Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,084 members • 39,881 posts

All posts for May 2020

Fast track hospitals in London?

Does anyone know 1. Are there any GCA fast track hospitals in London? How can I find out? 2. Could a London GP refer to the Southend fast track system? Can I...

Does anyone know 1. Are there any GCA fast track hospitals in London? How can I ...

ChinaWuntoo

•4 years ago

34 Replies

Immunity and Covid-19 podcast: Part 2

Last month I put up the link to the first of this series - here is the second part, as promised. The first was a general introduction to immunity and very good...

Last month I put up the link to the first of this series - here is the second pa...

PMRpro

Ambassador•4 years ago

7 Replies

Mental health resources...

Hi, many of us struggle psychologically with chronic illness in normal reality. In this heightened isolated environment I just thought our UK members could...

Hi, many of us struggle psychologically with chronic illness in normal reality. ...

Hidden

•4 years ago

14 Replies

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Suspected GCA

Hi Was told today by my GP that I have suspected GCA - I’ve started on steroids right away and will have Rheumatology appointment this week. I’m just a bit...

Hi Was told today by my GP that I have suspected GCA - I’ve started on steroids...

jessiem

•4 years ago

26 Replies

Dead Slow Nearly Stop chart.

Hello all, Quite awhile ago someone sent me a great chart showing this method that I could print out. I can’t seem to wrap my head around just a verbal...

Hello all, Quite awhile ago someone sent me a great chart showing this metho...

Mstiles

•4 years ago

7 Replies

Red Wine Deleted

My red wine question, thank you for the replies. I have had to delete the post, sorry, my inbox was on fire 🙈🙈🙈🙈.

My red wine question, thank you for the replies. I have had to delete the post, ...

Gunflash

•4 years ago

16 Replies

Vitamins

Last few days I have been having headaches, PMR sufferer. Could it be that I started taking extra Vitamin K?

Last few days I have been having headaches, PMR sufferer. Could it be that I st...

Noosat

•4 years ago

7 Replies

Flare or nerve pain, or is it the same thing?

I've had what I thought, and GP and Rheumy thought, was neuralgic pain/headache from the occipital nerve, and I was prescribed Lyrica which doesn't seem to...

I've had what I thought, and GP and Rheumy thought, was neuralgic pain/headache ...

crafty_grannie

•4 years ago

9 Replies

PMR-Chest Muscle Pain?

Hello, I wonder if anyone with diagnosed PMR has experienced/is experiencing chest muscle pain overnight and early morning that affects lung expansion and thus...

Hello, I wonder if anyone with diagnosed PMR has experienced/is experiencing che...

51Highland

•4 years ago

5 Replies

Uncertainty

Hello all, I've been left with breathing difficulties from covid19. However, I have been recovering well, able to do physical tasks up until last week. I...

Hello all, I've been left with breathing difficulties from covid19. However, I...

briantucker

•4 years ago

21 Replies

Tapering from 10 to 5 mg

Morning All, I posted a few weeks back regarding tapering down on prednisone. My GP instructions were to taper down 5mg a week. I started I’m 30mg and have...

Morning All, I posted a few weeks back regarding tapering down on prednisone. My...

misschris

•4 years ago

14 Replies

Sore throat.

I have GCA since October 2018. On 12 mg Prednisone for the last two weeks. Have had a sore throat for a couple of months. Sometimes very small. Today...

I have GCA since October 2018. On 12 mg Prednisone for the last two weeks. Hav...

alvertta

•4 years ago

16 Replies

Turmeric tablets

Hi there, my brother sent me a link to a website that is advertising a medication called “Joint fuel 360” which is a natural medication that contains Turmeric....

Hi there, my brother sent me a link to a website that is advertising a medicatio...

Leepeelee

•4 years ago

9 Replies

To commemorate & honor PMRGCAuk

The little church I attend has a really cool pastor, Nancy. We have a Zoom church each Sunday with projects that keep us connected. This past week everyone...

The little church I attend has a really cool pastor, Nancy. We have a Zoom chur...

Grammy80

•4 years ago

11 Replies

More advice please

Can I ask if anybody S taking Adcal D3 along with Pred? My GP has asked me to consider taking it. It's a calcium carbonate and vitamin D3 chewable obtained...

Can I ask if anybody S taking Adcal D3 along with Pred? My GP has asked me to co...

Gunflash

•4 years ago

26 Replies

1mg Enteric Coated Pred

Has anyone else had trouble getting hold of 1mg enteric coated pred?

piglette

•4 years ago

14 Replies

How do I get out of the Lupus group?

I was put in the Lupus Health Unlocked group when they had the answer to a question of mine. I didn't realise I would be left there. Now I'm getting all sorts...

I was put in the Lupus Health Unlocked group when they had the answer to a quest...

Purple-Owl

•4 years ago

3 Replies

Tummy upset affecting how well Prednisolone is working?

I’ve been tapering slowly and was stable at 11mg. I seem to have a slight tummy upset , maybe something I ate ? Would this cause the Pred to work less well?...

I’ve been tapering slowly and was stable at 11mg. I seem to have a slight tummy...

SurreyFlower

•4 years ago

21 Replies

Update to: Can GCA flare be triggered by a fall?

I posted the above question a week ago, thank you to all who replied, much appreciated 😊 My GP told me in a message via receptionist to stick at 10mgs unless...

I posted the above question a week ago, thank you to all who replied, much appre...

Phoenix51

•4 years ago

12 Replies

PMR Increasing pain, ear pain.

Hi, I’m new here. I was diagnosed last August with Pmr, started on 15 mg Pred , which worked straight away! I was decreasing the Pred as per doc instructions...

Hi, I’m new here. I was diagnosed last August with Pmr, started on 15 mg Pred , ...

Living001

•4 years ago

18 Replies

Methotrexate

Hi everyone. I wanted to ask if anyone who has GCA and where tapering pred has not worked, has been put on Methotrexate? I am about to go onto 7.5 mgs weekly...

Hi everyone. I wanted to ask if anyone who has GCA and where tapering pred has n...

Skysey

•4 years ago

37 Replies

Flare

Hi everyone, I have been reducing and have reached three mg, Pred, recently I have started to have had pains in my upper back , at first I thought it may be...

Hi everyone, I have been reducing and have reached three mg, Pred, recently I h...

Dukeyears

•4 years ago

3 Replies

Vitamin D

Here is an interesting article I found regarding Vitamin D: Vitamin D appears to play role in COVID-19 mortality rates by Amanda Morris, Northwestern...

Here is an interesting article I found regarding Vitamin D: Vitamin D appears t...

Peptink

•4 years ago

41 Replies

In it together !!

So glad to have found you all, I am not alone 😜

Gellybabie

•4 years ago

10 Replies

Tapering prednisolone

Hi I am on a tapering regime . Started at 25mgs in January reducing 2.5mgs every 2 weeks till 10mgs then 1mg a month from March. I was doing great .. no...

Hi I am on a tapering regime . Started at 25mgs in January reducing 2.5mgs ever...

Caradomben

•4 years ago

5 Replies

Lowering from IV pred

Hi lovely people - I have a virtual friend in hospital who has had a terrible journey getting a diagnosis - but finally it seems to be PMR and GCA plus...

Hi lovely people - I have a virtual friend in hospital who has had a terrible jo...

Pippah45

•4 years ago

13 Replies

Coronavirus question

Morning everyone. I cannot find any information as to why those of us high risk people are not allowed to go for a walk during our current 12 week lock in. I...

Morning everyone. I cannot find any information as to why those of us high risk ...

Jax1962

•4 years ago

56 Replies

Headaches (temple) ,jaw ache

Polymialgia Rheumatosa. Head and jaw aches. I was diagnosed with Pmr about 9 months ago. Severe muscle problems that prevented me from walking or even getting...

Polymialgia Rheumatosa. Head and jaw aches. I was diagnosed with Pmr about 9 mon...

Mick1234566

•4 years ago

8 Replies

Actemra info

As I said in previous post I've had severe arm pain, fluctuating bp, dizziness & fainted a few times, extra heart beats. My labs came back almost normal...

As I said in previous post I've had severe arm pain, fluctuating bp, dizziness ...

Spanky2019

•4 years ago

7 Replies

Shielding

I have been studying recent advice regarding shielding. The advice given by the Society of Rheumatologists and various experts states that if a person is on...

I have been studying recent advice regarding shielding. The advice given by the ...

maxgarry

•4 years ago

23 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2020

Fast track hospitals in London?

Immunity and Covid-19 podcast: Part 2

Mental health resources...

Suspected GCA

Dead Slow Nearly Stop chart.

Red Wine Deleted

Vitamins

Flare or nerve pain, or is it the same thing?

PMR-Chest Muscle Pain?

Uncertainty

Tapering from 10 to 5 mg

Sore throat.

Turmeric tablets

To commemorate & honor PMRGCAuk

More advice please

1mg Enteric Coated Pred

How do I get out of the Lupus group?

Tummy upset affecting how well Prednisolone is working?

Update to: Can GCA flare be triggered by a fall?

PMR Increasing pain, ear pain.

Methotrexate

Flare

Vitamin D

In it together !!

Tapering prednisolone

Lowering from IV pred

Coronavirus question

Headaches (temple) ,jaw ache

Actemra info

Shielding

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A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

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