Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for April 2020

How to sightsee In Egypt despite PMR/GCA (and lockdown)

https://www.theguardian.com/travel/2020/apr/15/egyptian-tomb-ancient-wonders-open-for-virtual-tour-in-lockdown This is a brilliant way to spend an hour or so...

https://www.theguardian.com/travel/2020/apr/15/egyptian-tomb-ancient-wonders-ope...

PMRpro

Ambassador•4 years ago

7 Replies

I’m asking what might be cause of terrific pains in the leg.

I think I’m on the mend from the PMR. But I am very trembly and have major pain in legs. Could it be lack of vitamin and mineral? I have consulted the doctor...

I think I’m on the mend from the PMR. But I am very trembly and have major pain...

Fireleigh

•4 years ago

18 Replies

High Risk Letter

Hi everyone, I hope you are all coping and are well. I was just wondering how many have had a letter to self isolate as they are high risk ? and if you haven’t...

Hi everyone, I hope you are all coping and are well. I was just wondering how ma...

jules1955

•4 years ago

141 Replies

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Rib Pain

Can a PMR flare cause disabling rib pain? The pain goes all the way round with a strange rippling sort of pain at the front. I am waiting for a doctor to phone...

Can a PMR flare cause disabling rib pain? The pain goes all the way round with a...

Omanain

•4 years ago

31 Replies

Sainsbury online shopping

I don't know if anyone is still having problems but this was posted over on the LupusUK forum: "Hi all, if anyone is stuggling to get a slot, phone this...

I don't know if anyone is still having problems but this was posted over on the ...

PMRpro

Ambassador•4 years ago

7 Replies

Hello

Hello. Glad to be here.

Dragonflys

•4 years ago

22 Replies

Truly Inspirational

If we need inspiration when we are feeling down for whatever reason, we only need to think about Captain Tom to make us smile. £13m and counting. Amazing! What...

If we need inspiration when we are feeling down for whatever reason, we only nee...

Marilyn1959

•4 years ago

13 Replies

What lockdown has done for my PMR and arthritis!!

Except for my 10 minutes bursts every hour in the mornings I am afraid I find myself sitting/reclining for too long for the rest of the day. The result is "I...

Except for my 10 minutes bursts every hour in the mornings I am afraid I find my...

Constance13

•4 years ago

77 Replies

I have had PMR for 3 years I have manage to reduce to 2 mg a day . Went back to 5 for a week due to flare, what is the best way to reduce .

PMR flare

Rubybaby1

•4 years ago

19 Replies

Wane

Hi everyone I am down to 5mg prendisalon. But I am experiencing a lot of abrasions and flakey kin on my forehead and its sore and tender .I keep applying...

Hi everyone I am down to 5mg prendisalon. But I am experiencing a lot of abrasio...

Wanne

•4 years ago

8 Replies

Podcast about the immune system and how it works, with a mention of Covid-19 ...

In this podcast, Sara Booth, University of Cambridge, talks to Professor Sarah Rowlands (Florey Professor of Infection and Immunity,University of Sheffield and...

In this podcast, Sara Booth, University of Cambridge, talks to Professor Sarah R...

PMRpro

Ambassador•4 years ago

11 Replies

PMRGCA Members Zoom meetings

Dear all, We at PMRGCAuk have been trialling a number of ways to keep everyone connected during these strange times. One of these initiatives has led to...

Dear all, We at PMRGCAuk have been trialling a number of ways to keep everyone c...

Hidden

•4 years ago

10 Replies

Patience ... value the very small things

Patience Our present lockdown situation got me thinking about the similarities with my high altitude expeditions around the world over the last 30 years or...

Patience Our present lockdown situation got me thinking about the similarities ...

Skinnyjonny

•4 years ago

5 Replies

It’s not all doom and gloom...

Hi I’ve become a poet in my isolation. Most of them are pretty dark. This one isn’t and my sister suggested I share it with the group. I’ve added an...

Hi I’ve become a poet in my isolation. Most of them are pretty dark. This one is...

susanspurs

•4 years ago

10 Replies

The cost of my GCA flare...I didn't recognize it soon enough~

I share this in hopes that it helps someone..... I had shared a few days ago I had a flare. When I talked to my rheumy on the 9th of April, he said he wanted...

I share this in hopes that it helps someone..... I had shared a few days ago I h...

Grammy80

•4 years ago

9 Replies

Medication advice ...

Hello Everyone, It’s been about a month since I asked about a PET scan and the likelihood of underlying GCA, as suggested by my Rheumy. Well I had the PET...

Hello Everyone, It’s been about a month since I asked about a PET scan and the ...

LemonZest11

•4 years ago

22 Replies

Predisone withdrawel

I was diagnosed with PMR in April, 2014. I started off with 20 mills of Pred a day. During the last 6 years, I have got down to 2.5 mills a day, but never been...

I was diagnosed with PMR in April, 2014. I started off with 20 mills of Pred a d...

Southmead

•4 years ago

20 Replies

Sudden GCA symptoms

I've been struggling with pmr symptoms and some blurred vision since taper from 7.5 in January my GP first said it was my neck arthritis not pmr flare but...

I've been struggling with pmr symptoms and some blurred vision since taper from ...

Topcar

•4 years ago

9 Replies

Dynamo (The Magician) and Prednisilone

Just watched a three part documentary about Dynamo, the world acclaimed magician and his battle with health issues, which documented the effect that...

Just watched a three part documentary about Dynamo, the world acclaimed magician...

Theziggy

•4 years ago

18 Replies

Easter bunnies

There were 6. One must have escaped.

alvertta

•4 years ago

1 Reply

WARNING !!!!!!

We have heard from a female member of the forum that she has had a pm from an unsolicited source. He is using inappropriate language. We are trying to deal...

We have heard from a female member of the forum that she has had a pm from an un...

Yellowbluebell

•4 years ago

1 Reply

Is Corona the catalyst that is finally helping me to relax?

This is by no means a depressive post. Over the last few days, having adapted to the 12 week shielding program, supported by my heroic husband, I am entering a...

This is by no means a depressive post. Over the last few days, having adapted to...

Dontwannabesick

•4 years ago

14 Replies

Easter Photo Posts will have replies turned off over the next few hours....

We are doing this because it gets more difficult to identify and deal with PMR and GCA posts in the "noise" of the replies to those photo posts. You can still...

We are doing this because it gets more difficult to identify and deal with PMR a...

Hidden

•4 years ago

To PMR/GCA, Administrators, Moderators, Members and Friends - Yes, this is an off topic post...

But a little beauty is good for what ails us... https://ew.com/music/andrea-bocelli-music-for-hope-concert-live-italy-easter-sunday/ Please feel free to turn...

But a little beauty is good for what ails us... https://ew.com/music/andrea-boce...

GOOD_GRIEF

•4 years ago

9 Replies

A bit of a GCA flare...not bad

I know PMPro won't be surprised to hear this....😊 My rheumatologist had been reducing my methylprednisolone quite rapidly compared to most of you...maybe all...

I know PMPro won't be surprised to hear this....😊 My rheumatologist had been re...

Grammy80

•4 years ago

32 Replies

Predisolone

Hi im new to this page, I've been having a few severe headaches and last week the dr put me on steroids called prednisolone 5mg 8 a day, he said from my...

Hi im new to this page, I've been having a few severe headaches and last week th...

heartgirlx4

•4 years ago

9 Replies

Prednisolone 5mg

Hi, I'm just looking for a bit of advice. My uncle has been on 5mg of Prednisolone daily for 4 weeks for his PMR. He's received a sheilding letter from his...

Hi, I'm just looking for a bit of advice. My uncle has been on 5mg of Prednisolo...

Liberty82

•4 years ago

17 Replies

To all

My pmr seems to have subsided, it may have been brought on by grief attacking me where I was vulnerable. What I wanted to say was; I do look at your messages...

My pmr seems to have subsided, it may have been brought on by grief attacking me...

Barjac

•4 years ago

7 Replies

Reducing during Covid-19

I had assumed that with the stress of social distancing and the virus I wouldn't try and reduce any further. I just had to go back to 6 a few weeks ago after...

I had assumed that with the stress of social distancing and the virus I wouldn't...

bunnymom

•4 years ago

31 Replies

Benefits of being an introvert.

At times like this there are definite benefits to being an introvert. I do enjoy the company of others but I don't feel a need for it. I am always quite happy...

At times like this there are definite benefits to being an introvert. I do enjoy...

mickam

•4 years ago

14 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for April 2020

How to sightsee In Egypt despite PMR/GCA (and lockdown)

I’m asking what might be cause of terrific pains in the leg.

High Risk Letter

Rib Pain

Sainsbury online shopping

Hello

Truly Inspirational

What lockdown has done for my PMR and arthritis!!

I have had PMR for 3 years I have manage to reduce to 2 mg a day . Went back to 5 for a week due to flare, what is the best way to reduce .

Wane

Podcast about the immune system and how it works, with a mention of Covid-19 ...

PMRGCA Members Zoom meetings

Patience ... value the very small things

It’s not all doom and gloom...

The cost of my GCA flare...I didn't recognize it soon enough~

Medication advice ...

Predisone withdrawel

Sudden GCA symptoms

Dynamo (The Magician) and Prednisilone

Easter bunnies

WARNING !!!!!!

Is Corona the catalyst that is finally helping me to relax?

Easter Photo Posts will have replies turned off over the next few hours....

To PMR/GCA, Administrators, Moderators, Members and Friends - Yes, this is an off topic post...

A bit of a GCA flare...not bad

Predisolone

Prednisolone 5mg

To all

Reducing during Covid-19

Benefits of being an introvert.

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A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

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