Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,272 members • 37,957 posts

All posts for October 2020

Termeric

Does anyone take Termeric whilst taking Predisolone. Thanks.

Dotty4u

•3 years ago

10 Replies

Absolutely Fed up!

Hi all I'm so fed up with my lack of medical care. I've worked at home, shielded, since lockdown. I've had to do things differently, it's been hard but we've...

Hi all I'm so fed up with my lack of medical care. I've worked at home, shielded...

Coffeebeans

•3 years ago

26 Replies

Can I take Vitamin D at same time of day as Prednisolone?

This is my first time posting here as I have recently been diagnosed with PMR at age 57. I was put on 15mg of Prednisolone initially which improved things...

This is my first time posting here as I have recently been diagnosed with PMR at...

Roastcauli

•3 years ago

12 Replies

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Pred in liquid form

I've only been on here since July so apologies if this question has been asked before (I can't find it when I search). When I spoke to the internist last week...

I've only been on here since July so apologies if this question has been asked b...

pjt50

•3 years ago

9 Replies

Weird Ball of foot sensations

I have had PMR for 3 and half years currently tapering down from 15mg Pred after recent bad flare now on 10mg. I have a question Over the last 12mths I have...

I have had PMR for 3 and half years currently tapering down from 15mg Pred afte...

mtrafter

•3 years ago

11 Replies

Sore wrists

Hi first time writing on here!started on pred 8 weeks ago on 15mg with in 6 hrs of taking first dose about 80-90% of my symptoms were better.I am now tapering...

Hi first time writing on here!started on pred 8 weeks ago on 15mg with in 6 hrs ...

Amilee

•3 years ago

9 Replies

Hip recovery and Osteoporosis

I'm 6 weeks into a total hip replacement (left) following a "flying" fall onto my drive having caught my jumper in a branch. Due to this being called a...

I'm 6 weeks into a total hip replacement (left) following a "flying" fall onto m...

Golf123

•3 years ago

20 Replies

Delay in blood testing whilst on methotrexate

I’ve been on methotrexate 15 months and have recently had two blood tests cancelled because nationally they are unable to process the tests because the...

I’ve been on methotrexate 15 months and have recently had two blood tests cancel...

katiemills

•3 years ago

26 Replies

How should I treat broken skin on my arm please?

Sorry to ask a basic question but I did a search and found Double base gel recommended but Im not sure what to do about damaged skin. I only have 2 small...

Sorry to ask a basic question but I did a search and found Double base gel recom...

HappyDiamonds

•3 years ago

13 Replies

Omeprazole-how much to take and how often?

I have a question about omeprazole, the medicine generally prescribed to protect the stomach lining from prednisolone side effects. I take 7mg pred/day and...

I have a question about omeprazole, the medicine generally prescribed to protect...

Cyclo5

•3 years ago

22 Replies

Can Weather affect PMR

I have been doing really well since being diagnosed with PMR, I have come down since March from 30mg to 5mg but all of a sudden since the weather changed I...

I have been doing really well since being diagnosed with PMR, I have come down s...

Ladyoak

•3 years ago

30 Replies

THE USE OF ABBREVIATIONS

Whilst I understand how they can become part and parcel of the "lingo" (language) they are not of much help to newbies (newcomers) such as I, and so may I...

Whilst I understand how they can become part and parcel of the "lingo" (language...

Benos123

•3 years ago

3 Replies

What dose of pred constitutes a compromised immune system?

I returned to work in Sept as a nursery teacher and 7wks later I'm now enjoying ½term break. Inevitably I've had a mild return of aches and pains and after...

I returned to work in Sept as a nursery teacher and 7wks later I'm now enjoying ...

Kendrew

•3 years ago

6 Replies

Does anyone cut 1mgm I half?

Hi I’m tapering down slowly & reached 5mgm, no problems other than fatigue. I was diagnosed mid December 2019. I’ll be staying on 5 another 3 weeks before...

Hi I’m tapering down slowly & reached 5mgm, no problems other than fatigue. I w...

123mossie

•3 years ago

30 Replies

Long term Antibiotic for inflammation

Can anyone direct me to studies done for long term antibiotic use to control inflammation from PMR?

Can anyone direct me to studies done for long term antibiotic use to control inf...

Amkoffee

•3 years ago

12 Replies

How much exercise?

I was diagnosed with PMR earlier this year. Initially 15 mg pred then straight to 10mg. Had a bit of a wobble so went back up to 15mg and have now got down to...

I was diagnosed with PMR earlier this year. Initially 15 mg pred then straight t...

Hughie1951

•3 years ago

10 Replies

Actemra fatigue

I’ve been giving myself my Actemra injection every Monday morning at 7:00 am. By 10:00 I feel like a freight train has hit me- not sick just really tired. I’m...

I’ve been giving myself my Actemra injection every Monday morning at 7:00 am. By...

Blackcatlover

•3 years ago

32 Replies

No flu jab for me!

Went this morning to my pharmacy to get vaccinated against flu. I've never had a flu jab before and all my allergies were checked, taking up most of the space...

Went this morning to my pharmacy to get vaccinated against flu. I've never had a...

maria40

•3 years ago

27 Replies

Shoulder pain turning from aching to sharp nerve pain

Hi all, just asking if any one has experienced a change in there shoulder pain. I have been diagnosed with PMR for just over a year and I have see a change in...

Hi all, just asking if any one has experienced a change in there shoulder pain....

Yogurt55

•3 years ago

11 Replies

Should I have the flu jab ?

I have been on Pred since December 2019 and currently down to 2mg (dropped to 1.5mg but pain returned) Having gone back up to 2mg I’m experiencing neck...

I have been on Pred since December 2019 and currently down to 2mg (dropped to 1....

KimSuvy60

•3 years ago

15 Replies

Really Tight Neck

9 months into PMR and after yoyoing I have for the last three weeks been on 20mgs which I am splitting 13/7. I have had a few additional social activities in...

9 months into PMR and after yoyoing I have for the last three weeks been on 20mg...

Alchemy8

•3 years ago

17 Replies

NHS Steriod Reduction Info

Hi, I found this NHS pdf file on line which I felt gave some useful advice to those reducing on low dose steroids. https://publicdocuments.sth.nhs.uk/ This...

Hi, I found this NHS pdf file on line which I felt gave some useful advice to th...

Avrael

•3 years ago

20 Replies

GCA and v. briefly seeing 'black'

Anyone aware of such moments 2 or 3 times a week literally for 5 seconds or so where black appears and then everything is fine again ? Thanks.

Anyone aware of such moments 2 or 3 times a week literally for 5 seconds or so w...

Sefu

•3 years ago

7 Replies

G C A

Has anyone any advice please on how I can stop these unsightly keep appearing on my arms, I have been on Prednisone since August 2019 40mg a day gradually...

Has anyone any advice please on how I can stop these unsightly keep appearing on...

Phed

•3 years ago

19 Replies

Thought you might like to read my Rheumys comments in letter to GP about enteric coated Prednisolone.

First of all thank you to everyone who responded to me when I was having a problem reducing my Pred. Im pleased to say that I was given an appointment with my...

First of all thank you to everyone who responded to me when I was having a probl...

HappyDiamonds

•3 years ago

9 Replies

Light too bright since cataract surgery

Cataract surgery 10 months ago due to steroids. Was PMR & GCA symptom free and stopped steroids. Three weeks later back to square one. Restarted steroids at 5...

Cataract surgery 10 months ago due to steroids. Was PMR & GCA symptom free and s...

Reddev

•3 years ago

7 Replies

Methatrexate

I am now ten weeks into MXT,the first six weeks on tablets and the last four on injections.I switched to injecting because the side effects on tablets left me...

I am now ten weeks into MXT,the first six weeks on tablets and the last four on ...

yorkieme

•3 years ago

32 Replies

Would love to hear your experience about Zolendronic Acid Infusion please.

I am booked in for an infusion of Zolendronic Acid early November and would love to know about others experience of this please as Im really worried about side...

I am booked in for an infusion of Zolendronic Acid early November and would love...

HappyDiamonds

•3 years ago

29 Replies

funny taste/

hi,have this funny taste in my mouth,also it feel like i have bud my tounge,dont know what to do,am 9mg.of pred.need some advice please.

hi,have this funny taste in my mouth,also it feel like i have bud my tounge,dont...

Flosy

•3 years ago

2 Replies

Contacting Prof Dasgupta

I have become concerned that the team at my local hospital have either little experience or interest in LVV . I am considering my options. Has anyone contacted...

I have become concerned that the team at my local hospital have either little ex...

Devoid

•3 years ago

17 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for October 2020

Termeric

Absolutely Fed up!

Can I take Vitamin D at same time of day as Prednisolone?

Pred in liquid form

Weird Ball of foot sensations

Sore wrists

Hip recovery and Osteoporosis

Delay in blood testing whilst on methotrexate

How should I treat broken skin on my arm please?

Omeprazole-how much to take and how often?

Can Weather affect PMR

THE USE OF ABBREVIATIONS

What dose of pred constitutes a compromised immune system?

Does anyone cut 1mgm I half?

Long term Antibiotic for inflammation

How much exercise?

Actemra fatigue

No flu jab for me!

Shoulder pain turning from aching to sharp nerve pain

Should I have the flu jab ?

Really Tight Neck

NHS Steriod Reduction Info

GCA and v. briefly seeing 'black'

G C A

Thought you might like to read my Rheumys comments in letter to GP about enteric coated Prednisolone.

Light too bright since cataract surgery

Methatrexate

Would love to hear your experience about Zolendronic Acid Infusion please.

funny taste/

Contacting Prof Dasgupta

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