Re Vaccinations: Probably with others, I just... - PMRGCAuk

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Re Vaccinations

Frewen1 profile image
17 Replies

Probably with others, I just listened to the Zoe Covid update webinar... the one thing I thought worth repeating here was that indeed, people with auto immune problems should have the vaccine if and when offered - early doubts about this seem to come from the fact that autoimmune compromised people are not included in trials, so there was no data. However, Covid is undoubtedly more dangerous for us than the average, hence vaccination recommended. There is also some evidence that having an autoimmune condition may offer some protection from Covid - people with RA have "much lower rates of

Covid" according to Tim Spector. The only inappropriate vaccine would be a live one, and none of the four main groups being rolled are live vaccines.

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Frewen1 profile image
Frewen1
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17 Replies
Kendrew profile image
Kendrew

I saw this too, and definitely gave me some reassurance that the vaccine can and will offer me some protection despite high dose of steroids. Any protection is better than no protection.

PMRpro profile image
PMRproAmbassador

It would be nice to know whether the low rates in rheumatology patients is actually due to the fact we are conscientious about all the protective measures.

Frewen1 profile image
Frewen1 in reply toPMRpro

Interesting. He certainly seemed to be saying we had some sort of protective immunity conferred by the condition - (the Zoe webinars are all available online, including today’s)

PMRpro profile image
PMRproAmbassador in reply toFrewen1

We don't have an arthritis - it is a vasculitis. The same may not apply.

Frewen1 profile image
Frewen1 in reply toPMRpro

True.

maria40 profile image
maria40 in reply toPMRpro

For those of us who have both it's encouraging.

Highlandtiger profile image
Highlandtiger in reply toPMRpro

I did wonder that too...🤔

Kendrew profile image
Kendrew in reply toPMRpro

I think you're right. Common sense would dictate that being immunosupressed does not give you added protection from covid....or any other infections, but being extra vigilant with protective measures to avoid contracting covid certainly will. I think this is the most logical and likely reason for those figures.

SheffieldJane profile image
SheffieldJane

They are all beginning to sing from the same sheet now.

herdysheep profile image
herdysheep

When I go for my vaccination tomorrow I may be offered choice of Pfizer or AZ as they are doing both in the same centre. Any views on if either would be better for us?

PMRpro profile image
PMRproAmbassador in reply toherdysheep

Don't think anyone knows ...

MrsNails profile image
MrsNails

I haven’t seen it yet, will post update later as to why....

But l had this conversation with my Consultant in June, he said he was expecting to have Wards Full of Rheumy Patients but that was not the case & we discussed Why? We agreed that possibly we as a group were more cautious, sticking to the ‘Rules’ but more were actually ‘Shielding’ than those that were told too.....

Frewen1 profile image
Frewen1 in reply toMrsNails

Hi there, yes your take on it seems to be the received wisdom, but I should like to know what you think if you do watch it ... to my mind he was definitely saying it was the condition, not careful behaviour, that seems to provide some sort of protection - please let me know if I’ve got the wrong end of the stick! The two aren’t mutually exclusive, of course...

PMRpro profile image
PMRproAmbassador in reply toFrewen1

I don't see how they can say which of a variety of factors it may be - could be which medication, increased care of self ...

MrsNails profile image
MrsNails in reply toFrewen1

Will probably be tomorrow as not firing on all cylinders 😴 but yes will let you know x

Frewen1 profile image
Frewen1 in reply toMrsNails

Hope you’re ok xx

Dydee profile image
Dydee

I agree that my auto immune disease made my Covid attack mild but my docs said it was because I was already on steroids when I came down with it. They give steroids to hospital patients with Covid.

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