Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for October 2019

Help, marg here again

Hi all again, upped steroids to 5mg from 4mg what the doctor asked me to try. I am suffering real bad with legs, hips and right shoulder !! Can hardly walk...

Hi all again, upped steroids to 5mg from 4mg what the doctor asked me to try. I ...

Margaret1951

•5 years ago

36 Replies

Good news and bad news

Text from gp confirms that CT scan and chest X-ray are clear and says that she is very pleased with latest blood test results but that sonic scan shows minor...

Text from gp confirms that CT scan and chest X-ray are clear and says that she i...

Arflane97G

•5 years ago

7 Replies

Flare GCA./PMR

Hi there I was diagnosed with GCA just over year ago ( biopsy was negative.)Put on 60mg of steroids for a while then 40 then 20 etc . I saw rheumatologist who...

Hi there I was diagnosed with GCA just over year ago ( biopsy was negative.)Put ...

cochise555

•5 years ago

21 Replies

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Inflamed outer ear

My ear was hurting while laying on it overnight. It was very red this morning and a bit swollen looking. It still hurts. I am just reducing my prednisone and...

My ear was hurting while laying on it overnight. It was very red this morning an...

ayoung

•5 years ago

4 Replies

Missing the Old Me

Heraclitus said, “The only constant in life is change,” and I believe that to be true. There are constant, immeasurable changes taking place everyday, in and...

Heraclitus said, “The only constant in life is change,” and I believe that to be...

Hidden

•5 years ago

35 Replies

Started with PMR now fibromyalgia

I was diagnosed with PMR about three and a half years ago and had been off steroids for over 1 year but still in a lot of pain ( despite having full range of...

I was diagnosed with PMR about three and a half years ago and had been off stero...

cardboardcutout

•5 years ago

22 Replies

How long can muscle weakness go on?

I came off pred about 7 weeks ago and my thighs are still weak. I was on pred a little more than a year, most of the time 10mg.

I came off pred about 7 weeks ago and my thighs are still weak. I was on pred a ...

Aif111

•5 years ago

5 Replies

All about Arthritis and the Ignored foods that can worsen arthritis

Like several illnesses and diseases, health science has overlooked the accurate causes of arthritis for years. Each of the most important types of arthritis...

Like several illnesses and diseases, health science has overlooked the accurate ...

SreekanthD

•5 years ago

14 Replies

Aorta?

After being on 80 mg for a while for GCA probably 10 days on now back to 60 because I didn't notice a lot of difference and I had my eyes checked and they were...

After being on 80 mg for a while for GCA probably 10 days on now back to 60 beca...

twriller

•5 years ago

6 Replies

Help at 2 mg Prednisone.

My bloodwork no longer shows inflammation for Pmr and my RA says any pain left is osteoarthritis but I feel bad most every where and cannot think clearly , am...

My bloodwork no longer shows inflammation for Pmr and my RA says any pain left i...

Ronswife

•5 years ago

4 Replies

Complimentary Therapy

Hi As it's not clear why people end up with PMR I have been giving my situation a lot of thought to try and find a way forward. At the end of Sept last year I...

Hi As it's not clear why people end up with PMR I have been giving my situation ...

JsyAnne

•5 years ago

17 Replies

Told it is not GCA

Ok I have had enough this is getting harder by the day. MyPERFECT eye doctor called me yesterday and told me to go back to my primary doctor because I should...

Ok I have had enough this is getting harder by the day. MyPERFECT eye doctor c...

Hidden

•5 years ago

19 Replies

New anxiety with pred reduction

Hello everyone, I've been one Prednisone for 20 months, starting at 15mg. My reductions have not been without setbacks, but nothing too difficult, and I'd been...

Hello everyone, I've been one Prednisone for 20 months, starting at 15mg. My red...

Heidi_SF

•5 years ago

29 Replies

Spanish Study shows that taking blood pressure tablets at night is beneficial.

https://www.bbc.co.uk/news health I don’t think this link will work. With the longer one I received a warning from HU that it could lead back to my details. It...

https://www.bbc.co.uk/news health I don’t think this link will work. With the lo...

SheffieldJane

•5 years ago

11 Replies

Feeling a tad sensitive maybe

But had nightmare trip to nurse for flu jab and blood test yesterday. Was told in no uncertain terms that just (!) being on steroids did not qualify me for a...

But had nightmare trip to nurse for flu jab and blood test yesterday. Was told i...

Arflane97G

•5 years ago

2 Replies

Garden's looking a bit of a mess!!

It's that time of year again!🥶 I don't mind Autumn but I hate winter (well I do since PMR and PA hit me). Time to hybernate!

It's that time of year again!🥶 I don't mind Autumn but I hate winter (well I d...

Constance13

•5 years ago

20 Replies

Rheumatologist visit. Went very well!

Well Monday October 21 was my first visit with the Rheumatologist and director is not only caring but a wealth of knowledge. Answered every a question I had,...

Well Monday October 21 was my first visit with the Rheumatologist and director i...

susieq051

•5 years ago

23 Replies

Let's talk about temper and nerves....anyone experiencing problems in the evening while on Prednisone and Amitriptyline?

I take 18.5 mg of prednisone in the morning and 17.5 mg amitriptyline at bedtime. I've noticed a pattern-- I'm short-tempered, get hot flashes, and extremely...

I take 18.5 mg of prednisone in the morning and 17.5 mg amitriptyline at bedtime...

Blurry62

•5 years ago

15 Replies

California wildfires causing a flare?

I live in the blackout zone in Northern California. A week ago we had power shut off for 2 days on short notice. We lost food, and it cost us. We just got...

I live in the blackout zone in Northern California. A week ago we had power ...

Mstiles

•5 years ago

19 Replies

I'M NEW HERE AND ON PREDNISOLONE FOR A YEAR FOR GCA

Since being diagnosed last October with GCA and prescribed Prednisolone, I've had breathing difficulties and fluid retention for which I am being treated but...

Since being diagnosed last October with GCA and prescribed Prednisolone, I've ha...

technogran

•5 years ago

56 Replies

Hunter134

Has anyone had trouble with thighs and calves swelling?Started on 15 mg prednisone in May and down to 10 but at night my muscles swell in legs.My reumy won t...

Has anyone had trouble with thighs and calves swelling?Started on 15 mg predniso...

Hunter134

•5 years ago

5 Replies

Are UK GP's limited to a specific prednisolone dosage in their prescribing rules?

Hi all First post here! I'm an otherwise fit 72 year man, I started by PMR journey some 8 weeks ago with diagnosis confirmed by clinical examination and blood...

Hi all First post here! I'm an otherwise fit 72 year man, I started by PMR journ...

Mack100

•5 years ago

19 Replies

Update on painful wrist

Just an update in case some of you have had this type of pain and would like to know how it was resolved. I had pain in my right wrist and at it's worst, my...

Just an update in case some of you have had this type of pain and would like to ...

kulina

•5 years ago

4 Replies

AIP diet, Moringa use

Would like to know if anyone has been successful using Whole30 or AIP diet? If so are you also on medication? Has it helped to reduce the dosage of the med? I...

Would like to know if anyone has been successful using Whole30 or AIP diet? If s...

Grannychristine

•5 years ago

13 Replies

My hands hurt

After waiting five minths, the referral was accepted and I'm going to see Rheumatology for the first time tomorrow. What questions should I be asking? Still no...

After waiting five minths, the referral was accepted and I'm going to see Rheuma...

Myhandshurt

•5 years ago

20 Replies

PMR, new hip, osteopenia and now statins?

Nearly 6 years on pred, at 3.5mg now and using DSNS to finally get off it having got down to 2mg 4x. Replacement hip July 19, recovering well. Diagnosed with...

Nearly 6 years on pred, at 3.5mg now and using DSNS to finally get off it having...

Daisy-daisy

•5 years ago

19 Replies

Thin skin and bruises

Could someone have any ideas what I can do to help with very thin skin which tears nearly on touch and the same with bruising I’m getting like a patchwork...

Could someone have any ideas what I can do to help with very thin skin which tea...

Rusty8

•5 years ago

9 Replies

Sharp pains

Hi does anyone suffer with pains in their knees, top of their toes and hands a feeling of broken shattered glass when leaning on them, this is slowly getting...

Hi does anyone suffer with pains in their knees, top of their toes and hands a f...

carolBF

•5 years ago

9 Replies

CRP

Hi Guys, I’m still at 7 Pred but arms still ache at top and struggle to do bra strap. Base of spine and bum/thigh pain has been bad for a few weeks. Just had...

Hi Guys, I’m still at 7 Pred but arms still ache at top and struggle to do bra s...

jules1955

•5 years ago

12 Replies

Do I take pred or not?

Hi guys, Just a quick question. My PMR specialist put me on 5mg of pred last year and I am doing well. No aches and pains. I'm having an operation next week...

Hi guys, Just a quick question. My PMR specialist put me on 5mg of pred last ye...

Buenavista

•5 years ago

6 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for October 2019

Help, marg here again

Good news and bad news

Flare GCA./PMR

Inflamed outer ear

Missing the Old Me

Started with PMR now fibromyalgia

How long can muscle weakness go on?

All about Arthritis and the Ignored foods that can worsen arthritis

Aorta?

Help at 2 mg Prednisone.

Complimentary Therapy

Told it is not GCA

New anxiety with pred reduction

Spanish Study shows that taking blood pressure tablets at night is beneficial.

Feeling a tad sensitive maybe

Garden's looking a bit of a mess!!

Rheumatologist visit. Went very well!

Let's talk about temper and nerves....anyone experiencing problems in the evening while on Prednisone and Amitriptyline?

California wildfires causing a flare?

I'M NEW HERE AND ON PREDNISOLONE FOR A YEAR FOR GCA

Hunter134

Are UK GP's limited to a specific prednisolone dosage in their prescribing rules?

Update on painful wrist

AIP diet, Moringa use

My hands hurt

PMR, new hip, osteopenia and now statins?

Thin skin and bruises

Sharp pains

CRP

Do I take pred or not?

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