Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for October 2020

Pain in pelvic girdle

My mother is 86 and had been diagnosed with PMR. She started on15mgs prednisone and started tapering after a month. She hates the idea of being on steroids and...

My mother is 86 and had been diagnosed with PMR. She started on15mgs prednisone ...

Dash21

•4 years ago

7 Replies

Omeprazole alternative

Due to an hiatus hernia I have been on 20mg Omeprazole for severe acid reflux. I now have Osteoporosis which has been linked to long term use of PPI's. Has...

Due to an hiatus hernia I have been on 20mg Omeprazole for severe acid reflux. I...

Golf123

•4 years ago

15 Replies

must carry on

Thank you to everyone who replied to my post. The pain began between my shoulder blades, it then went slightly lower and more painful, it went right across my...

Thank you to everyone who replied to my post. The pain began between my shoulder...

mustcarryon

•4 years ago

5 Replies

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Dry itching skin

Hi I have been struggling with very dry itching skin and rashes . I have tried everything to relieve it. I am tapering down from 20 mgs prednisolone since...

Hi I have been struggling with very dry itching skin and rashes . I have tried e...

Caradomben

•4 years ago

20 Replies

Fingers Crossed Off Pred At Last!!!!

Hi everyone, I have had Pmr for six years and a bit, with all the horrible ups and downs and disappointment of failed reductions. My last reduction from 1mg...

Hi everyone, I have had Pmr for six years and a bit, with all the horrible ups a...

Attic

•4 years ago

31 Replies

Antibiotics- help with aches?

I have nearly completed a course of Flucoloxacillin (for a vaginal infection- pessary ring) and can't believe how much better I feel😊. Could the antibiotics...

I have nearly completed a course of Flucoloxacillin (for a vaginal infection- pe...

Portobello

•4 years ago

23 Replies

Blood sugar monitor

Can any of you recommend a good blood sugar monitor ? I have prediabeties and my reading was 6. I have been cutting out carbs and sugar as recommended by this...

Can any of you recommend a good blood sugar monitor ? I have prediabeties and my...

Lacelady

•4 years ago

45 Replies

must carry on

Good morning to you all. My pmr is under control and the pain has practically gone. however, the last few days i have had severe pain in my ribs and part of...

Good morning to you all. My pmr is under control and the pain has practically g...

mustcarryon

•4 years ago

12 Replies

My first tapering experience

Over this period of time I have found Amitripyline 10mg help me sleep. Ive mangaged only to get down to 30mg from 40mg Prednisolone. Will try 25mg next week. I...

Over this period of time I have found Amitripyline 10mg help me sleep. Ive manga...

cisy

•4 years ago

6 Replies

CBD oil and prednisone

Hi hope everyone is doin ok x I have been tapering down ( as instructed by my rheumatologist got down to 6mgs but my pains starting to get really bad again...

Hi hope everyone is doin ok x I have been tapering down ( as instructed by my ...

Maggie69

•4 years ago

8 Replies

Methotrexate or Not?

I have PMR and have been tapering prednisone for the past year. I amcurrently at 6mg. My rheumy is pushy and insists I decrease by 1mg each month. I am not so...

I have PMR and have been tapering prednisone for the past year. I amcurrently at...

Zareda

•4 years ago

83 Replies

Pain worse in the evening. Mild PMR or something else?

I'm undiagnosed and not on any meds at the moment. My GP initially suspected PMR as I had bilateral pain and stiffness and a raised ESR, but the pain and...

I'm undiagnosed and not on any meds at the moment. My GP initially suspected PMR...

PurpleNDH

•4 years ago

9 Replies

Fatigue

I have been diagnosed with polymialgia for two years. I started on 15mgs pred I tapered down to 3 mgs in a Year, but then had a flare up. I then increased to...

I have been diagnosed with polymialgia for two years. I started on 15mgs pred I ...

bBarnabus

•4 years ago

23 Replies

Monitoring needs re Actemra TCZ

Hi I have seen a reference to at least monthly blood tests, but can't find my own notes. What should we request in terms of monitoring/testing for danger...

Hi I have seen a reference to at least monthly blood tests, but can't find my o...

Sefu

•4 years ago

21 Replies

Tapering at 3 - 2.5 with slight morning pain

I'm DSNS tapering at 3mg - 2.5mg and have slight pain in right shoulder and hip when I wake up that quickly goes away when I get up and start moving around....

I'm DSNS tapering at 3mg - 2.5mg and have slight pain in right shoulder and hip ...

skipspmr

•4 years ago

8 Replies

'Long COVID', Similarities to AI disease(s), 'Bodily Memory' and Ongoing Symptoms - some thoughts

Hi Everyone Just listened to a fab radio programme on our Radio National ABC here in OZ and will add the link here below although I am unsure if it can be...

Hi Everyone Just listened to a fab radio programme on our Radio National ABC her...

Rimmy

•4 years ago

9 Replies

PMR

Can anyone help? I have been on prednisone now for 11 months now. Started at 15 mg now on 6mg. For the last couple of weeks I have felt a tingling in both feet...

Can anyone help? I have been on prednisone now for 11 months now. Started at 15 ...

TINYdes

•4 years ago

4 Replies

What do i do next ?

Seriously fed up with this now. Diagnosed with PMR July. 56 years on this planet. 15 mg pred for a couple of months and 12-13mg since end of September. Split...

Seriously fed up with this now. Diagnosed with PMR July. 56 years on this plane...

NickWarwick

•4 years ago

28 Replies

Final Reduction of Prednisolone

Hi, it’s many years since I wrote about my own symptoms here but I do follow the posts that interest me which is Steroid reduction. I have been reducing...

Hi, it’s many years since I wrote about my own symptoms here but I do follow the...

Avrael

•4 years ago

20 Replies

Pmr & backache

Hi, I was diagnosed with pmr in August this year. I was on 15mg prednisone but have on Docs advice taken it to 12.5mg. The last 2 weeks I have suffered badly...

Hi, I was diagnosed with pmr in August this year. I was on 15mg prednisone but h...

Sleepysusie

•4 years ago

19 Replies

Elbow problems

Anyone else experiencing elbow pain? I’m at 2.5 mg now and have acquired a really painful right elbow. It’s painful to bend or straighten in the morning and...

Anyone else experiencing elbow pain? I’m at 2.5 mg now and have acquired a reall...

Cyclegirl54

•4 years ago

15 Replies

What is the best way to reduce prednisone after 3 and a half years and now at 4 mg daily.

I would like to learn more about women with pmr in their seventies.

nousdeux

•4 years ago

11 Replies

Would it be unwise to volunteer for Covid vaccine study if you have PMR?

I'm just wondering, I assume it would be very unwise to volunteer to be part of the Covid vaccine study if you have PMR? Asking for a friend (ha ha) no,...

I'm just wondering, I assume it would be very unwise to volunteer to be part of ...

artfingers

•4 years ago

20 Replies

Diabetic and Prenisone

Type 2 diabetic and prednisone! Best time to take prednisone ? I think my sugar goes up shortly after taking my Prenisone!

Type 2 diabetic and prednisone! Best time to take prednisone ? I think my sugar ...

Lafontainepam1

•4 years ago

17 Replies

Ladies World! Coping! Must Represent My OH On This One!

For my OH. Where are the public toilets out there now? Rubbish it is! OK you may venture out to a garden centre, anywhere ! But! Problem if you only just...

For my OH. Where are the public toilets out there now? Rubbish it is! OK you ...

Hidden

•4 years ago

58 Replies

Weather (yuk)!

11-13 degs for two weeks - health OK. 2 days of 20 degs (suddenly + 82% humidity) can't get out of bed without feeling dizzy. 🤨🤨

11-13 degs for two weeks - health OK. 2 days of 20 degs (suddenly + 82% humidit...

Constance13

•4 years ago

6 Replies

Actemra Injection

I just gave myself my fourth Actemra injection with the automatic injector pen. The first three went perfectly. Just a small red dot at the site for about an...

I just gave myself my fourth Actemra injection with the automatic injector pen. ...

Blackcatlover

•4 years ago

22 Replies

Eye surgery And Actemra.

Question: Monday I had a laser procedure for glaucoma. One little hole in each eye. Pin prick. Opthomologist says ok to do Actemra right away. Neurologist...

Question: Monday I had a laser procedure for glaucoma. One little hole in each ...

alvertta

•4 years ago

21 Replies

Off prednisolone but pains back

Hi, I haven't posted for a while. To summarise I was misdiagnosed with PMR & it took me over 3 yrs to get off prednisolone. However after feeling fine for...

Hi, I haven't posted for a while. To summarise I was misdiagnosed with PMR & it ...

Suin555

•4 years ago

9 Replies

Urgency and increased need to urinate

I am so sorry if this is too much info but has anyone had increased urgency and increased need to urinate. I sometimes feels like I pass more than I drink and...

I am so sorry if this is too much info but has anyone had increased urgency and ...

Slosh

•4 years ago

55 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for October 2020

Pain in pelvic girdle

Omeprazole alternative

must carry on

Dry itching skin

Fingers Crossed Off Pred At Last!!!!

Antibiotics- help with aches?

Blood sugar monitor

must carry on

My first tapering experience

CBD oil and prednisone

Methotrexate or Not?

Pain worse in the evening. Mild PMR or something else?

Fatigue

Monitoring needs re Actemra TCZ

Tapering at 3 - 2.5 with slight morning pain

'Long COVID', Similarities to AI disease(s), 'Bodily Memory' and Ongoing Symptoms - some thoughts

PMR

What do i do next ?

Final Reduction of Prednisolone

Pmr & backache

Elbow problems

What is the best way to reduce prednisone after 3 and a half years and now at 4 mg daily.

Would it be unwise to volunteer for Covid vaccine study if you have PMR?

Diabetic and Prenisone

Ladies World! Coping! Must Represent My OH On This One!

Weather (yuk)!

Actemra Injection

Eye surgery And Actemra.

Off prednisolone but pains back

Urgency and increased need to urinate

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