5 Years on Alendronic Acid: Just had my annual PMR... - PMRGCAuk

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5 Years on Alendronic Acid

scrambledegg profile image
6 Replies

Just had my annual PMR blood check etc. with my GP. I've had no problems with AA but I brought up the subject of reviewing taking it after 5 years and asked for a dexa scan as I'm not sure I even need to be on it. I had a dexa scan when first diagnosed and it was fine. He said I should stay on it until I get down to 5mg prednisolone and there's no point having a scan. I've tried several times to get below 10mg per day including a double DSNS to reduce by 1mg over 2 months and even that didn't work. Unless things improve rapidly I'm going to be years before I get down to 5mg per day. So I've decided to take AA every 2 weeks instead of once a week. Any thoughts? Anyone with a similar dilemma?

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scrambledegg
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6 Replies
DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

I think the paperwork that comes with medication does actually say it should be reviewed at the 5 year point. Dig yours out and have a look - if it does then show it to him.

Both PMRpro and I answered a question yesterday about this - healthunlocked.com/pmrgcauk...

in reply toDorsetLady

Hello,

I took this for a while. as I understand it they now say ideally taken for no more than 2 years as they recently discovered it can cause micro fractures not visible on XRay, making your bones more brittle. you are entitled to and should have a 3 yearly dexascan.

search on line for NICE guidelines for Bisphosphonates and hopefully you'll get the most up to date info

hope that helps...

best of luck Trutta

jinasc profile image
jinasc

Ask for another bone protection - visit the Royal National Osteoporosis Site and read up on the different options.

scrambledegg profile image
scrambledegg in reply tojinasc

Thanks. Just looked at that site. Feel better about continuing to take it now

jinasc profile image
jinasc in reply toscrambledegg

Oh, I thought you would have chosen another one. The FDA recommend taking AA only for 5 years.

I would push for the Dexa Scan.

scrambledegg profile image
scrambledegg in reply tojinasc

Ok. Thanks.

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