Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,084 members • 39,881 posts

All posts for September 2020

Resuming Actemra... but now foot and leg pain. Any thoughts?

I had to stop Actemra for a month because of illness and have had a rough time resuming the injections. The first two injections brought headaches, nausea,...

I had to stop Actemra for a month because of illness and have had a rough time r...

GratefulBailey

•4 years ago

23 Replies

PMR and Hip Bursitis

For any who acquired hip bursitis with PMR and have recovered from PMR, did your bursitis also calm down?

For any who acquired hip bursitis with PMR and have recovered from PMR, did your...

fishingnut

•4 years ago

7 Replies

New Kid on the Block

Hi,everyone,just joined the group and reading the posts really feel for those suffering with fatigue, something fortunately I have never had with P.M.R..I do...

Hi,everyone,just joined the group and reading the posts really feel for those su...

BeeDee1940

•4 years ago

4 Replies

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Actemera challenge

I couldn't meet the challenge. On it for 5 shots. I felt so bad I just couldn't do another shot. Spoke with drs assistant and she especially didn't like my...

I couldn't meet the challenge. On it for 5 shots. I felt so bad I just couldn't ...

Linny3

•4 years ago

29 Replies

CRP test results

What are normal CRP levels in the UK? I'm starting to think they're different in the UK because I see posts for people with CRP higher than 100. But here it...

What are normal CRP levels in the UK? I'm starting to think they're different in...

Amkoffee

•4 years ago

27 Replies

Flare or not ?

Started at 15mg a year ago. Got down to 6mg last month. Pains in hips and aching thighs and stiff but not in rear of thighs as first had. GP agreed i should go...

Started at 15mg a year ago. Got down to 6mg last month. Pains in hips and aching...

Retallack

•4 years ago

5 Replies

Steroids and pre-existing arthritic joints

I was diagnosed with GCA in May, currently on 17.5 mg Pred. I have had an arthritic hip for years that has given me very little bother. Since diagnosis my hip...

I was diagnosed with GCA in May, currently on 17.5 mg Pred. I have had an arthri...

Agavegirl

•4 years ago

5 Replies

Is ADCAL dangerous?

My GP put me on ADCAL when he diagnosed PMR and started Prednisolone. At my first telephone consultatioon with a rheumy (I sacked him yesterday!) he said to...

My GP put me on ADCAL when he diagnosed PMR and started Prednisolone. At my firs...

ChinaWuntoo

•4 years ago

24 Replies

Morning Fatigue

Just curious, I'm doing the pred taper plan, printed from site. 1 day new, 6 days old dose, etc. That is 10 mill down to 7.5 . I wake up feeling okay, go...

Just curious, I'm doing the pred taper plan, printed from site. 1 day new, 6 da...

Southmead

•4 years ago

32 Replies

Tasks at home

I have written a post already, but I've feltforalong while now household tasks really take alot of energy, out of me , I just run out of steam I thought I...

I have written a post already, but I've feltforalong while now household tas...

bula3434

•4 years ago

12 Replies

Struggling with pmg

hi I used to be member but lost my membership somehow, lm really getting flare ups,Iput my meds up to 14mg pred.with Gp consent I'm waiting to see my rheumy,...

hi I used to be member but lost my membership somehow, lm really getting flare u...

bula3434

•4 years ago

2 Replies

Pred reduction to discover what?

I finally got to see a rheumatologist ( only taken 4 years!), But was very impressed. She asked me to reduce my preds, then at 7 mg, have been for over a year...

I finally got to see a rheumatologist ( only taken 4 years!), But was very impre...

Jancorb

•4 years ago

18 Replies

saying no to methotrexate

having been dismissed as to young for pmr even though i have all the symptoms the rhumatologist has prescribed methotrexate for inflamatory arthritis but...

having been dismissed as to young for pmr even though i have all the symptoms th...

snoopy29

•4 years ago

14 Replies

New Normal ?

Early days for me. Likely PMR diagnosis about one month ago. Although my GP is reticent about guaranteeing that is exactly what i have. Waiting on third set...

Early days for me. Likely PMR diagnosis about one month ago. Although my GP is ...

NickWarwick

•4 years ago

23 Replies

Esophageal spasms, GERD, coughing up white mucous - PMRand/or Pred

Has anyone had this? I have always had GERD and take omneprazole. I am struggling between 4 -3.5 mg Pred but these spasms have been increasing and I am...

Has anyone had this? I have always had GERD and take omneprazole. I am struggl...

bluegirl7

•4 years ago

7 Replies

So angry

I said I'd update re my telephone appointment with rheumy. Had to wait over 90 minutes for his call, no apology. It was short and not sweet. He had got my...

I said I'd update re my telephone appointment with rheumy. Had to wait over 90 m...

ChinaWuntoo

•4 years ago

59 Replies

Badger post

Apologies one and all, but the powers that be decided my Badger post was irrelevant and have deleted it. 😭

Apologies one and all, but the powers that be decided my Badger post was irrelev...

Bcol

•4 years ago

1 Reply

Everywhere hurts

Hi advice pls. Started on 80 mg Pred in Sept 2019(suspected GCA) and have just finished my last Pred (1mg ended 31/8/20). Everywhere hurts, hands, feet , arms...

Hi advice pls. Started on 80 mg Pred in Sept 2019(suspected GCA) and have just f...

Gurufjm

•4 years ago

8 Replies

Prednisone dude effects

Hello can anyone tell me if they have frequent urination , fast heart beat , Shortness of breath and sweating with prednisone ?

Hello can anyone tell me if they have frequent urination , fast heart beat , Sho...

Athena2020

•4 years ago

52 Replies

tapering dosage

Greetings, Thanks again for all of your posts and insights. I started having symptoms in April that seemed to be very consistent with PMR and it took until 3...

Greetings, Thanks again for all of your posts and insights. I started having sym...

SandyBoots

•4 years ago

6 Replies

Need clarification

I have been on Actemra for three years having 4mg of Actemra per kilogram weight administered by IV every twenty eight days. When doing 8mg of Actemra per...

I have been on Actemra for three years having 4mg of Actemra per kilogram weight...

Blackcatlover

•4 years ago

23 Replies

Walk in blood test

My blood test routine is working well. My practice nurse emails me the forms to print off. I then have a short drive into our local hospital, where the walk in...

My blood test routine is working well. My practice nurse emails me the forms to ...

BronteM

•4 years ago

6 Replies

Flare ups in general

I have a theory :-) Having several medical issues for many years, flare ups are a part of life. Things such as diet, the weather, over doing it etc, and...

I have a theory :-) Having several medical issues for many years, flare ups are ...

RevSmallwood

•4 years ago

4 Replies

PMRGCAuk AGM and Members' Day this Saturday!

It's not too late! If you're a paid up member of the charity there is still time to book your place on our AGM and Members' Day this Saturday which this year...

It's not too late! If you're a paid up member of the charity there is still tim...

Fran_Benson

Partner•4 years ago

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DEXA Dilemma - Round 4

Finally success!!!! I have managed to get my Gadolinium-enhanced MRI scan appointment brought forward to next Tuesday 😀. It’s taken 3 weeks 6 e-mails and 15...

Finally success!!!! I have managed to get my Gadolinium-enhanced MRI scan appoin...

Nerak12

•4 years ago

9 Replies

Improvement since taking first dose of Prednisolone in the early hours and the remainder about 10am.

Hello there everyone. I am newly diagnosed with PMR in June this year and commenced on Pred after just over 2 weeks of sudden onset classic PMR symptoms....

Hello there everyone. I am newly diagnosed with PMR in June this year and commen...

larkthebark

•4 years ago

3 Replies

Actemra querie

Hello Everyone, I saw my Rheumatologist today and she is a little concerned about my very low white blood cell count, (heading into neutropenia territory),...

Hello Everyone, I saw my Rheumatologist today and she is a little concerned abo...

LemonZest11

•4 years ago

23 Replies

Shortage of 1mg enteric coated Prednisolone?

I've had a suspicion for some time that 1mg tablets of enteric coated prenisolone were about to become unavailable. My supplies come from Alliance and for at...

I've had a suspicion for some time that 1mg tablets of enteric coated prenisolon...

podo

•4 years ago

25 Replies

Extreme reaction to injection at dentist

I often have my teeth out, so am no stranger to injections at dentist. Had to have four teeth out on Tuesday. As dentist put in injections in bottom gum, I...

I often have my teeth out, so am no stranger to injections at dentist. Had to ha...

Marilyn1959

•4 years ago

15 Replies

Outside the steroid box

I have PMR/GCA vasculitis and PAD. My question is about antibiotics I am on some heavy duty antibiotics for six weeks and my GP wants me to continue for...

I have PMR/GCA vasculitis and PAD. My question is about antibiotics I am on some...

aladymo

•4 years ago

9 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for September 2020

Resuming Actemra... but now foot and leg pain. Any thoughts?

PMR and Hip Bursitis

New Kid on the Block

Actemera challenge

CRP test results

Flare or not ?

Steroids and pre-existing arthritic joints

Is ADCAL dangerous?

Morning Fatigue

Tasks at home

Struggling with pmg

Pred reduction to discover what?

saying no to methotrexate

New Normal ?

Esophageal spasms, GERD, coughing up white mucous - PMRand/or Pred

So angry

Badger post

Everywhere hurts

Prednisone dude effects

tapering dosage

Need clarification

Walk in blood test

Flare ups in general

PMRGCAuk AGM and Members' Day this Saturday!

DEXA Dilemma - Round 4

Improvement since taking first dose of Prednisolone in the early hours and the remainder about 10am.

Actemra querie

Shortage of 1mg enteric coated Prednisolone?

Extreme reaction to injection at dentist

Outside the steroid box

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