Losing the plot : I upped my Pred dose from 3mg to... - PMRGCAuk

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Losing the plot

Greensleeves profile image
14 Replies

I upped my Pred dose from 3mg to 10mg when I had Covid.

I started to lower it , then decided to go back up to 10mg while having some health issues .

I then thought I’d go down to 9.5mg . I realised this week I’ve been taking 6.5mg . In my mind I was convinced the 2.5mg tablet was a 5mg . Time to use a pill box , no ill effects apart from tiredness. x

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Greensleeves profile image
Greensleeves
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14 Replies
MrsNails profile image
MrsNails

Sorry to hear you’ve had Covid & l hope you’re recovering OK? Easy mistake at the best of times but a Pill Box is a good idea.

The tiredness could be Post Covid so probably got away with the 6.5mg

Take Care & Speedy Recovery 🌺

Greensleeves profile image
Greensleeves in reply toMrsNails

Hi , I

Thank you, I will use a pillbox , I’m not firing on all cylinders.

Filling the water filter with the kettle etc .

I’ve been out for a 10 minute walk with my son . It was quite surreal and lovely. Legs are throbbing nicely 😆xx 🌺

MrsNails profile image
MrsNails in reply toGreensleeves

Take Care x

Greensleeves profile image
Greensleeves in reply toMrsNails

Bless you and thank you. You too xx

123-go profile image
123-go

No harm done then, hopefully. A pill box is a brilliant idea.

Greensleeves profile image
Greensleeves in reply to123-go

Definitely, I have ordered one from Amazon. x

SnazzyD profile image
SnazzyD

Perhaps this is a bonus, if you’re not suffering that is. Tiredness at 6.5mg is not surprising because your adrenal glands need to start making up the shortfall and at this point they aren’t usually very enthusiastic. However, the only way to get them working is by being challenged at these lower doses and tiredness comes with it, so taking it easy too. Sorry about the Covid; mine took 7 months and I was on 0.5mg at the time. I upped mine a couple of mg for an early week when my lungs felt like they were on fire.

Greensleeves profile image
Greensleeves in reply toSnazzyD

Oh gosh Snazzy , it is horrendous isn’t it. I wasn’t even aware of the aches because I suppose we are used to pain with PMR . I upped to 10mg for a month to support adrenals and lungs . Hospital gave me Dexamethasone on top of Prednisilone.

Did you have Long Covid, or do you think it was post viral.

Personally I don’t think my adrenals will ever get by without Prednisilone now . I know I was stubbornly struggling on 3mg .

Sending you big hugs x

SnazzyD profile image
SnazzyD in reply toGreensleeves

It’s worth a try but really really slowly. The prescribed speed for me was way too fast. I’ve had post viral before, but nothing like what I had after what was no ordinary viral infection.

Greensleeves profile image
Greensleeves in reply toSnazzyD

I will cut down very slowly, I’m awake now calves and hips having a good old ache, protesting about a little walk . Love my electric blanket, it does help .

I’ve read 1 in 3 people can get long Covid in varying degrees . You’re so right it’s the weirdest infection. I’m still getting palpitations. I don’t ever want it again, no thank you.

Take care hope you’re getting the vaccine soon . x

PMRpro profile image
PMRproAmbassador

OTOH - you seem to have successfully reduced ...

Fiddlersmum profile image
Fiddlersmum

I imagine we’ve all done that at some point - I would be lost without my pillbox - hope you’re recovering from Covid x

Greensleeves profile image
Greensleeves in reply toFiddlersmum

The pillbox has been essential these past couple of weeks.

I’m not quite recovered.

It’s difficult to explain, can’t remember simple words and names , but ongoing stress also causes brain fog .

I think it causes changes to the body .

If we’ve got an arterial autoimmune condition, and Covid is vascular it’s sure to have a detrimental affect.

Some of the symptoms during the acute stage were quite horrific .

I hope you’re feeling a little better , with a definite plan in place .

Having some feeling of control in our lives seems to help us .

Let us know how you are .

Big hugs to you xx

Fiddlersmum profile image
Fiddlersmum in reply toGreensleeves

So sorry you are not completely recovered from. Covid - but hoping and praying you will be very soon.

X

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