Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,922 members • 39,411 posts

All posts for August 2020

New to PMR

Good morning! I am a retired 64yr old female born in the U.K. but residing in the U.S. I have been relatively healthy until 2 months ago when I started...

Good morning! I am a retired 64yr old female born in the U.K. but residing in th...

SallyLeon

•4 years ago

9 Replies

GCA indication

I’ve had PMR for 4 years now and have managed to taper down to 1mg per day. A few hours ago I was standing in a queue and I started to feel a headache at the...

I’ve had PMR for 4 years now and have managed to taper down to 1mg per day. A fe...

Cycleman

•4 years ago

28 Replies

Ear, jaw and throat pain

I would appreciate some advice about dealing with ear, jaw and throat pain. I've been on pred since November 2018 - 15mg to start with, after PMR diagnosis....

I would appreciate some advice about dealing with ear, jaw and throat pain. I'v...

TGerard

•4 years ago

6 Replies

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Is this a flare?

Hello all I was diagnosed with PMR last September, commencing dose of prednisolone of 15mg raised after 1 month to 17.5, since then my GP has allowed me to...

Hello all I was diagnosed with PMR last September, commencing dose of prednisolo...

Mack100

•4 years ago

5 Replies

Another dental problem, Alendronic ac and implants

I thought that I had read up well on alendronic ac and came to the conclusion that much of it's bad press was due to the unusual instructions for taking the...

I thought that I had read up well on alendronic ac and came to the conclusion th...

HamishPMR

•4 years ago

12 Replies

Hi. I am new here

I was diagnosed with pmr this month and am trying to get my head round it. It's somewhat difficult having a telephone conversation instead of face to face....

I was diagnosed with pmr this month and am trying to get my head round it. It'...

mustcarryon

•4 years ago

10 Replies

Sitting Pain

I am 51 and was diagnosed at Mayo in January, after two years of multiple orthopedic docs, two spine surgeons, two pain clinics, various injections, a local...

I am 51 and was diagnosed at Mayo in January, after two years of multiple orthop...

Rooney07

•4 years ago

57 Replies

Taper Success

Hi all. Once again thank you for all the invaluable advice over the last few months. I have managed my first successful taper - only 1mg but that's more than I...

Hi all. Once again thank you for all the invaluable advice over the last few mon...

Coffeebeans

•4 years ago

4 Replies

Problems with hands/fingers

My GP has just rung (7.45) , he has diagnosed Dupuytrens syndrome and is going to refer me to have the fingers cut to loosen them. He says it is not related to...

My GP has just rung (7.45) , he has diagnosed Dupuytrens syndrome and is going t...

Rachmaninov2

•4 years ago

45 Replies

DEXA Dilemma - Round 3

Another day, another round of phone calls and nobody has reported seeing a MRI request form floating past their window - yet! The pain that felt like a knife...

Another day, another round of phone calls and nobody has reported seeing a MRI r...

Nerak12

•4 years ago

8 Replies

Fantastic news

After 3 weeks of prednisilone, peaking at 120mg, currently at 90mg, tomorrow I start the reduction process at 80mg and so on. Great cause for celebration,...

After 3 weeks of prednisilone, peaking at 120mg, currently at 90mg, tomorrow I s...

Hidden

•4 years ago

20 Replies

Swellings on palms of hands

Good morning Does anyone know if swellings on palms of hands below the middle fingers are another symptom of PMR or indication of another condition. I have two...

Good morning Does anyone know if swellings on palms of hands below the middle fi...

Rachmaninov2

•4 years ago

2 Replies

Should I increase dose

Good morning all. I dropped from 9mg pre to 7 5 mg three weeks ago. Struggled for a few days went back up to 8 5 for three days. All well again so dropped to...

Good morning all. I dropped from 9mg pre to 7 5 mg three weeks ago. Struggled fo...

Chriss66

•4 years ago

9 Replies

Dental question

I have to have two teeth extracted and have been told to stop Pred the day before and on the day of the treatment. I’m really confused with this instruction...

I have to have two teeth extracted and have been told to stop Pred the day befor...

Janann25

•4 years ago

56 Replies

THE LONG HAUL

PMR diagnosed in June 2018 15mg and then up to 20mg pred. Several flares and now at 10mg for many months. Have tried to reduce to 9.5 with DSNS method but...

PMR diagnosed in June 2018 15mg and then up to 20mg pred. Several flares and now...

Pmrmolly2018

•4 years ago

4 Replies

is this study suggesting steroids are less damaging than the inflammation in PMR regarding bone loss

Interesting- this study seems to conclude inflammation more than steroids reduce bone mass https://pubmed.ncbi.nlm.nih.gov/9365092/ suggesting it's better to...

Interesting- this study seems to conclude inflammation more than steroids reduce...

Jan_Noack

•4 years ago

8 Replies

Actemra side effects

Will check with my Rheumy in 3 weeks but just wondering if anyone had side effects from Actemra and wondering if the Med has an an accumulative affect . First...

Will check with my Rheumy in 3 weeks but just wondering if anyone had side effec...

Darcy2000

•4 years ago

15 Replies

E Bike

Noticed a few mentions of exercise in recent posts, I’ve recently bought an e bike, what an amazing invention. I can work as hard as I like, or not, go on...

Noticed a few mentions of exercise in recent posts, I’ve recently bought an e bi...

123mossie

•4 years ago

24 Replies

Actemra and reducing prednisone

Hi Everyone I have had my 5th actemra weekly injection. I reduced my pred. from 15mg to 14&1/2 mg. I have been on the 14&1/2 for 5 days and I started...

Hi Everyone I have had my 5th actemra weekly injection. I reduced my pred. from...

Linny3

•4 years ago

5 Replies

Have any of you experienced Avascular necrosis of the knee?

Yesterday I rose from bed and found I could not put weight on my right leg because of pain in my knee. Have any of your experienced Avascular necrosis? Or...

Yesterday I rose from bed and found I could not put weight on my right leg becau...

singingloud

•4 years ago

3 Replies

What is the usual length of time on steroids for PMR?

I am new here. I was diagnosed with PMR last December but I am still taking 6mg of Prednisolone. Is this unusual?

I am new here. I was diagnosed with PMR last December but I am still taking 6mg ...

Devonshire31

•4 years ago

25 Replies

Thanks all for Hair stories

I guess there is hope for My hair to go back to its original condition thick and manageable. Thanks for feedback

I guess there is hope for My hair to go back to its original condition thick and...

Darcy2000

•4 years ago

1 Reply

The great Pred debate

Yes we all want to come off them and yes Rhumi's are totally focused on getting us off them. However, it is my understanding that people who've had an organ...

Yes we all want to come off them and yes Rhumi's are totally focused on getting ...

RevSmallwood

•4 years ago

20 Replies

Nausea

Is nausea in the morning a symptom of pmrgca? It has become almost unbearable. Thanks

Is nausea in the morning a symptom of pmrgca? It has become almost unbearable. T...

Content1

•4 years ago

16 Replies

avascular necrosis shock!!

I posted about enlarged lymph nodes in neck and axilla back in June.I was also struggling with left shoulder pain[on top of p.m.r!].shoulder has deteriorated...

I posted about enlarged lymph nodes in neck and axilla back in June.I was also s...

anutycrixp

•4 years ago

10 Replies

AA query follow up

Many thanks for the replies to my recent post.All helpful. I’ve spoken to the rheumy and been prescribed risedronate. Rugger has been taking this with no bad...

Many thanks for the replies to my recent post.All helpful. I’ve spoken to the rh...

DDKRM

•4 years ago

2 Replies

Not a great few days

Got on the scales to discover that I have put on over a stone so time to embrace a low carb / low sugar diet I think! Have also bought a Fitbit so it will be...

Got on the scales to discover that I have put on over a stone so time to embrace...

Arflane97G

•4 years ago

10 Replies

Living in the netherlands

Hi there, My partner and I have live in NZ for thirty years, now both retired. We plan to emigrate back to the Netherlands to be closer to the family. I have...

Hi there, My partner and I have live in NZ for thirty years, now both retired. ...

Kaaswinkel72

•4 years ago

33 Replies

Prednisone and hair

Sorry this is certainly not an important issue but since being on prednisone for the past 18 months my hair has become dry brittle and definitely not like it...

Sorry this is certainly not an important issue but since being on prednisone for...

Darcy2000

•4 years ago

35 Replies

Late update to still in pain and depressed

When I last posted i was worried about my phone appointment with my GP and my pred prescription and having a discussion about tapering, etc. She had...

When I last posted i was worried about my phone appointment with my GP and my...

Mstiles

•4 years ago

4 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2020

New to PMR

GCA indication

Ear, jaw and throat pain

Is this a flare?

Another dental problem, Alendronic ac and implants

Hi. I am new here

Sitting Pain

Taper Success

Problems with hands/fingers

DEXA Dilemma - Round 3

Fantastic news

Swellings on palms of hands

Should I increase dose

Dental question

THE LONG HAUL

is this study suggesting steroids are less damaging than the inflammation in PMR regarding bone loss

Actemra side effects

E Bike

Actemra and reducing prednisone

Have any of you experienced Avascular necrosis of the knee?

What is the usual length of time on steroids for PMR?

Thanks all for Hair stories

The great Pred debate

Nausea

avascular necrosis shock!!

AA query follow up

Not a great few days

Living in the netherlands

Prednisone and hair

Late update to still in pain and depressed

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