Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,084 members • 39,881 posts

All posts for August 2020

Tapering

started out at 30 mg per day for my PMR in late Feb I got down below 20 mg and my Rheumatologist wanted me to reduce by 2.5 mg at a time I got to 10 mg and...

started out at 30 mg per day for my PMR in late Feb I got down below 20 mg and ...

Bridgegoddess

•4 years ago

5 Replies

Doc Martin

Series 7 his aunt has PMR/GCA ... it’s worth watching. It’s on Daily Motion website if you can’t catch it up x

Series 7 his aunt has PMR/GCA ... it’s worth watching. It’s on Daily Motion web...

Hidden

•4 years ago

12 Replies

Etiquette amongst doctors

In reply to whatawonderfullife PMRpro said: On the basis of this article - I would be sticking with my GP . I have been wondering....can people help me with...

In reply to whatawonderfullife PMRpro said: On the basis of this article - I wou...

ChinaWuntoo

•4 years ago

24 Replies

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Feeling frustrated

I don’t often write on here but you guys seem to be the only help I have. I apologise now for the long essay. I have been on Pred since October 2019, my GP...

I don’t often write on here but you guys seem to be the only help I have. I apol...

Whatawonderfullife

•4 years ago

22 Replies

DEXA Dilemma - Round 2!

Warning! Long post, so grab a cup of tea/coffee first. This will either make you laugh or cry. You may need a Hobnob half way through to sustain you, even if...

Warning! Long post, so grab a cup of tea/coffee first. This will either make you...

Nerak12

•4 years ago

109 Replies

PMR following osteoporosis treatment with Aclasta

This is my first post but I have been reading and learning from here for months! I was diagnosed with atypical PMR in April 2019, a couple of months after...

This is my first post but I have been reading and learning from here for months!...

Gotgoat

•4 years ago

6 Replies

Lodotra

This has been discussed before - I think by me yonks ago!! My husband picked up my Lodotra from a different chemist and he said it must be kept in the...

This has been discussed before - I think by me yonks ago!! My husband picked u...

Constance13

•4 years ago

8 Replies

Methotrexate withdrawal

As there is little or no advice from the nhs at the moment then the only recourse is this forum, so as many of you were started on mtx at high doses of pred as...

As there is little or no advice from the nhs at the moment then the only recours...

Austin7

•4 years ago

4 Replies

Head sweats

Hi, I’m currently trying to reduce my dose of Prednisolone from 4.5 to 4 using the dead slow method....I did get to 3 at one point but had aching arms &...

Hi, I’m currently trying to reduce my dose of Prednisolone from 4.5 to 4 using t...

Lyndaki

•4 years ago

21 Replies

Adrenal insufficiency

I’ve been on prednisolone now for 20 months tapering from 15mg to the present 7.5 mg with a few set backs but since adopting the DSNS regime all going ok. My...

I’ve been on prednisolone now for 20 months tapering from 15mg to the present 7....

Tuppence55

•4 years ago

11 Replies

1st Dose of Methotrexate

I just took my first dose of Methotrexate 7.5mg. Is it fair to say that I felt some weird effects within a few minutes or am I just crazy?

I just took my first dose of Methotrexate 7.5mg. Is it fair to say that I felt ...

DianneRose409

•4 years ago

28 Replies

Kate Gilbert's book

Tried to show rheumy Kate's book last visit. He dismissed it with a wave of his hand. Couldn't even be bothered reading the title. Oh well to be expected I...

Tried to show rheumy Kate's book last visit. He dismissed it with a wave of his ...

Caloo650

•4 years ago

14 Replies

Tired of gca, pmr, osteoporosis, back issues

Haven't posted for awhile. Feeling fatigue and pain (never had such fatigue before but think that's what it's called), getting better slowly from 3rd flare in...

Haven't posted for awhile. Feeling fatigue and pain (never had such fatigue befo...

Spanky2019

•4 years ago

19 Replies

NHS rapid policy statement on Tocilizumab for GCA during the Covid-19 pandemic

Hello everyone, and I hope you are all staying safe ( and sane) in these scary times. Forgive me if someone has already brought this to people’s attention, but...

Hello everyone, and I hope you are all staying safe ( and sane) in these scary t...

Suzita76

•4 years ago

14 Replies

Who would be a Rhumi ?

Hello everyone. New here and blessed to have found this site. Rhumi's can only say that it's an auto immune system problem, they have no idea as to the cause...

Hello everyone. New here and blessed to have found this site. Rhumi's can only s...

RevSmallwood

•4 years ago

11 Replies

TO YOUNG FOR PMR

had my first rhumatology app today with mixed results, I do not have RA as my joints in my hands etc are ok and although i show all the signs for pmr I am too...

had my first rhumatology app today with mixed results, I do not have RA as my jo...

snoopy29

•4 years ago

30 Replies

Experience of temporal biopsy

I was diagnosed with GCA in late May. I had never heard of this before and was dependent on advice from my rheumatologist and the booklet produced by the...

I was diagnosed with GCA in late May. I had never heard of this before and was d...

Agavegirl

•4 years ago

27 Replies

Observation and Question re Pred.

Morning all, bright sunny morning here so far, anyway, looking at the posts it would seem that if I am up, which seems to be the case nowadays, then I am...

Morning all, bright sunny morning here so far, anyway, looking at the posts it w...

Bcol

•4 years ago

5 Replies

Prednisilone, a minefield?

Opening the box from my pharmacist just over two weeks ago was quite an experience. 8 drugs, various regimes to follow and all relayed to me by my 20 year...

Opening the box from my pharmacist just over two weeks ago was quite an experien...

Hidden

•4 years ago

12 Replies

Taper failure :(

I apologise in advance for my pity party but I'm just feeling really low today. Weekly drops of 1mg failed to get me below 17mg pred so I tried DSNS, but even...

I apologise in advance for my pity party but I'm just feeling really low today. ...

Hidden

•4 years ago

21 Replies

Agony - PMR Flare or Something Mechanical

Hi all. Warning: a long message!! Went on hols with family and had to come back early due to incredible pain from the bottom of my neck, across the top of my...

Hi all. Warning: a long message!! Went on hols with family and had to come back ...

Burroughs123

•4 years ago

13 Replies

PMR

Im new to this and been on steroids' now for a week and do feel better for helping the pmr but i do wake up sniff in the hips groin and shoulder area still.is...

Im new to this and been on steroids' now for a week and do feel better for help...

rustyrussell

•4 years ago

14 Replies

Prednisolone

I have been taking prednisolone now for 2 weeks at 20mg & 3 days at 15mg! I keep reading that people are getting good effects within days but I am still...

I have been taking prednisolone now for 2 weeks at 20mg & 3 days at 15mg! I kee...

90planetree

•4 years ago

15 Replies

Can anybody help me find a post, please? It refered to the chemical that starts the inflammation around 4am. Something like Leuken 6?

It was a reply from somebody who seemed very well informed. Thanks.

Utgorn

•4 years ago

8 Replies

Question and new to blog

Greetings, I am new to this blog but want to thank you for the insightful postings that i have read. My Rheumatologist has not actually said I have PMR...

Greetings, I am new to this blog but want to thank you for the insightful postin...

SandyBoots

•4 years ago

5 Replies

Hello, I'm new to this community but already learning a lot!

Hi I'm so pleased to find this community. I was diagnosed with PMR 4 months ago and it has taken me as long searching and reading all the information I can...

Hi I'm so pleased to find this community. I was diagnosed with PMR 4 months ago ...

Purpleazalia

•4 years ago

21 Replies

My symptoms after upping my prednisone over six days.

Today is my sixth day on 15 mg of prednisone. It was 10 mg before these six days. The second day was a great improvement of my flare but today I feel I’ve gone...

Today is my sixth day on 15 mg of prednisone. It was 10 mg before these six days...

singingloud

•4 years ago

9 Replies

To Nick

I too woke up one morning with crippling pain, took two months for a clear diagnosis. There is usually a bit of a roller coaster, esp if you have a clueless...

I too woke up one morning with crippling pain, took two months for a clear diagn...

fishingnut

•4 years ago

3 Replies

To be GCA or not to be that is the question.

I’ve been out of circulation for wee while there. Went into yet another steroid withdrawal flare where my life seems to revolve around. Full week now down at...

I’ve been out of circulation for wee while there. Went into yet another steroid ...

Singr

•4 years ago

11 Replies

Not a question, more a sharing

Went to the Royal Free, Hampstead for scheduled appointment for PMR yesterday. I'm now nearly a year in from the initial diagnosis. Head of this department I...

Went to the Royal Free, Hampstead for scheduled appointment for PMR yesterday. I...

Bennijax

•4 years ago

26 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2020

Tapering

Doc Martin

Etiquette amongst doctors

Feeling frustrated

DEXA Dilemma - Round 2!

PMR following osteoporosis treatment with Aclasta

Lodotra

Methotrexate withdrawal

Head sweats

Adrenal insufficiency

1st Dose of Methotrexate

Kate Gilbert's book

Tired of gca, pmr, osteoporosis, back issues

NHS rapid policy statement on Tocilizumab for GCA during the Covid-19 pandemic

Who would be a Rhumi ?

TO YOUNG FOR PMR

Experience of temporal biopsy

Observation and Question re Pred.

Prednisilone, a minefield?

Taper failure :(

Agony - PMR Flare or Something Mechanical

PMR

Prednisolone

Can anybody help me find a post, please? It refered to the chemical that starts the inflammation around 4am. Something like Leuken 6?

Question and new to blog

Hello, I'm new to this community but already learning a lot!

My symptoms after upping my prednisone over six days.

To Nick

To be GCA or not to be that is the question.

Not a question, more a sharing

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