Outside the steroid box : I have PMR/GCA vasculitis... - PMRGCAuk

PMRGCAuk

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Outside the steroid box

aladymo profile image
9 Replies

I have PMR/GCA vasculitis and PAD. My question is about antibiotics I am on some heavy duty antibiotics for six weeks and my GP wants me to continue for another four weeks but I am so absolutely bone tired.(Rheumatologist wanted me in the hospital for intervenous antibiotics but my GP did not want me in that environment) I don’t think I’m having a flare ( slight pain in shoulders ) , Could antibiotics cause this weariness?

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aladymo profile image
aladymo
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9 Replies
PMRpro profile image
PMRproAmbassador

Some antibiotics list fatigue as a rare side effect - but rare or not, it happens. Some antibiotics leave you feeling quite rubbish - but no-one really knows why,

aladymo profile image
aladymo in reply toPMRpro

Thank you !! Rubbish perfect description

SnazzyD profile image
SnazzyD in reply toPMRpro

I dunno, not as rare as it is made out, especially the older people get I’ve heard more complaints of fatigue and feeling “unnecessary” as one person put it.

aladymo profile image
aladymo in reply toSnazzyD

Unnecessary rubbish. That’s it !!

Constance13 profile image
Constance13 in reply toSnazzyD

"feeling unnecessary" - love it!😂

PMRpro profile image
PMRproAmbassador in reply toSnazzyD

It isn't - WE know that - and yes, "feeling unnecessary" - perfect. But it applies a lot to many drugs when used in over 55s, very different world to their use in younger people.

Pixix profile image
Pixix

I’m currently on antibiotics for a tooth infection. I increased my steroids as per the ‘sick day rules’..list now a pinned post here, & this not only counteracted the ‘rubbish’ I usually feel, but helped my pains so much, too! The antibiotics only partially worked & I think I may have to lose the tooth, but, PMR wise I feel great! I didn’t increase the steroids quite as much as the sick day rules said, but enough to make a difference! Perhaps ask your GP about this, or, if unaware (as I was) have a read of the sick day rules first! Hope you feel less unnecessary rubbish soon...I’ve had a lot of IV antibiotics in my time & don’t envy you the heavy doses, but hope they work, & that my story helps, perhaps! S x

aladymo profile image
aladymo in reply toPixix

I was about to reduce to next taper !! Not add 😱

PMRpro profile image
PMRproAmbassador in reply toaladymo

Don't think I would anyway until the abx are done and dusted

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