as an alternative to prednisone.

Been to see respiratory physician

Prednisilone and PET scan

One more question about flares

Hydroxychloroquine

Could Covid immunization cause PMR remission

Debilitating fatigue

Why does standing bring on my symptoms rapidly whereas walking doesn’t ?

Tenderness

Carpal Tunnel Syndrome

Covid-19 vaccine and PMR

Stomach problems

Am I undoing any good I may have done?

Did I take the dose?

Flare question

SST Test

Post Covid-19 Vaccinations Test Results

Blurred vision and floaters

Please let it go!

2nd Jab

Low cortisol level?

Hydroxychlorquinine

2nd covid jab

Would a bad fall cause a flare up?

Actemera (TCZ) Side Effects?

Tapering off Tocilizumab injections

Heart muscles

Protocol for changing Rheumatologist

I can't help feeling that pmr symptoms starting 2 weeks after 1st covid vaccine is a coincidence. Anyone else had this?

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