Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,642 members • 38,790 posts

All posts for October 2020

Similarities between long covid and PMR

Hi, After watching the news today and hearing peoples experience with the effects of having "long covid" I found myself wondering if there could be any link...

Hi, After watching the news today and hearing peoples experience with the effect...

annie_marie

•4 years ago

66 Replies

osteoporosis risk @ 5.9%.- good or bad?

I have just had this back from my Rheumatologist and wonder what it might mean? Anyone? "The L1-L4 T-score is -2.0 and BMD is 0.871 g/cm2. The left femoral...

I have just had this back from my Rheumatologist and wonder what it might mean? ...

ignatz

•4 years ago

21 Replies

Loss of Taste??

Before I was diagnosed in December but had been suffering with jaw/shoulder pain since Oct, my taste buds stopped working. Smell is still okay. Some days I...

Before I was diagnosed in December but had been suffering with jaw/shoulder pain...

jarn

•4 years ago

13 Replies

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Oscarandchloe

Well my goodness how amazing it is to read a post by someone,in this case the person above,and learn so much from those who respond that might be applicable to...

Well my goodness how amazing it is to read a post by someone,in this case the pe...

yorkieme

•4 years ago

14 Replies

Reducing the dose

Hello lovely people. I am continuing downwards from 60mg. Currently just reduced to 8.5 from 9. I have two possible side effects I am wondering about - the...

Hello lovely people. I am continuing downwards from 60mg. Currently just reduc...

Pippah45

•4 years ago

17 Replies

Sorry I missed this - newly diagnosed with PMR yesterday

Hi is there a recording available of this webinar? thanks Janet

littlejan1964

•4 years ago

6 Replies

Shoulder blade pain

Has anyone suffered excruciating shoulder blade pain? It wasn't a symptom when I was diagnosed with PMR 3 years ago. I'm currently on 5mg pred after a failed...

Has anyone suffered excruciating shoulder blade pain? It wasn't a symptom when I...

JanieBaxter

•4 years ago

20 Replies

Help! Is this pred withdrawal?

Like so many now I can't contact my GP very easily to talk things over and I need some advice. I've been diagnosed with GCA (18 months ago no re-curring...

Like so many now I can't contact my GP very easily to talk things over and I ne...

oscarandchloe

•4 years ago

30 Replies

rheumatologist in south west?

I am learning so much from reading all your posts, but would really like to see a rheumatologist who specialises in PMR, especially since my doctor is not...

I am learning so much from reading all your posts, but would really like to see ...

humlies

•4 years ago

12 Replies

Taking cold liver oil tablets

Hi.is it ok to take cod liver oil tablets while on pred.i am 9mg.been getting these pains in my shoulders and up the back off my head is it to do with tablets...

Hi.is it ok to take cod liver oil tablets while on pred.i am 9mg.been getting th...

Flosy

•4 years ago

4 Replies

Prednisolone

Well having been on 20mg Prednisolone for one month I’m coping pretty well in terms of it keeping the pain away. My question is could I stay on 20mg or close...

Well having been on 20mg Prednisolone for one month I’m coping pretty well in te...

Hidden

•4 years ago

12 Replies

Helpful Webinar

Thank you so much for organising yesterday’s Webinar, it was really helpful. I do SlimmingWorld anyway but would definitely build in 3 days with no carbs. I...

Thank you so much for organising yesterday’s Webinar, it was really helpful. I d...

Frintonfitchy

•4 years ago

1 Reply

Bilateral temporal biopsy on Monday

It’s now 47 days that I’m being treated for PMR- GCA . My headaches have subsided in intensity , but seem to have new symptoms everyday-woke up Saturday with...

It’s now 47 days that I’m being treated for PMR- GCA . My headaches have subside...

Bro-

•4 years ago

24 Replies

Alternatives to Adcal

Hi I responded badly to Adcal and my GP said there would be enough calcium in my diet. I take vitD and K2 plus multi vitamin daily and I’m on 8mgs Pred....

Hi I responded badly to Adcal and my GP said there would be enough calcium in my...

Thelmarina

•4 years ago

5 Replies

What is wrong with me? Is it PMR?

Hi everyone. I am still at the diagnosis stage, waiting for a specialist to see me to get an official diagnosis. I might not have this but may have...

Hi everyone. I am still at the diagnosis stage, waiting for a specialist to se...

Feelfreetorattle

•4 years ago

5 Replies

methotrexate

what have others experienced when adding this to prednisone? Were you able to taper down faster because of it?

what have others experienced when adding this to prednisone? Were you able to t...

blueisgreen

•4 years ago

33 Replies

High CRP?

Hi This is my first post. I have been reading all your posts and you seem to all know quite a lot! I have been up and down on pred for about 5 years. My...

Hi This is my first post. I have been reading all your posts and you seem to all...

Daisymay

•4 years ago

25 Replies

Eyes and other things.

I get a weekly digest of posts to this forum and was reading the thread re missing travelling, either early this morning or last night. At the time I was too...

I get a weekly digest of posts to this forum and was reading the thread re missi...

IdasMum

•4 years ago

11 Replies

Is anyone here recovering from Covid and in Scotland?

If so - John Mills at Vasculitis UK wants to hear from you: Is any member in the group recovering from a diagnosis of COVID19 but also lives in Scotland....

If so - John Mills at Vasculitis UK wants to hear from you: Is any member in the...

PMRpro

Ambassador•4 years ago

10 Replies

Old timers story

Mine started about 5 1/2 years ago I literally got out of my car one day and thought I pulled a muscle on the inside of my leg from there it went to pain all...

Mine started about 5 1/2 years ago I literally got out of my car one day and tho...

Schurch

•4 years ago

6 Replies

Calci-D,will reducing dose cause me a problem?

I have been prescribed calci-D twice daily but I then have bad constipation so I have reduced dosage to one every other day which seems to help as my steroids...

I have been prescribed calci-D twice daily but I then have bad constipation so I...

Musicmaid

•4 years ago

7 Replies

Just my update PMR and GCA

Hi everyone, not been on here much recently either too tired or can't be bothered, sorry. I've had PMR for over 4 years then started with GCA January 2020....

Hi everyone, not been on here much recently either too tired or can't be bothere...

Marlenec

•4 years ago

12 Replies

Is Adcal-D 3 safe

Have you been diagnosed with Osteoporosis? Are you sticking to a healthy diet or taking a supplement?

Have you been diagnosed with Osteoporosis? Are you sticking to a healthy diet or...

Golf123

•4 years ago

7 Replies

NEW THREAD CARDIOVASCULAR PROBLEMS

Just seen cardiologist. He says I do not have angina, but something to do with the chest wall related to my PMR. He could not understand me, and I could not...

Just seen cardiologist. He says I do not have angina, but something to do with ...

Mary63

•4 years ago

26 Replies

Here we go again!

It's on the way.😰

Constance13

•4 years ago

18 Replies

Recent hip replacement following trip on drive now prescribed Adcal D3. Read this can lead to strokes and heart attacks over time.

Will a calcium and D3 diet be better than taking Adcal D3. Also on 20 mg omeprazole which can lessen calcium absorption.

Will a calcium and D3 diet be better than taking Adcal D3. Also on 20 mg omepraz...

Golf123

•4 years ago

3 Replies

Trying to rebuild muscles

First of all, many thanks to all those who replied to my previous question. The information given was very useful and showed that there was much more to living...

First of all, many thanks to all those who replied to my previous question. The ...

Lauterbach

•4 years ago

6 Replies

Has it gone

Hi, been with PMR for about 6 years and have been down to 2mg pred for the last few months and zero for last 6 weeks. About a year ago I had a synacthen...

Hi, been with PMR for about 6 years and have been down to 2mg pred for the la...

KCRoyals

•4 years ago

3 Replies

Pmr

What can i do to help myself with pmr

Hboy

•4 years ago

6 Replies

Tapering setback

Hi all, a little (hopefully) setback in my Tapering, managed to get from 30mg at end of June to 13mg without any real problem, but last week at 12mg seems to...

Hi all, a little (hopefully) setback in my Tapering, managed to get from 30mg at...

Bcol

•4 years ago

5 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for October 2020

Similarities between long covid and PMR

osteoporosis risk @ 5.9%.- good or bad?

Loss of Taste??

Oscarandchloe

Reducing the dose

Sorry I missed this - newly diagnosed with PMR yesterday

Shoulder blade pain

Help! Is this pred withdrawal?

rheumatologist in south west?

Taking cold liver oil tablets

Prednisolone

Helpful Webinar

Bilateral temporal biopsy on Monday

Alternatives to Adcal

What is wrong with me? Is it PMR?

methotrexate

High CRP?

Eyes and other things.

Is anyone here recovering from Covid and in Scotland?

Old timers story

Calci-D,will reducing dose cause me a problem?

Just my update PMR and GCA

Is Adcal-D 3 safe

NEW THREAD CARDIOVASCULAR PROBLEMS

Here we go again!

Recent hip replacement following trip on drive now prescribed Adcal D3. Read this can lead to strokes and heart attacks over time.

Trying to rebuild muscles

Has it gone

Pmr

Tapering setback

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A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

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