I have been off Pred since December and for couple of weeks I felt fine. I did notice my hip started to ache but that was something I had before PMR so just put it down to old age and arthritis. Over the last few weeks I have been getting pain in my shoulders esp left side and my hip has got worse. It's nothing like the pain I had at the beginning of PMR and it doesn't stop me from doing normal things, although walking up stairs is uncomfortable in my hip. Last week I had bloods done - (ESR 9, CRP 4). I told GP about my aches and pains but she said that my markers were low so no need to resume steroids. The pain is worse in the morning and it does improve as the day goes on, but never totally goes, esp my hip.
I don't want to go back on Pred if it's not necessary, but I don't want to wait in case it flares up even more and I have to start at a higher dose than I would need now. I really would like your advice - do I hang on a bit and see what happens or do you think I should act now, and if so what dose should I take. I notice that GP has taken Pred off my list of medications that I can order on line so she obviously thinks I'm over it.
Hi, palewolf. The first thing to acknowledge is that people with PMR do not get 'over it', they go into remission and it's perfectly possible for symptoms to return which may be true in your case. The hip pain may we'll be due to arthritis but the shoulder pain is typical of PMR. If over the counter pain killers don't give relief I would advise you to return to your GP. I hope you get to the bottom of things soon.