Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,758 members • 39,031 posts

All posts for May 2021

Abrupt

Some people on here are a bit abrupt. Lots of us are learning about PMR. #bekind.

Some people on here are a bit abrupt. Lots of us are learning about PMR. #bekind...

Uglow

•3 years ago

27 Replies

Vitamin D update

Update on previous chats re Vitamin D finally have an update after speaking to Rheumatologist. My Vitamin D blood level is 38 so not as high as should be. I...

Update on previous chats re Vitamin D finally have an update after speaking to R...

daffodilqueen

•3 years ago

2 Replies

Taking more pred for a flare, not working

I had a 2nd Covid jab (AZ) about 10days ago. The next day I had pain in my legs. I normally have shoulder pain but am used to it and it doesn't stop me doing...

I had a 2nd Covid jab (AZ) about 10days ago. The next day I had pain in my legs....

Daisymay

•3 years ago

4 Replies

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Prednisolone - Side affects on Muscles and Tendons

For months I have struggled with tendonitis and pains and weakness in my arms which I thought was the PMR but after a lot searching think the likely cause is...

For months I have struggled with tendonitis and pains and weakness in my arms wh...

Liby57

•3 years ago

10 Replies

dexa scan, how often?

I 'm wondering how often you PMR sufferers are offered a dexa scan in the UK? I have osteoporosis, had a dexa scan going on for two years ago, and because I am...

I 'm wondering how often you PMR sufferers are offered a dexa scan in the UK? I ...

Tiredcat

•3 years ago

25 Replies

Possible ulcerated oesophagus!

I've had back pain recently that doesn't feel like PMR and is accompanied by acid reflux. Went to see the doctor today and she feels it might be referred pain...

I've had back pain recently that doesn't feel like PMR and is accompanied by aci...

WillOllier

•3 years ago

12 Replies

Mattress

Hi all, what sort of mattress is every using? Ive always like soft/medium so when I bought my new one in October last yr I thought I would try a memory foam...

Hi all, what sort of mattress is every using? Ive always like soft/medium so whe...

Hidden

•3 years ago

54 Replies

Long covid

Has anyone noticed the symptoms of long covid are similar to polymyalgia,fybromyalgia, ME it’s scary Iv only been diagnosed with poly 2 months The tiredness...

Has anyone noticed the symptoms of long covid are similar to polymyalgia,fybromy...

Uglow

•3 years ago

4 Replies

Could these be Pred symptoms?

I have read a few things which have all been really helpful and has made me wonder if some of the things I am experiencing are pred symptoms and others not. I...

I have read a few things which have all been really helpful and has made me wond...

Sophiestree

•3 years ago

12 Replies

NO ANTIBODIES

Two months after Moderna Covid vaccines and becoming ill with GCA two weeks after, I find out today from test I have ZERO antibodies to Covid. This affirms my...

Two months after Moderna Covid vaccines and becoming ill with GCA two weeks afte...

peanutann

•3 years ago

17 Replies

Covid 19 Vaccine

As anyone gotten Covid after they were fully vacated and if so how bad was it ?

As anyone gotten Covid after they were fully vacated and if so how bad was it ?...

smiley67

•3 years ago

2 Replies

Raised CRP and fall

Hi, Another quick question- where would we be without this site? 🤪 probably! I had a nasty tumble over a large garden pot the day before I had blood tests and...

Hi, Another quick question- where would we be without this site? 🤪 probably! I ...

Bubble56

•3 years ago

3 Replies

It's time for the Ecclesiastical Charity donations voting - so over to ALL of you, starts Sunday week, make a note of it!

Every year this charity hands out donations to charities in the UK. The ones that get the most nominations get the money - and PMRGCAuk has benefited in past...

Every year this charity hands out donations to charities in the UK. The ones tha...

PMRpro

Ambassador•3 years ago

13 Replies

Help.

I'm back. After all these muscle spasms I'm having in my back I have more or less ceased up this morning in my arms and hips after coming down from 9mgs to 8...

I'm back. After all these muscle spasms I'm having in my back I have more or le...

Cosmos22Marigold

•3 years ago

5 Replies

Adrenal

Hi I don’t know about adrenal function and what part it plays related to pmr and prednisone. Please can someone explain. Thank you

Hi I don’t know about adrenal function and what part it plays related to pmr and...

Uglow

•3 years ago

2 Replies

Muscle wasting

Hi everyone, I’ve noticed over the past few months I’ve lost muscle mass, this was never a problem before pred, I understand that this can happen with long...

Hi everyone, I’ve noticed over the past few months I’ve lost muscle mass, this...

2013mayo

•3 years ago

27 Replies

Actemra at 3mg prednisone for GCA

Hi, I’m currently down to 3 mg of prednisone from 60mg almost exactly a year ago. My bloods are a bit up and down but mostly good. I’m pretty active but get...

Hi, I’m currently down to 3 mg of prednisone from 60mg almost exactly a year ago...

Eliza4

•3 years ago

13 Replies

Blurred Vision from GCA

Has anyone who had blurred/double vision from GCA ever regained normal vision? Is there any therapy or glasses that are known to help? I have appt with...

Has anyone who had blurred/double vision from GCA ever regained normal vision? I...

peanutann

•3 years ago

12 Replies

Have other members of thr pred 'club had trouble losing weight

I have been taking pred now for pmr for ten years and have reached a low dose of 5mg only once for about a year then the inflammation came back. I am now at...

I have been taking pred now for pmr for ten years and have reached a low dose of...

thepainofit

•3 years ago

33 Replies

Physio or chiropractor

Can anyone advise me on the above please. I have had 3 weeks of muscle spasms in my back. Simply crippling. Dr said a physio would phone - she did 4 days...

Can anyone advise me on the above please. I have had 3 weeks of muscle spasms ...

Cosmos22Marigold

•3 years ago

29 Replies

Reducing steroids

Hi, a quick question! I had to increase Pred from 6.5mg to 8mg for a month after raised crp and esr levels. Now levels are normal can I go straight back to...

Hi, a quick question! I had to increase Pred from 6.5mg to 8mg for a month afte...

Bubble56

•3 years ago

4 Replies

Heart issues

This is interesting! https://www.tctmd.com/news/even-low-dose-steroids-increase-risk-cvd

This is interesting! https://www.tctmd.com/news/even-low-dose-steroids-increa...

Hidden

•3 years ago

4 Replies

Newbie here

Hi all I was diagnosed with PMR last month and find this forum extremely helpful and informative, it’s good to share stories and give hope and support to other...

Hi all I was diagnosed with PMR last month and find this forum extremely helpful...

Basil20

•3 years ago

15 Replies

I thought I’d cracked it but no!

Good morning all, For the last two days I have taken my 12.5 mg enteric coated Pred at 12pm (bedtime) and felt so much better the next morning. I thought I’d...

Good morning all, For the last two days I have taken my 12.5 mg enteric coated P...

Pangolin43

•3 years ago

5 Replies

Atrial fibrillation

Have any of you been diagnosed with atrial fibrillation during your PMR journey? Last weekend I had heart palpitations and in a panic my husband called...

Have any of you been diagnosed with atrial fibrillation during your PMR journey...

Hidden

•3 years ago

8 Replies

ALENDRONIC ACID - Really reluctant to start using this - should I have concerns?

I am 67 and After three and a half years of having my PMR supervised by my GPs, I finally asked to see a Rheumatologist. I seem to have been stuck in 2.5mg of...

I am 67 and After three and a half years of having my PMR supervised by my GPs, ...

MaritimeMags

•3 years ago

22 Replies

The Anxious History of Understanding Cortisol

Google the above to find out the amazing history of cortisol.

pegpowell

•3 years ago

13 Replies

Second visit to endocrinology today.

Second visit to endocrinology today. I originally went to the endocrinologist because of low blood sugar. She put on a continuous glucose monitor and gave me...

Second visit to endocrinology today. I originally went to the endocrinologist be...

Karenjaninaz

•3 years ago

13 Replies

Pred question.

Just wondering ... I take my pred dose in early hours of the morning and taking yogurt with it is not too much of an issue but not ideal at that time. I’m...

Just wondering ... I take my pred dose in early hours of the morning and taking ...

LemonZest11

•3 years ago

24 Replies

Tendons - calcium

Hi I was wondering if anyone had calcium in their shoulder tendons?? If so what helped it?? An ultrasound found I had this condition plus osteoarthritis. I’m...

Hi I was wondering if anyone had calcium in their shoulder tendons?? If so what ...

Maggie153

•3 years ago

11 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2021

Abrupt

Vitamin D update

Taking more pred for a flare, not working

Prednisolone - Side affects on Muscles and Tendons

dexa scan, how often?

Possible ulcerated oesophagus!

Mattress

Long covid

Could these be Pred symptoms?

NO ANTIBODIES

Covid 19 Vaccine

Raised CRP and fall

It's time for the Ecclesiastical Charity donations voting - so over to ALL of you, starts Sunday week, make a note of it!

Help.

Adrenal

Muscle wasting

Actemra at 3mg prednisone for GCA

Blurred Vision from GCA

Have other members of thr pred 'club had trouble losing weight

Physio or chiropractor

Reducing steroids

Heart issues

Newbie here

I thought I’d cracked it but no!

Atrial fibrillation

ALENDRONIC ACID - Really reluctant to start using this - should I have concerns?

The Anxious History of Understanding Cortisol

Second visit to endocrinology today.

Pred question.

Tendons - calcium

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